The next IEP comes up in September.

Woo Hoo. Mom and Dad coordinate with teachers and therapists what to help me with during the school year.

Christina had Monday the 15th off from school. That meant more play time for us.

Christina has really been working hard. And we play hard too.

Christina and I have been enjoying the great outdoors with our walks, sledding, and wagon rides.

Christina really laughs hard when I slip on the ice and go down. She likes to go fast and I try to accomodate. The path I have cleared is slippery with the ice under the packed snow. And, the wagon tracks in the ice do not help my balance.

Pedal In Place 2016

Coming up on February 28 is the Pedal in Place stationary bike race to benefit Gillette Children's Specialty Healthcare.

Christina loves riding a bike at therapy and school.

http://www.gillettechildrens.org/events ... race-2016/

Christina and I were interviewed by Gillette Children's Specialty Healthcare for a fundraiser. The links for the video follow. All of the links are for the same video on various websites.

https://vimeo.com/148920744

https://www.youtube.com/watch?v=YFXcSLKf7CE

http://www.gillettechildrens.org/giving ... ving-2015/

https://www.facebook.com/GilletteChildrensSpecialtyHealthcare/videos/10153093983561582/

Christina enjoying more holiday lights at the RiverCentre.



We had a lot of fun although it was a long and tiring day.

I helped Christina put Christmas lights on her wheelchair.

Merry Christmas Everyone!

First, Christina has been a little sick with a slight fever and uncomfortable. She came home early from school, but was back to the grindstone the next day.

Christina is weighing in at 19.4kg (42.77lbs). She is 118cm (46.5in/3'10.5")tall. We are pleased with her weight as we are back to over 40lbs post surgery and maintaining. Christina seems very tall; however, is quite small for her age. Weight will continue to stay a concern for mom and I.

Second, the rhyzotomy surgery went well. I am pleased with the results the surgery intended to provide. Unfortunately, the surgery has increased some of the concerns we were worried about pre-surgery. The curve of Christina's spine which she wore the TLSO to help has become quite worse. Christina needs to wear the TLSO 23 hours a day.

Christina continues her Physical Therapy five days a week and has Occupational Therapy once a week and Speech Therapy once a week. This is in addition to school therapies.

For the parents out there with children that do stretches everyday, do not stop. We were told on several occasions by professionals in the field, that doing stretches with Christina everyday did not provide any benefit. As Christina was one of few patients who did not need to be casted after surgery I think stretches helped. Christina was also discharged after four weeks as opposed to the usual six week stay.

Christina also may have another surgery to straighten her left leg. Mom and I need to discuss this at length. Mom and I do not like the idea of Christina having more surgery. There are several factors to take into consideration and I will share at another time.

I will continue on another date, I have pictures of my princess to backup and share.

Christina's blog is on it's way to being up and running.

It has been humid out here. Way too thick for me. Ready for fall and maybe even winter.

Cut the front lawn last night. I waited until it cooled off a little, but wow still warm. And that was at 20:00.

I'll finish the back this morning I think. We're at 100% humidity so I am not in any rush.

Went for a ride yesterday afternoon. Pedaling in the heat was not comfortable. I have become spoiled in my old age.

Carmen Kademan