Sunday, December 28, 2008, 22:06
Posted by Administrator
Christina, my little fire cracker, was wriggling her way towards a toy with Angela. When I came into the room, I sat on the couch to watch. Christina lifted her head up to look at me and smiled. She started to turn towards me and gave up on the toy. It was wonderful to see her wiggle and inch along.

It is a special feeling when she tries so hard to make it to me. Christina is one very special girl.

Lots of hugs and kisses to you Christina!!!l
Hard drive 
Sunday, December 28, 2008, 16:36
Posted by Administrator
The scenario...
Angela and Christina went to the mall while I backed up my data.
All is saved, the new hdd is in and formatting.

Next to install all the software.
Saturday, December 27, 2008, 23:35 - General, Doctor
Posted by Administrator
I received a new iPod for Christmas. It is fun learning how to navigate and find the features.

To try my skill, I am posting with it. Typing on a screen is not easy. Maybe someday I will get used to it.

Christina is still sick. Or maybe I should say sick again. She can't seem to shake whatever is going around. Her preop is on the fifth. I hope she is ok for surgery on the seventh.

Merry Christmas!!! 
Wednesday, December 24, 2008, 21:37 - General
Posted by Administrator
Enough said.
Sick again 
Tuesday, December 23, 2008, 16:15 -
Posted by Administrator
I am sick again. I went to the doctor today to make sure I will be okay when I go to Children's.  I had another ear infection and a very sore throat. So the doc gave me a shot of an antibiotic in my leg and that is suppose to take care of everything. It was real painful but mommy was there and made me feel better.

Yesterday I walked in my braces all by myself while listening to Peggy Sue. I really like music. We have been doing a lot of indoor activities because it is really cold outside.

More Botox 
Sunday, December 21, 2008, 13:07 - Doctor
Posted by Administrator
The time has come for the first round of Botox to be wearing off. We go back again early January. They are also going to do Phenol blocks.

The Phenol requires Christina to be under, so we will not be able to hold her hand during the procedure.

We are also looking into the Botox for her arms.

It is all a lot to think about.

Phenol Blocks 
Saturday, December 20, 2008, 01:32 -
Posted by Administrator
So the trip to the cities yesterday was not fun at all. There was a big accident on the freeway in Wisconsin and we had to sit there for a long time. We did make it to Minnetonka on time with enough to spare for lunch before my appointment.  So Tanaguchi said that it is a go for phenol blocks to help my hips develop correctly. The results are immediate and he said that I will probably have to re learn everything that I know; such as walking in the gait trainer and balance, because the tone in my legs will be different.  We are also looking at using botox for my arms but mommy and daddy said that we are only doing one thing at a time. I am also getting botox in my calves at the same time as the phenol.

So when I get the phenol I will be in the OR and mommy and daddy can not go in with me. I know that they are sad about that. I am a trooper I know that I will be just fine.

News today my tooth (molar) finally broke through and there was a lot of blood but it felt better after wards. I still do not want to eat much unless it is cold but that will pass soon. Yippy

Pictures will follow. Daddy got a picture of the whole crew at Gillette Childrens.

Thursday, December 11, 2008, 22:00 - General
Posted by Administrator
Cole came over tonight. Dave and Crystal had a concert to go to. Christina, Cole and I had a good time. It is interesting to watch Christina when another child is around.

We sang, played with toys, and had a snack. Christina and I taught Cole some signs. He catches on quickly.

Whats new.... 
Wednesday, December 10, 2008, 05:05 -
Posted by Administrator
On December 1, I got to see Santa Clause. He read me a book and sang Rudolph with me. It was fun. After we went to find me an outfit for my pictures that I am going to get done. We didn't find one we liked.

I got real sick right after we visited Santa. It started with a cold and then by Saturday I broke out with hives but mommy and daddy didn't know that. Mom said that if they were blue instead of red I would have looked like a smurf. I did not sleep for the whole week, mom and dad didn't get much either. I really didn't want to eat much and lost some weight. On Saturday is when the hives broke out, mommy and daddy took me to urgent care that morning and what started as a cold ended up to be an ear infection, bacterial infection, and a viral infection (the cold) with hives. So I am taking antibiotics. I feel much better now. Still sick but better.

We got our Christmas tree on Saturday. Out neighbors brought it for us. We were going to go with them to pick one out but of course I was sick. Deb, Cory and Trevor stayed for a while and hung out after they brought over the tree.  It is very a very pretty tree.I really like playing with Trevor. He is 5 and in kindergarten. We have fun. I also walked for Deb, Trevor's mom. Mommy and Daddy were very impressed with me walking for someone else.

On Monday the vision teacher came with Jenny to see how I am doing. She was very happy with the improvements that I have made.  After a couple of days of antibiotics I am feeling much better and sleeping much better. Now mommy and daddy are sick.

Today I walked to grandpa Eddy's in my gait trainer in the snow with mommy. It was so fun. Grandpa Eddy lives across the driveway. I got a Reeses peanut butter cup when I got there. He always has chocolate for me.

Today my Botox got rescheduled and it is January 7 instead of February 3. I will be getting phenol blocks as well. Mommy is already a little nervous because I have to go into the OR and have local anesthesia. We will keep everyone updated when the time comes. Mommy also canceled my sleep appointment in the cities on Friday because I was too sick earlier in the week and did not want to push anything.

Another Wednesday 
Wednesday, December 03, 2008, 21:56 - General, Doctor
Posted by Administrator
Christina is sick today. She hasn't been feeling well for a few days.

One of the bottom molars poked through with an attitude. Christina had a flap of gum flopping over her tooth. The other molar on the bottom is so close. It has been swollen for awhile. The two on top are still taking there time.

I think the teething has put her in the path to getting a cold. She has a cough. It sounds very rough. It has progressively been getting worse. She has been clingy and whiny. I would imagine she has a headache too.

While Angela was out of the house getting her school work done, Christina and I wrapped a couple presents. She enjoyed playing with the paper.

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