Christmas Eve 
Tuesday, December 25, 2007, 03:07 -
Posted by Administrator
Hi everyone. I spent Christmas eve with grandma Kar,mom, and dad. We had lots of fun opening some of my presents. Dad taped me, suppose I should be use to it by now. The wrapping paper was the funnest. I loved to chew on it and tare it up. I got some cool toys and new sheets for my bed, they are penguin's. Tonight we are going to call it early because I am going to have a long day tomorrow.  Merry Christmas to all that I am not going to see.
Two days till................ Xmas 
Sunday, December 23, 2007, 17:03 -
Posted by Administrator
Hi everyone. I had the stomach bug that was going around. I  felt so horrible for a week. I am getting better now. I can't wait to open up all the presents under the tree. So really not much has gone on this last week all I wanted to do is sleep and cuddle. Just wanted to say hi.
One week till Xmas 
Friday, December 14, 2007, 14:59 -
Posted by Administrator

Hi everyone, not much here is new.   We got our tree up and the lights on it. We had some issues it did not want to stand up by it self. Daddy did a good job cuz it hasn't moved in 2 days. Then mommy watered the floor instead of the tree.  Today is daddy's Christmas party; so mommy and he are leaving me with grandma. I am exited because grandma and I have so much fun without parents around. She is bringing some christmas music that I like so we can sing.

Wednesday, December 05, 2007, 16:22 -
Posted by Administrator
I just want to tell everyone that despite all the things that are not what everyone thinks is normal - I have a happy and loving family life.

Santa Claus 
Friday, November 30, 2007, 18:38 -
Posted by Administrator
Mommy and grandma Kar took me to see Santa on Wednesday. It went pretty well, I sat on his lap and had my picture taken. The elf's had problems with the computer so I had some extra time with Santa. We had to retake the pictures and I did not want to sit on his lap again so mommy had to take pictures too. While we were waiting for the elf's to fix the computer grandma Kar, mommy, Santa and I were singing Rudolph the red nosed reindeer with Rudolph himself. He made me laugh.

Mommy and daddy have to take me to the cities again on Tuesday to get my AFO's, not to sure how I feel about that. My gait trainer arrived and I do not like it very much now but mommy keeps telling me that I will get use to it again. I sure hope so.

Great grandma came over yesterday and brought a pretty red and green plant for Christmas. Tonight grandma Kar is going to babysit me so mommy and daddy can leave for a bit. This will be our third time together alone and we have so much fun with out the parents.

I can't remember if I told everyone about my doc appointment with the bone and muscle doc. So here is a quick update on that. I do not have to take anymore medications. I don;t have to use botox either. Dr Tanaguchi says that I have mixed cerebral palsy. That makes it hard for me to sit, stand, walk and to control the movements in my arms; but mommy and daddy keep helping me lots so I can move better and keep flexibility.

Saturday, November 24, 2007, 14:44 -
Posted by Administrator
Happy Thanksgiving everyone. We had our first Thanksgiving. Our bird was bigger than me by 4 lbs. Mommy took pictures and I will post them, they are of me and the bird. Supper was very good. Grandma Patty and Grand Harp came over to eat and play.

My contrast study came back all perfect we just got the letter from Dr. Aru. My appointment with Tamaguchi went great too. He said that I am not a candidate for any anti spastic medications or botox. I  have tone and it is a problem but I can relax it. I did however, get fitted for AFO's and we will go back and get them in a couple of weeks. We are still waiting for the gait trainer.

Pictures will soon follow. Bye for now.

After the contrast study.... 
Sunday, November 18, 2007, 03:17 -
Posted by Administrator
Well the trip to the cities went pretty well. The test upset my belly but I guess that happens when they put vials of fluid into your intestines. The equipment was kind of scary but mommy held my hand the whole time and daddy was there talking to me too.
I still feel a little under the weather, my tooth hurts too. Very tired.
I then go back to the doctor on the 21st to meet Tanaguchi the bone and muscle doc.

My gait trainer was approved and we are now waiting for it. I am exited to start to use it.  I am going to bed now I am very tired and still don't feel well.
Bye for now.

Doc Aru 
Saturday, November 03, 2007, 05:32 -
Posted by Administrator
Hi everyone - todays doctor appointment went pretty well. Doc Aru said that Mom and Dad are doing everything that they can for me to gain weight the next thing would be to place a G tube and we do not want that.  Guess what I did gain a little. Doc Aru wants me to come back and have a contrast study done on my intestines to make sure that I have no strictures in there due to my surgery and having NEC. I sure hope that everything is fine because I don't want to have surgery again.
The car ride was okay, my new car seat made it a little better also the ativan helped too. My tooth is bothering me it seems to be right there ready to pop out then it seems to move back up into the gums. So it is sore, I sure wish it would just come out so I can use it. Well goodnight everyone.
Here are some Halloween picts..... 

Wednesday, October 31, 2007, 03:05 -
Posted by Administrator
Whoo hoo. Well everyone I have gained weight. All the fattening food mommy and daddy have been feeding me has paid off. It tastes pretty good too. On Friday I go to see Dr. Aru about my weight to see if he has any more ideas for mommy and daddy to do. We are tying to avoid getting a G-tube. If I keep going at this rate I should be okay.

Tomorrow I am going to dress up as the Linux Penguin. I will have mommy put up pictures for everyone. Tomorrow my speech therapist starts, mommy hopes that I like her and that we work well together.  Last night I took a late bath because I was rolling all over the floor and wiggling like a worm. All of us had a lot of fun playing on the floor.


reply to rude comment.... 
Sunday, October 28, 2007, 21:48 -
Posted by Administrator
Christina you poor little girl. They have you taking Ativan!!!!?????!!!!! That is really scary. I wish you were old enough to tell them no.

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