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Where to start on what has been going on... Let's start with what's in my head up front and center.
Christina had her wheelchair fitting yesterday. It went well, but it was and is emotionally draining. Let's start with the good stuff. The chair is pink with black padding. The side prompts will hold Christina from her side to side shifting. The chest prompt is neoprene with an elastic band attached which should give the comfort of the neoprene and still have the strength to hold Christina correctly. The lap belt goes over her hips not her waist which should hold the princess in place better as she tries to squirm around. The ankle straps seem more comfortable, but we'll know for sure looking for bruising.
The princess was well behaved throughout; although, she was not a fan and you could tell after a couple hours in the hospital she was ready to go.
We went to the Big Rig Truck Show. Christina enjoyed some of the odd stuff we did. We walked under/in one of the big plows and had fun waling over the foot bridge. Christina wanted to check out the Truck Light Parade that night. As she was watching the trucks go by I was watching her track the lights. Good job Christina. And when they blew their horns Christina giggled on the loud ones.
Christina helped with my first attempt at zucchini bread. After we were done mixing everything and I was greasing the pans Christina asked for a taste. I didn't want to tell her no, but I didn't think it would taste good. So I told her I wasn't sure what it would taste like and she could try it if she wanted. She wanted.
This is taste number four.
Christina had her wheelchair fitting yesterday. It went well, but it was and is emotionally draining. Let's start with the good stuff. The chair is pink with black padding. The side prompts will hold Christina from her side to side shifting. The chest prompt is neoprene with an elastic band attached which should give the comfort of the neoprene and still have the strength to hold Christina correctly. The lap belt goes over her hips not her waist which should hold the princess in place better as she tries to squirm around. The ankle straps seem more comfortable, but we'll know for sure looking for bruising.
The princess was well behaved throughout; although, she was not a fan and you could tell after a couple hours in the hospital she was ready to go.
We went to the Big Rig Truck Show. Christina enjoyed some of the odd stuff we did. We walked under/in one of the big plows and had fun waling over the foot bridge. Christina wanted to check out the Truck Light Parade that night. As she was watching the trucks go by I was watching her track the lights. Good job Christina. And when they blew their horns Christina giggled on the loud ones.
Christina helped with my first attempt at zucchini bread. After we were done mixing everything and I was greasing the pans Christina asked for a taste. I didn't want to tell her no, but I didn't think it would taste good. So I told her I wasn't sure what it would taste like and she could try it if she wanted. She wanted.
This is taste number four.
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Daddy's Log 20101114
With the rainy weather and cooler temperatures we have been spending our time indoors, but that is not necessarily a bad thing. Although it is the start of the feeling of being cooped up.
Christina has continued being more talkative and is taking it to the next level. She is more verbal each week. It seems speech is a favorite activity at school also. It is difficult to find a speech activity Christina is not willing to do.
Soon is Christina's surgery, it always gives me a queezy feeling as the time approaches. It has proven beneficial for Christina, but that feeling and thoughts of 'what if' swirls constantly. The doubts raise their heads higher and more often as the day of surgery approaches.
The next topic:
I have been working on some more web stuff. I am trying to consolidate pictures for everyone and make them easy to view online. The total is over 30,000. I'll figure out a reasonable layout and finish it up one of these days. I also setup another blog for a friend. You will have to be patient as he is learning to post and get the look just right. I will post a link here soon. I've been pondering doing more myself, but that would require a bigger step I am willing to take right now. Getting the pictures online done and updating the slideshow come first. I want to make the slideshow more customized towards Christina. I chuckle as that probably means I'll add some pink.
