Home Sweet Home 
Thursday, October 02, 2008, 22:15 - General
Posted by Administrator
We made it home in one piece. The drive home was pretty typical, Angela drove, I tried to sleep, and Christina cried.

The Botox injections went well. Christina did a wonderful job, considering she received eight injections. Four in each calf. Poor girl. She did very well with the mask also.

The appointment with Dr. Burnstein, Christina's neurologist, went well. He was pleased with her progress. We also spoke about Christina's sleeping. Or should I say, not sleeping.

Christina and I made good use of the pool and hot tub. The pool was on the cool side so we played as long as we could stay warm and then went into the hot tub. After a couple of minutes in the hot tub Christina relaxed and was kicking up a storm.

We made a couple different trips to the pool. It helped break up the day and allowed us time to adjust to the water temp.

Christina also enjoyed getting wrapped up in a towel to go back to the room.

We were all glad to get back home.
Cities Trip 
Monday, September 29, 2008, 22:30 - General, Doctor, Events
Posted by Administrator
Well, we made it.

Christina was her usual self and unhappy with the car ride. She started crying before we even made it out of the drive. She stopped crying when we took her out of the car at the hotel.

Angela just slid her into bed. A bit of wind down for us and off to sleepy land.

Christina's appointment is at 0730. No food or drink from midnight until after the appointment.

I think if she is up to it, I will take her swimming in the pool. She should enjoy that. I will too.

More updates later.

Derek
Lots on my mind. 
Sunday, September 28, 2008, 22:31 - General
Posted by Administrator
Well, it is Monday night and we have everything packed for tomorrow. We will leave after I am done with work tomorrow night. Then Christina's appointment is in the AM. The poor thing can't have any food or drink before her appointment. I guess we can be in the room when they give her the injections. That should be an interesting experience.

That is where all the thoughts start flooding in. Christina gets Botox in her calves. It will be her first round. The thought of purposely injecting a toxin into the body seems odd. But, it makes sens logically. The toxin will make it easier for Christina to bend her legs when her foot is in the correct position.

Then Wednesday, Christina has her appointment with the neurologist. That should go well. I always get a bit uptight before hand though. And afterwards can be hard. Hearing info from the doc can be tough, even when it is the same 'ol stuff.

Time to load the car and go to bed. Long week.
Angela's Surgery 
Monday, September 22, 2008, 06:43 - Christina
Posted by Administrator
Angela's surgery went well. It was a long day at the doctor, but went OK. Angela handled everything well, she was out for quite awhile, even in recovery. And of course, the first thing she asked for was coffee. I picked up some chocolate too.

Christina also handled it very well. Her and I played and sang while waiting for mommy. I brought the chair along and that worked well for lunch. Christina and I set up camp in a corner at the coffee shop and ate lunch.

Christina also handled her stretches in the waiting room. We are getting a handle on some of the sensory issues.

Angela is finding out how much she uses both hands to do things. Picking Christina up or setting her down is a bit tricky now. And the stretches are difficult.

Christina is already showing signs of revolt. The little squirt will purposely throw herself against Angela's sore arm. And while walking will suddenly drop to a sitting position. Not to mention the grabbing and typical hitting(not purposeful).

It will be a long week. Next week are Christina's appointments.
Busy Busy 
Tuesday, September 16, 2008, 07:05 - General, Christina, Doctor, Events
Posted by Administrator
We have lots of appointments coming up so I figured I better post while I can.

Angela has surgery coming up this week. Christina's appointments are the end of the month into October. I think we have surgery, neurologist, eye, physiologist, and then the dentist. The dentist appointment will be her first cleaning.

Time to get ready for work.

Derek
Up Early 
Saturday, September 13, 2008, 04:43 - General
Posted by Administrator
Morning,

Christina, my little princess, has been up most of the night. I decided to try and be productive. Check email, weather, woot, blog.

Christina is so cute this time of the morning. Her eyes are big, we didn't turn on any big lights. She has a big yawn every three minutes or so. And, as we sit here, she is bracing one hand on the desk and grabbing the laptop with the other.

