Thursday, March 19, 2009, 01:08 -
Posted by Administrator
Well we got my swing and it is soooo fun. I wish we would have gotten it sooner. Mom talked with Katie on different ways to use my swing and we were all playing with it last night. I took my first official fall. I fell out of the swing and got rope burn on my upper lip and nose. It was more traumatic emotionally for me than any physically.  Mommy gave me a freeze pop and that made thing better.

Today I got right back on my swing. It is still soo much fun.

Mom, Deb, Trevor and I went for a real long walk and then had ice cream. I like to be outside. Mom and I have been enjoying the warmer weather. I now like my stroller so we can go for long walks.

Friday, March 13, 2009, 17:20 - General, Christina, Doctor
Posted by Administrator
What's new? Not a whole lot.

Christina is doing pretty well. She has been working on her vervbal communication and enjoys hearing herself. Speech therapy has given us some things to work on. One of the words we are working on is "more". I am also working on the word "daddy".

Christina's two top second molars are still being slow in coming through. There have been some troublesome days and nights lately. They have gotten better. Although, the princess does not like to lay down by herself for a nap. And, on the weekend has been fighting naps more.

As Christina deals with her teeth and speech, her legs have taken the back burner. She has had more difficulty taking steps. We still work on it, on some days Christina wants to try to walk everywhere. One time taking steps is not a problem is bath time.

Angela and I are doing OK. Angela sprained her foot; not very bad, but enough to hurt a lot and make things more difficult. Both uf us are ready for a break.

I'm going to take a class online. It starts this month. It will take some time juggling, but I am looking forward to it.

Saturday, March 07, 2009, 20:53 -
Posted by Administrator
It has been so long since an update. All has been pretty mellow around here. We have been enjoying the warmer weather. Mom and Deb did the polar plunge and I had lots of fun with daddy and uncle Donny while we watched.

This week mom and I went for ice cream two times and I really liked that. We also meet Aunt Maria for lunch on Thursday. I got to talk to aunt Astara on skype at the office.

I have been working hard on walking and crawling- I have made huge progress.

On Friday Cole came over and we tore up the house,  HEEE HEEE.

Upcoming things are on the 26th I meet Mary for the transition into the school district. On April 2 I have two doctor appointments one with Bernstein and the other with Tanaguchi.

Pictures will be coming soon.

Sunday, March 01, 2009, 13:35 - General
Posted by Administrator
Happy Birthday to me.

For me, it is just another day. I didn't even remember how old I am until Angela got up and reminded me.

Celebrating is not my cup of tea. I think it is a good excuse not to make dinner tonight and to order out. I thought about the three of us going out for dinner. What I really enjoy, is being home and watching Angela and Christina interact. Or working on the PC and listening to them.

Dinner at home it is. Now to figure out what I am in the mood for.


Thursday, February 19, 2009, 05:28 -
Posted by Administrator
We all just wanted to say hi to everyone. Not much new here just hanging out and waiting for the weather to get better so we can go play outside.

Have a great night to all.

Saturday, February 14, 2009, 02:41 -
Posted by Administrator
Walking has been going very well. Christina has all the ambition in the world to accomplish this task. She has started to walk in the gait trainer with braces and benik vest.  The benik vest is made out of wet suit material with two metal strips in the back for support. It works under the idea of pressure on the trunk of the body to make the body more aware of it's actions. this vest has been a real help for Christina.

Christina has also been very good in the car around town. No crying. Yippy. She is also getting her last set of molars on top. They ruptured on Thursday. The teeth are getting better now.

New and wonderful 
Monday, February 02, 2009, 04:30 -
Posted by Administrator
Things have been very mellow over here. We are working very hard on strength in Christina's legs. Since the phenol it is very apparent how weak that the muscles are. ( CP will do that.)  We have started swimming again and Christina is glad to be back at the pool. We went on Thursday and she doggy paddled to a beach ball and then grabbed it. When she would grab the ball it would squeak and she though that was the funniest  thing ever.  It was so amazing to see her see the ball and reach up for it - it was a big beach ball.

Today we all went to Walmart for kitty stuff and Christina walked the width of the store. She was very tired but refused to stop. We did the walk with a few breaks. She is also sick again with a cold. It has been a bad season of colds.

Christina has also had great luck with sitting up and being able to control her upper half. The phenol has helped with the myoclonic jerks that use to make her loose her balance.  She is also working real hard in her gait trainer and walking with her braces.

She is such a trooper and refuses to give up.

We are waiting to find out if we can get her a touch screen computer. She does wonderful with the touch i pod and we can only imagine what she will be able to do with a whole screen. We will find out if funding will get her one soon. All of her therapist are pushing for her.

If anyone would liek to see more pictures check out the slide show.

First Post by Daddy 
Tuesday, January 27, 2009, 19:51
Posted by Administrator
The new blog is setup.

Now for the little details.
Friday, January 23, 2009, 18:05 - General
Posted by Administrator
Poor Orion.

I dropped Orion off at the vet this morning. He was scheduled to be neutered and to have his front claws removed.

Christina and I will pick him up tomorrow morning.

I feel bad, but it is for the best. I would hate to have Christina get scratched. She pets Orion nice most of the time. Sometimes though, she grabs and pulls his fur. Orion is very tolerant.

The girls are sleeping as I just came home. I hear Christina stirring. She must know I am home.
Update on phenol 
Thursday, January 22, 2009, 02:11 -
Posted by Administrator
Well in the beginning it was very concerning for me and I am sure for Christina and Derek as well because the skills that were there were no longer there. In the last week we have been working very hard towards gaining the skills back. Christina is doing great. The lack of strength in her legs is noticeable but it will always be weaker due to CP. She is working very hard and is very persistent on walking so that is what we do lots of. Dad makes great games out of leg strengthening as well. So things are going great. She is doing great at sitting up as well.

This weekend Christina got to meet Joan and she liked her very much. It was shocking how much Joan was able to touch her and Christina held her hand and gave high five.  Yesterday we went over to Deb and Cory's to play with Trevor. We had lots of fun. The two of them always have fun together.  Then Derek came to get us to go grocery shopping. Christina likes to go to the store just not the ride there or home.

Christina has also been approved for more funding and we are exited about what we can get her. We are going to try for a touch screen monitor. She has figures out how to use the touch screen ipods and likes them a lot. Imagine what she could do with a whole screen.

Anyway we have just been waiting for the temperatures to warm up so we can go out side and play.

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