I have to share (again) a smile from Christina. I see it most often when Christina is walking and I am 'following' her. She turns her head and looks up at me with big eyes and a smile. Her eyes have a sparkle that says "I'm doing it dad". As I have said many times before children are pure and have an energy within them. Never could I have imagined the feeling when Christina shares that with me. Christina shares herself with every smile. And to add to my list of wonderful daddy moments, after supper tonight when I picked up Christina made me smile. Christina gave me a hug and I gave her a hug back, then she said "daddy", I replied "yes", and Christina followed with "I love you", I replied "I love you too". I had to give her another huge hug. As much as I run that through my mind and cherish every bit of it, the best part came after. The look on Christina's face as we looked at each other when she realized that I understood what she said and responded. That smile, the look in her eyes, the unspoken words "I'm proud of you daddy". That was the best part.
Time to update Christina's blog. Enjoy the day.
With the rainy weather and cooler temperatures we have been spending our time indoors, but that is not necessarily a bad thing. Although it is the start of the feeling of being cooped up.
Christina has continued being more talkative and is taking it to the next level. She is more verbal each week. It seems speech is a favorite activity at school also. It is difficult to find a speech activity Christina is not willing to do.
Soon is Christina's surgery, it always gives me a queezy feeling as the time approaches. It has proven beneficial for Christina, but that feeling and thoughts of 'what if' swirls constantly. The doubts raise their heads higher and more often as the day of surgery approaches.
The next topic:
I have been working on some more web stuff. I am trying to consolidate pictures for everyone and make them easy to view online. The total is over 30,000. I'll figure out a reasonable layout and finish it up one of these days. I also setup another blog for a friend. You will have to be patient as he is learning to post and get the look just right. I will post a link here soon. I've been pondering doing more myself, but that would require a bigger step I am willing to take right now. Getting the pictures online done and updating the slideshow come first. I want to make the slideshow more customized towards Christina. I chuckle as that probably means I'll add some pink.
I have to share (again) a smile from Christina. I see it most often when Christina is walking and I am 'following' her. She turns her head and looks up at me with big eyes and a smile. Her eyes have a sparkle that says "I'm doing it dad". As I have said many times before children are pure and have an energy within them. Never could I have imagined the feeling when Christina shares that with me. Christina shares herself with every smile. And to add to my list of wonderful daddy moments, after supper tonight when I picked up Christina made me smile. Christina gave me a hug and I gave her a hug back, then she said "daddy", I replied "yes", and Christina followed with "I love you", I replied "I love you too". I had to give her another huge hug. As much as I run that through my mind and cherish every bit of it, the best part came after. The look on Christina's face as we looked at each other when she realized that I understood what she said and responded. That smile, the look in her eyes, the unspoken words "I'm proud of you daddy". That was the best part.
Time to update Christina's blog. Enjoy the day.
Daddy's Log 20101024
Saturday morning Christina woke up at 03:00. To quote an old movie; "what does the '0' mean, oh my god it's early". Christina was wide eyed and cheery. We sat downstairs for a little while and then I told Christina she had to go back to bed. I put her back in bed with some hugs and kisses and crawled back into bed myself. I listened until the princess fell asleep. She slept in until about quarter to nine. We had several choices of activities for the day, but took it easy. I don't want Christina to get sick. It was rainy all day. We played a little, read a little, worked on some letters and sounds. She took a long nap too.
Saturday morning Christina woke up at 03:00. To quote an old movie; "what does the '0' mean, oh my god it's early". Christina was wide eyed and cheery. We sat downstairs for a little while and then I told Christina she had to go back to bed. I put her back in bed with some hugs and kisses and crawled back into bed myself. I listened until the princess fell asleep. She slept in until about quarter to nine. We had several choices of activities for the day, but took it easy. I don't want Christina to get sick. It was rainy all day. We played a little, read a little, worked on some letters and sounds. She took a long nap too.
Daddy's Log 20101010
This weekend held a good workout. Christina had lots of energy and wanted to go go go. Saturday Christina was amazing; she wanted to walk outside, not in the gait trainer, so we walked up and down the sidewalk. With a couple of stops for her to get her legs going she walked several blocks. I had to reward her the best I could, so big hugs and a shoulder ride she got.
