Another Update 
Saturday, July 14, 2012, 10:14 - General, Christina
Posted by Administrator
Christina's tone has been very bad. It may be the cause of the spots. We started Valium to help with the tone and it seems to be helping a lot. Christina has been in even better spirits than her cheery self.

Not much else going on. Still going over the IEP and getting frustrated.
Summer Time 
Saturday, July 14, 2012, 09:24 - General, Christina
Posted by Administrator
Christina has been enjoying her summer.

There have been some rash outbreaks, fevers, blah feeling, but Christina has been a trooper through it all and still wanted to play.

It has been extra hot lately so our outside time has been in short durations. I think Christina misses going to school and seeing her classmates. Various therapies have started and that fills in some of the gaps.

Christina had a doctor appointment was fitted for another pair of AFOs.

Christina's tone has been worse and we started her on Valium to help relax the muscles.

Happy Birthday Christina 
Wednesday, July 04, 2012, 08:33 - General, Christina
Posted by Administrator
Happy Birthday Christina!!!

Six years ago today, Christina came to walk with me on this journey.

Love you Christina!

Happy Birthday Christina! 
Wednesday, July 04, 2012, 08:27 - General, Doctor
Posted by Administrator

The beautiful princess Christina turns six today.

Christina, you have taught me to appreciate every moment.

Watching you has also inspired me to always have determination and to never give up.

Lots of kisses for you.

Too Hot 
Thursday, June 21, 2012, 07:23 - General
Posted by Administrator
The weather has not been understanding of my little garden. It has been a windy season so far and the hot weather has made it uncomfortable. The plants have a slight lean.

Christina has been well overall. A few bouts of fever and rash, but docs say nothing to worry about. Dad's worry, enough said.

Christina was full of kisses and wanted lots of cuddle time over Father's Day weekend. I enjoyed it a lot.

I have not been spending much time on the computer and trying to do more around the house and yard. Shelving may be the next project. I need shelves in the basement and kitchen. Not sure which to start with.

Pictures, pictures, pictures. I have been keeping up on pictures and have a good start on my backup solution. Hmm, reminder... BACKUP. Make sure you backup everything you want. And make sure you have three copies in two different locations and on different media.

That reminds me I should work on backing up the home movies today.


Enjoy a coffee and some good company.
End of School Year 
Monday, June 04, 2012, 19:46 - General
Posted by Administrator
There has been lots going on. The end of the school year is quickly approaching.

Christina had a field trip to a farm. She had a good time. Christina enjoyed seeing pigs, a dog, goats, bird nests, petting rabbits and chicks, riding a horse, and getting licked by a calf.

Christina's IEP is also being gone over for next year.

Christina has been enjoying her new swing and loves to spin around. I don't know how she keeps from getting so dizzy.

Christina has also become very good at using her voice activated switch. When the purple lights are not on in her room she is sure to give a shout to turn them on. I am proud to watch her look around to see if the lights are on, if off shout to turn them on, then look around to see if they came on. The lights are a string of rope lights hung up around the ceiling.

Christina has had some red spots come and go on various places mostly her legs and arms. We do not know what they are yet, but she goes to the doc tomorrow. I fear it is recurrence of the serum sickness.

Doll & Pet Parade 
Sunday, May 13, 2012, 11:08 - General
Posted by Administrator
Christina was in the Doll & Pet Parade dressed up like Pebbles. She looked very cute.

I will soon be back on track with slideshow pictures of Christina.

Christina's tooth coming in has given her some discomfort once in awhile. Nothing Anbesol and Motrin can't relieve.

There were some sore spots that showed up on Christina's belly and chest that looked like bug bites, but were gone within a day.

Christina's IEP was on Friday and went well. We are working on a more focused plan for her.

Hard Drive Failure 
Sunday, May 13, 2012, 09:15 - General
Posted by Administrator
Thank goodness for backups.

I had a hard drive fail. The drive had 1.85TB of data. All the pictures were backed up along with videos. I also found an old copy of the music and saved that. I did loose the movies that I had saved for watching on the network.

So BACKUP backup BACKUP!!!

The drive failure set me back on pictures and updating the slideshow. I should be back on track in a week or two.

Friday, April 13, 2012, 15:32 - General, Christina
Posted by Administrator
It's been a busy time. Couple friends moved and I gave a small hand. Christina has wanted to go go go. The holiday came and went.

For Easter we went to grandpa's house. Last weekend we went to the Children's Museum on Saturday. We colored eggs and made cookies.

And we have been walking a lot outside in the gait trainer.

This morning Christina lost her first tooth. She was super excited.

Lost Tooth 
Friday, April 13, 2012, 14:57 - Doctor
Posted by Administrator

Christina lost her first tooth today.

The princess is super excited. She lost a tooth on the bottom. And, there is another tooth that is loose on top.

My little girl is growing up so fast.

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