Christina's turn to type :

xz hmmmmmmmmmmm. ka jcvvbvvnnffjklkmghhhhhhhhhkjkhgdvcfvjjffhjfjfjjjh
fhteuryyriufhjudehhzxfeilllll;
plkhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhh

End quote.

Crawling and more 
Wednesday, September 10, 2008, 03:45 -
Posted by Administrator
Last night I army crawled to mommy twice. It was hard but I wiggled, pulled with my arms and pushed with my feet. Mommy and daddy were soo proud of me. I was pretty proud of my self too.

Mommy and I went swimming at the YMCA for the first time in two weeks. The pool was closed for cleaning. It is a good thing it opened because it is too cold to go swimming in the river now. I also walked from the locker room to the exit. I missed doing that.

Today I went to great grandma Marge's with mommy and had lunch. I even let her hold me. I ate a lot, she had real yummy peaches all cut up for me.

Grandma Patty came over for supper tonight and I showed her that I could crawl.  I had a busy day. My two year molars started to come. I am getting the bottom right one. So four more teeth and I should be all done.

Good night, its my bed time.

Here are pictures of me and my buddy Cole.









Crawling 
Sunday, September 07, 2008, 22:07
Posted by Administrator
Christina is making progress getting her legs to do what she wants them to. She is making crawling motions and can get to her destination with a lot of effort and enough patience.

This weekend was fairly quiet. Grandpa and his friend came over today. Christina received a neat toy from Julie. She liked the paper, of course, and started playing with the toy after I got it out of the box. Darn tape and cable ties.

Keep checking out the link for the slideshow. Angela has been adding more photos.

Derek
Pictures 
Wednesday, September 03, 2008, 22:17
Posted by Administrator
I finally put something together for the pictures. I stuck a slideshow in to add to the page. Angela really liked it. Got lucky on that, I just needed filler. The photo albums are all done and uploaded through July, 2008. The form to pick which gallery to look at is done(the page I stuck the slideshow on).

The pictures are backed up through the middle of August and I will finish that tonight. And, the task of sorting through all the pics is almost done. I have all of Christina in her own folder. Everyone else is stuck in one folder. I will start breaking those out soon.

After that, I want to view the inventory in a quick and easy way I am not sure the best route to go. I am afraid the best way will be to go through each picture again and add meta data. Yuck! Last count was around 13000 of Christina.

Time to upload some photos and go to bed.

We took Christina to the park on Labor Day. We went swinging and walking in the water.
Labor Day 
Tuesday, September 02, 2008, 03:15 -
Posted by Administrator
Well this was suppose to be my birthday so I am officially 2 years adjusted.  Anyway...
Sunday mom and I went to Riverview to go on the swings and wade in the river. I had other plans, when we got to the river I took off right into the water. It was so much fun. Mom and I played around.  My diaper grew so much from the water that mom had to take it off so I could keep walking. I met a little girl named Elle in the water playing just like me. I was a short but fun trip. It was close to dinner time. I also got to ride home with no diaper just my skirt. Whoo hooo, and no accidents.

Well we had so much fun that on Labor Day, today, mom and I got daddy to go back to the park and play in the water with me, the swings too. I had lots of fun. Daddy cooked an awesome turkey tonight for dinner. The sweet potatoes were real yummy too. Uncle Ed came over for supper and chatted for awhile. Later mom and dad took me for a walk. Mom even ran for a bit with me, I sure like it when she runs, its a lot of fun.

I am starting to grab more things with my hands and becoming more independent. I got my gym mat in the mail and it is fun to lay outside on it. We use it in the house too.  My sitting is getting better and so is my walking in the gait trainer. Words are coming a little better for me, I am getting sounds out more often. I don't like to talk while others are around because I am shy. My new favorite thing to do besides cuddle with my mommy and daddy is to read Mr. Brown can Moo Can You? and I Have a Wocket in my Pocket. I just love those books. 

Oh ya I forgot to mention that going potty on the big potty is going very well.

I had a busy day I am off to bed. Night night.


I am standing flat foot and working soo hard on my balance.


I am waving and saying HI to Mommy.








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