Wednesday, August 08, 2012, 08:40 - General, Christina
Posted by Administrator
Lots of appointments coming up for the princess. Lets see...

Pre-op, Phenol blocks and Botox shots, Dr. Walker, AFO fitting, school.

Along with swim therapy once a week and Young Athletes twice a week.

Christina definitely likes to go go go.

Christina has also been doing well using the diazepam. There was a day her tone was outrageously high. And she had a small fever that afternoon and slept a lot. Probably caught a bug and her body needed to fight it off.

As per usual, Christina has been chatty and Tuesday was very giggly.

Wednesday, August 08, 2012, 08:36 - General
Posted by Administrator
Tomatoes, tomatoes, tomatoes, I have a lot of cherry tomatoes. Picked more last night and I'm running out of room. I think I am going to see what my options are to freeze some.

I also have a few peppers that are finally ready. I cooked with some last night and they have a bit of a bite.

The strawberries did not do well. I think I neglected them too much. The plants look good; however, I did not get much fruit. Perhaps I will try to bring them inside for the winter.

Always busy 
Monday, August 06, 2012, 09:27 - General
Posted by Administrator
As usual there always seems to be something going on. I have also decided to maintain a social life. Although that seems to make more work.

I have a good start on a fool proof backup strategy. Picture backups are going well. Also working on a strategy for trans-coding movies.

School starts soon for Christina. She is in first grade already. Wow, does time fly.

Getting Tall 
Monday, August 06, 2012, 09:24 - General, Doctor
Posted by Administrator
Christina's last physical confirmed the princess is growing like a weed.

Christina weighs in at 33 pounds and is 40.5 inches tall.

Christina has been loving the water with the hot weather. She has also been super talkative. ST is done until next semester. Young Athletes starts tomorrow and the water therapy continues. School starts just around the corner.

Another Update 
Saturday, July 14, 2012, 10:14 - General, Christina
Posted by Administrator
Christina's tone has been very bad. It may be the cause of the spots. We started Valium to help with the tone and it seems to be helping a lot. Christina has been in even better spirits than her cheery self.

Not much else going on. Still going over the IEP and getting frustrated.
Summer Time 
Saturday, July 14, 2012, 09:24 - General, Christina
Posted by Administrator
Christina has been enjoying her summer.

There have been some rash outbreaks, fevers, blah feeling, but Christina has been a trooper through it all and still wanted to play.

It has been extra hot lately so our outside time has been in short durations. I think Christina misses going to school and seeing her classmates. Various therapies have started and that fills in some of the gaps.

Christina had a doctor appointment was fitted for another pair of AFOs.

Christina's tone has been worse and we started her on Valium to help relax the muscles.

Happy Birthday Christina 
Wednesday, July 04, 2012, 08:33 - General, Christina
Posted by Administrator
Happy Birthday Christina!!!

Six years ago today, Christina came to walk with me on this journey.

Love you Christina!

Happy Birthday Christina! 
Wednesday, July 04, 2012, 08:27 - General, Doctor
Posted by Administrator

The beautiful princess Christina turns six today.

Christina, you have taught me to appreciate every moment.

Watching you has also inspired me to always have determination and to never give up.

Lots of kisses for you.

Too Hot 
Thursday, June 21, 2012, 07:23 - General
Posted by Administrator
The weather has not been understanding of my little garden. It has been a windy season so far and the hot weather has made it uncomfortable. The plants have a slight lean.

Christina has been well overall. A few bouts of fever and rash, but docs say nothing to worry about. Dad's worry, enough said.

Christina was full of kisses and wanted lots of cuddle time over Father's Day weekend. I enjoyed it a lot.

I have not been spending much time on the computer and trying to do more around the house and yard. Shelving may be the next project. I need shelves in the basement and kitchen. Not sure which to start with.

Pictures, pictures, pictures. I have been keeping up on pictures and have a good start on my backup solution. Hmm, reminder... BACKUP. Make sure you backup everything you want. And make sure you have three copies in two different locations and on different media.

That reminds me I should work on backing up the home movies today.


Enjoy a coffee and some good company.
End of School Year 
Monday, June 04, 2012, 19:46 - General
Posted by Administrator
There has been lots going on. The end of the school year is quickly approaching.

Christina had a field trip to a farm. She had a good time. Christina enjoyed seeing pigs, a dog, goats, bird nests, petting rabbits and chicks, riding a horse, and getting licked by a calf.

Christina's IEP is also being gone over for next year.

Christina has been enjoying her new swing and loves to spin around. I don't know how she keeps from getting so dizzy.

Christina has also become very good at using her voice activated switch. When the purple lights are not on in her room she is sure to give a shout to turn them on. I am proud to watch her look around to see if the lights are on, if off shout to turn them on, then look around to see if they came on. The lights are a string of rope lights hung up around the ceiling.

Christina has had some red spots come and go on various places mostly her legs and arms. We do not know what they are yet, but she goes to the doc tomorrow. I fear it is recurrence of the serum sickness.

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