Friday Christina was full of hugs and looked adorable. After some play time we danced before bedtime.
Now that I used the word it is missing something; due to the use of the word 'amazing' in infomercials, it just doesn't have the ummpf it should. Makes me chuckle how every infomercial I see or hear uses the word 'amazing'. So when I use it to describe Christina or her activity it is best thought of as '$yf@#% amazing'.
Sunday Christina and I met Mark, Kelli, and the girls at the Y. We had a great time. A young boy in the locker room had questions about CP when he saw Christina. It gave me a good feeling to help someone understand more about CP.
This weekend held a good workout. Christina had lots of energy and wanted to go go go. Saturday Christina was amazing; she wanted to walk outside, not in the gait trainer, so we walked up and down the sidewalk. With a couple of stops for her to get her legs going she walked several blocks. I had to reward her the best I could, so big hugs and a shoulder ride she got.
Friday Christina was full of hugs and looked adorable. After some play time we danced before bedtime.
Now that I used the word it is missing something; due to the use of the word 'amazing' in infomercials, it just doesn't have the ummpf it should. Makes me chuckle how every infomercial I see or hear uses the word 'amazing'. So when I use it to describe Christina or her activity it is best thought of as '$yf@#% amazing'.
Sunday Christina and I met Mark, Kelli, and the girls at the Y. We had a great time. A young boy in the locker room had questions about CP when he saw Christina. It gave me a good feeling to help someone understand more about CP.
Daddy's Log 20101003
I have been fighting off a cold and have been succesful so far. Burning the candle at both ends has not helped, but there are just so many hours in a day and stuff has to get done.
Friday night I started a roast in the crock pot. The roast barely fit and I have a big crock pot. We got one meal out of it so far and I figure leftovers should last me four more meals. I'll have two this week and freeze two.
Saturday night I started ribs in the oven. Hmmm, they smell good. Christina thinks it is funny when she watches me put more barbecue sauce on them. And when she feels the heat from the oven she gives a giggle. The first time I had a tough time figuring out what she was laughing at. Christina was in her gait trainer and no where near the oven. I did not pull the pan out, I just pulled out the rack and basted the ribs right in the oven. It took a while before the wave of heat reached Christina. When it did the giggles started. Now we open the oven door so Christina can feel the heat and for me to smell the ribs. Smiles for us both.
All weekend we kept things mellow, Christina is sick and I don't want it to get worse. I am hoping she gets over it quickly. We have kept it at bay so far. A good night's sleep on Friday helped. Saturday Christina woke up at 23:00. After some holding time in the chair she was ready to go back to bed. Smiling when I laid her down there was no fussing and only one peep after I closed the door.
I have been fighting off a cold and have been succesful so far. Burning the candle at both ends has not helped, but there are just so many hours in a day and stuff has to get done.
Friday night I started a roast in the crock pot. The roast barely fit and I have a big crock pot. We got one meal out of it so far and I figure leftovers should last me four more meals. I'll have two this week and freeze two.
Saturday night I started ribs in the oven. Hmmm, they smell good. Christina thinks it is funny when she watches me put more barbecue sauce on them. And when she feels the heat from the oven she gives a giggle. The first time I had a tough time figuring out what she was laughing at. Christina was in her gait trainer and no where near the oven. I did not pull the pan out, I just pulled out the rack and basted the ribs right in the oven. It took a while before the wave of heat reached Christina. When it did the giggles started. Now we open the oven door so Christina can feel the heat and for me to smell the ribs. Smiles for us both.
All weekend we kept things mellow, Christina is sick and I don't want it to get worse. I am hoping she gets over it quickly. We have kept it at bay so far. A good night's sleep on Friday helped. Saturday Christina woke up at 23:00. After some holding time in the chair she was ready to go back to bed. Smiling when I laid her down there was no fussing and only one peep after I closed the door.
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