Cole and I 
Saturday, March 28, 2009, 21:41 -
Posted by Administrator
Cole, mommy, Crystal, Evan and I went swimming last Friday. I had lots of fun. Mommy and I were chasing Evan. Cole was not so happy and I tried to comfort him but it did not work.  I swam for an hour. It was great.

This Friday Cole was over all day and we played with blocks. Mommy spied on us while we were playing. I also went over to Debs and I hung out with her for about an hour with out mommy. She did say later that she was peaking in on us, she saw that I gave her kisses and hugs.

On the 2nd of April I have a doctor appointment with Burnstien, my neurologist. We will keep everyone up to date if there is anything new.

New stuff that I am working on is talking and singing. I really like hard music like Pearl Jam and Slipknot. My walking has taken a backseat for now because of everything else I am working on sitting and grabbing stuff with two hands. I really like hangers. I can stick my head through the center and transfer from hand to hand.

Mommy and daddy have also busted me on my behavioral issues such as manipulation and being extremely impatient. So I am not getting away with as much.

Thursday, March 19, 2009, 16:11 - General
Posted by Administrator
I signed up for a class through continuing education with the UW. I was and am excited to learn more. Today was the first day I hit the books. Class officially started on Wednesday the 18th at 12:00.

It was an experience sitting down and focusing on learning again. It took a little bit to get into the routine. After a half hour or so of reading, I was back into the groove. I finished my first lesson and waiting for lesson two to come out.

Angela and Christina went to the mall today with Crystal and Evan. I'm still waiting to hear how their day went. They are both taking a nap.
Thursday, March 19, 2009, 01:08 -
Posted by Administrator
Well we got my swing and it is soooo fun. I wish we would have gotten it sooner. Mom talked with Katie on different ways to use my swing and we were all playing with it last night. I took my first official fall. I fell out of the swing and got rope burn on my upper lip and nose. It was more traumatic emotionally for me than any physically.  Mommy gave me a freeze pop and that made thing better.

Today I got right back on my swing. It is still soo much fun.

Mom, Deb, Trevor and I went for a real long walk and then had ice cream. I like to be outside. Mom and I have been enjoying the warmer weather. I now like my stroller so we can go for long walks.

Friday, March 13, 2009, 17:20 - General, Christina, Doctor
Posted by Administrator
What's new? Not a whole lot.

Christina is doing pretty well. She has been working on her vervbal communication and enjoys hearing herself. Speech therapy has given us some things to work on. One of the words we are working on is "more". I am also working on the word "daddy".

Christina's two top second molars are still being slow in coming through. There have been some troublesome days and nights lately. They have gotten better. Although, the princess does not like to lay down by herself for a nap. And, on the weekend has been fighting naps more.

As Christina deals with her teeth and speech, her legs have taken the back burner. She has had more difficulty taking steps. We still work on it, on some days Christina wants to try to walk everywhere. One time taking steps is not a problem is bath time.

Angela and I are doing OK. Angela sprained her foot; not very bad, but enough to hurt a lot and make things more difficult. Both uf us are ready for a break.

I'm going to take a class online. It starts this month. It will take some time juggling, but I am looking forward to it.

Saturday, March 07, 2009, 20:53 -
Posted by Administrator
It has been so long since an update. All has been pretty mellow around here. We have been enjoying the warmer weather. Mom and Deb did the polar plunge and I had lots of fun with daddy and uncle Donny while we watched.

This week mom and I went for ice cream two times and I really liked that. We also meet Aunt Maria for lunch on Thursday. I got to talk to aunt Astara on skype at the office.

I have been working hard on walking and crawling- I have made huge progress.

On Friday Cole came over and we tore up the house,  HEEE HEEE.

Upcoming things are on the 26th I meet Mary for the transition into the school district. On April 2 I have two doctor appointments one with Bernstein and the other with Tanaguchi.

Pictures will be coming soon.

Sunday, March 01, 2009, 13:35 - General
Posted by Administrator
Happy Birthday to me.

For me, it is just another day. I didn't even remember how old I am until Angela got up and reminded me.

Celebrating is not my cup of tea. I think it is a good excuse not to make dinner tonight and to order out. I thought about the three of us going out for dinner. What I really enjoy, is being home and watching Angela and Christina interact. Or working on the PC and listening to them.

Dinner at home it is. Now to figure out what I am in the mood for.


Thursday, February 19, 2009, 05:28 -
Posted by Administrator
We all just wanted to say hi to everyone. Not much new here just hanging out and waiting for the weather to get better so we can go play outside.

Have a great night to all.

Saturday, February 14, 2009, 02:41 -
Posted by Administrator
Walking has been going very well. Christina has all the ambition in the world to accomplish this task. She has started to walk in the gait trainer with braces and benik vest.  The benik vest is made out of wet suit material with two metal strips in the back for support. It works under the idea of pressure on the trunk of the body to make the body more aware of it's actions. this vest has been a real help for Christina.

Christina has also been very good in the car around town. No crying. Yippy. She is also getting her last set of molars on top. They ruptured on Thursday. The teeth are getting better now.

New and wonderful 
Monday, February 02, 2009, 04:30 -
Posted by Administrator
Things have been very mellow over here. We are working very hard on strength in Christina's legs. Since the phenol it is very apparent how weak that the muscles are. ( CP will do that.)  We have started swimming again and Christina is glad to be back at the pool. We went on Thursday and she doggy paddled to a beach ball and then grabbed it. When she would grab the ball it would squeak and she though that was the funniest  thing ever.  It was so amazing to see her see the ball and reach up for it - it was a big beach ball.

Today we all went to Walmart for kitty stuff and Christina walked the width of the store. She was very tired but refused to stop. We did the walk with a few breaks. She is also sick again with a cold. It has been a bad season of colds.

Christina has also had great luck with sitting up and being able to control her upper half. The phenol has helped with the myoclonic jerks that use to make her loose her balance.  She is also working real hard in her gait trainer and walking with her braces.

She is such a trooper and refuses to give up.

We are waiting to find out if we can get her a touch screen computer. She does wonderful with the touch i pod and we can only imagine what she will be able to do with a whole screen. We will find out if funding will get her one soon. All of her therapist are pushing for her.

If anyone would liek to see more pictures check out the slide show.

First Post by Daddy 
Tuesday, January 27, 2009, 19:51
Posted by Administrator
The new blog is setup.

Now for the little details.

<<First <Back | 37 | 38 | 39 | 40 | 41 | 42 | 43 | 44 | 45 | 46 | Next> Last>>