Lots to update, where to start... 
Tuesday, October 06, 2015, 18:54 - General, Doctor
Posted by Administrator
First, Christina has been a little sick with a slight fever and uncomfortable. She came home early from school, but was back to the grindstone the next day.

Christina is weighing in at 19.4kg (42.77lbs). She is 118cm (46.5in/3'10.5")tall. We are pleased with her weight as we are back to over 40lbs post surgery and maintaining. Christina seems very tall; however, is quite small for her age. Weight will continue to stay a concern for mom and I.

Second, the rhyzotomy surgery went well. I am pleased with the results the surgery intended to provide. Unfortunately, the surgery has increased some of the concerns we were worried about pre-surgery. The curve of Christina's spine which she wore the TLSO to help has become quite worse. Christina needs to wear the TLSO 23 hours a day.

Christina continues her Physical Therapy five days a week and has Occupational Therapy once a week and Speech Therapy once a week. This is in addition to school therapies.

For the parents out there with children that do stretches everyday, do not stop. We were told on several occasions by professionals in the field, that doing stretches with Christina everyday did not provide any benefit. As Christina was one of few patients who did not need to be casted after surgery I think stretches helped. Christina was also discharged after four weeks as opposed to the usual six week stay.

Christina also may have another surgery to straighten her left leg. Mom and I need to discuss this at length. Mom and I do not like the idea of Christina having more surgery. There are several factors to take into consideration and I will share at another time.

I will continue on another date, I have pictures of my princess to backup and share.
Getting Tall 
Monday, August 06, 2012, 09:24 - General, Doctor
Posted by Administrator
Christina's last physical confirmed the princess is growing like a weed.

Christina weighs in at 33 pounds and is 40.5 inches tall.

Christina has been loving the water with the hot weather. She has also been super talkative. ST is done until next semester. Young Athletes starts tomorrow and the water therapy continues. School starts just around the corner.

Happy Birthday Christina! 
Wednesday, July 04, 2012, 08:27 - General, Doctor
Posted by Administrator

The beautiful princess Christina turns six today.

Christina, you have taught me to appreciate every moment.

Watching you has also inspired me to always have determination and to never give up.

Lots of kisses for you.

Lost Tooth 
Friday, April 13, 2012, 14:57 - Doctor
Posted by Administrator

Christina lost her first tooth today.

The princess is super excited. She lost a tooth on the bottom. And, there is another tooth that is loose on top.

My little girl is growing up so fast.

Coming Home 
Friday, February 17, 2012, 23:51 - General, Christina, Doctor
Posted by Administrator
Ahhh... it is good to be home.

Christina is feeling much better. We must keep an eye on her for a few weeks, but I am confident the princess is done with this round of sickness.

It was nice to snuggle with Christina, but I'd rather not have her in the hospital. Maybe Christina and I can have some extra snuggle time every few weeks. It was very peaceful resting with the princess when she was not in pain. I did not sleep well, but is was very peaceful in its own way.

Christina's diagnosis is serum sickness and drug eruption caused by the antibiotic she was taking for the respiratory sickness she caught the week before.

It was so hard on Christina. She was in so much pain and discomfort. Christina was quite the trooper and did her best in the hospital.

UCP Telethon 
Tuesday, January 31, 2012, 07:28 - General, Doctor
Posted by Administrator
The UCP Starfest Telethon went wonderful. Christina had a good time. The princess was great on TV.

Over $200,000 was raised. Thank you to all who donated. And thank you to everyone who volunteered their time.

Christina is doing great. This round of shots has been good.

Play and Therapy 
Friday, January 20, 2012, 20:01 - General, Christina, Doctor
Posted by Administrator
Met with UCP and someone from the school district about other equipment and toys for Christina. Good meeting and lots of brain storming.

I think Christina might be a little spoiled. ;)

The colder temps have been a nice change. It's cold, but its winter and has been quite mild.

Christina's surgery went well; however, now the princess is coming down with a cold or something. We'll plan on a mellow weekend. If I'm lucky maybe some serious cuddle time with my baby.

International Fall Festival 
Tuesday, September 20, 2011, 12:53 - General, Doctor
Posted by Administrator
Christina loves going to school, but it really wears her out. By afternoon she is starting to get cranky. The little princess enjoys school so much that she wants to go go go and pushes herself. And nap time is not on her list of things to do, she may miss something.

This past weekend was the International Fall Festival. Christina was in the parade to show support for the local Children's Museum. I opted to pull Christina in the instead of pushing her in her chair since she enjoys her wagon rides so much. Christina did very well waving to the onlookers.

Happy Labor Day 
Friday, September 09, 2011, 11:35 - General, Christina, Doctor
Posted by Administrator
Happy Labor Day!!!

Christina has continued her busy streak. Things should start to get into a rhythm soon.

Christina's appointment for Phenol blocks and Botox injections went well. A long day for all, but it did go well. Christina is again learning how to walk with the lower tone.

Christina really likes school and riding the bus. The princess goes for a full day now and is tired by evening. Christina likes to tell us about her day and the activities.

Christina was able to see all the first cousins this weekend. It was nice to get the kids together. Lots of pictures, heh.

Christina has two molars poking through on the bottom. Gums are swollen and uncomfortable. Hoping they come through all the way soon.

I have the pictures all organized. Enjoy. Slideshow pics coming.

Christina and Grace

Gma Kar reading

One of my current favorites.

Friday, September 02, 2011, 23:26 - General, Doctor
Posted by Administrator
Thursday was Christina's first day of school, but Friday was the first full day. Christina rode the bus and participated with her new classmates.

Christina really enjoys riding the bus. There was an assembly at school and Christina went and did wonderfully. She has come such a long way, we are very proud.

Many kids surrounded Christina when she first got into her classroom and it was a little overwhelming. Everybody enjoys Christina's company.

It was a good first day and Christina hung in there all through the school day. I bet she sleeps hard tonight.

Daddy and Mommy are super proud of you Christina!!!

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