Today Christina had her Phenol blocks and Botox shots. It seemed to take longer than usual for the princess to wake up.

Once again I will state that it does not get any easier watching your child get put down.

The hospital seemed a little off today, but I think it was more the new policies that are getting implemented. Each visit seems to have at least one new policy that interrupts the flow for awhile.

I'm feeling productive since as I post this I am backing up the pictures from the week. The backups should be done tonight then I will upload some pics for the slideshow. And for those paying attention, yes I did say 'backups' plural.Original, local backup, off site backup, redundant local backup.

Cheers.

Where to start on what has been going on... Let's start with what's in my head up front and center.

Christina had her wheelchair fitting yesterday. It went well, but it was and is emotionally draining. Let's start with the good stuff. The chair is pink with black padding. The side prompts will hold Christina from her side to side shifting. The chest prompt is neoprene with an elastic band attached which should give the comfort of the neoprene and still have the strength to hold Christina correctly. The lap belt goes over her hips not her waist which should hold the princess in place better as she tries to squirm around. The ankle straps seem more comfortable, but we'll know for sure looking for bruising.

The princess was well behaved throughout; although, she was not a fan and you could tell after a couple hours in the hospital she was ready to go.

We went to the Big Rig Truck Show. Christina enjoyed some of the odd stuff we did. We walked under/in one of the big plows and had fun waling over the foot bridge. Christina wanted to check out the Truck Light Parade that night. As she was watching the trucks go by I was watching her track the lights. Good job Christina. And when they blew their horns Christina giggled on the loud ones.

Christina helped with my first attempt at zucchini bread. After we were done mixing everything and I was greasing the pans Christina asked for a taste. I didn't want to tell her no, but I didn't think it would taste good. So I told her I wasn't sure what it would taste like and she could try it if she wanted. She wanted.
This is taste number four.

So as the weather cools down(ha) it is 73°, a dew point of 72°, and a real feel of 83°. And that is cooler, hmm. Everything is relative. Winter where are you.

Christina and I had fun this past weekend. We went to a family reunion and got to see relatives I have not seen in ages and got to meet many more. It was a good time. Christina tolerated the heat better than some.

Our outside play has been limited with the heat. I have noticed even the neighbor kids have not been out much. Christina still keeps me running in the house.

Another round of Phenol blocks and Botox is coming up and my mind is already tossing every thought possible over it. Ugh. I have been reading a book about advocating for your child and it is informative enough to get me thinking about how lucky we have been with doctors, therapists, and insurance. There is very little positive in what I have read so far.

The slideshow of pictures should be updated tonight. Enjoy!!!

Happy Birthday Christina!!!

Christina turned five this past weekend. She is growing up so fast. I thought it would be a good idea to try watching the fireworks. Christina did very well. She took a long nap in the afternoon and was ready to go late in the evening. I think Christina was a little bored while we waited. Once the fireworks started Christina watched with a smile. I even caught her tracking some of the fireworks that were bright on the way up. The booms and bangs did not bother her at all. I saw a few yawns, but she watched the fireworks until the end. Even the walk to the park and back to the car went good. Silly daddy packed a jacket and pants in case it cooled down.


Happy Fourth of July!!!

Or better put:
Happy Independence Day!!!

I went through all the pictures of Christina through 2006. Wow, Christina has come such a long way. Looking back really made me think how I made it this far also. It is amazing how much a parent can handle when thrown news no one should ever have to face. Lots of memories of my wired baby. And not to forget when Christina was wireless.

Thinking about all the pictures I went through I should put up a wall of nurses, doctors, volunteers who took care of Christina and helped me get through.

Well laundry is waiting and I'm tearing up so more at another time.

With the warmer temperatures I am ready for winter. This week is going to get hotter, not looking forward to it.

I have not updated in awhile, my apologies.

Christina is doing well. We spend lots of time outside swinging, walking, wagon rides, and the reward for her wonderful efforts a shoulder ride.

Christina loves to go go go; we wear each other out. I try t sit for a little bit when she is down for her nap/quiet time.

The squirrels need to go, they are hurting my plants. Still deciding whether to try one of the ultra-sonic things or get a live trap and relocate them to a wooded area not far.

I have been keeping up on pictures and videos of Christina. I have slacked on getting the slideshow updated regularly. I think I need to pick once or twice a month and schedule it.

Right around the corner is Christina's birthday. The princess will be five. A small party and cake are on the agenda.

I read an article about how dads make better parents than moms. Although there were some good points, overall the article did not hit on key items I would have mentioned. It is a treat and sometimes difficult being mom and dad at the same time. I want to go into detail, but that will be a post of its own and will get done when and if I get time.

Time to watch a movie and go to bed. Cheers!!!