Christina's tone has been very bad. It may be the cause of the spots. We started Valium to help with the tone and it seems to be helping a lot. Christina has been in even better spirits than her cheery self.

Not much else going on. Still going over the IEP and getting frustrated.

Christina has been enjoying her summer.

There have been some rash outbreaks, fevers, blah feeling, but Christina has been a trooper through it all and still wanted to play.

It has been extra hot lately so our outside time has been in short durations. I think Christina misses going to school and seeing her classmates. Various therapies have started and that fills in some of the gaps.

Christina had a doctor appointment was fitted for another pair of AFOs.

Christina's tone has been worse and we started her on Valium to help relax the muscles.

Happy Birthday Christina!!!

Six years ago today, Christina came to walk with me on this journey.

Love you Christina!

HAPPY BIRTHDAY CHRISTINA!!!

The beautiful princess Christina turns six today.

Christina, you have taught me to appreciate every moment.

Watching you has also inspired me to always have determination and to never give up.

Lots of kisses for you.

It's been a busy time. Couple friends moved and I gave a small hand. Christina has wanted to go go go. The holiday came and went.

For Easter we went to grandpa's house. Last weekend we went to the Children's Museum on Saturday. We colored eggs and made cookies.

And we have been walking a lot outside in the gait trainer.

This morning Christina lost her first tooth. She was super excited.

Christina lost her first tooth today.

The princess is super excited. She lost a tooth on the bottom. And, there is another tooth that is loose on top.

My little girl is growing up so fast.

Christina did very well at her first session of aquatic physical therapy. Jeff, her instructor, did a great job with her. I am confident Christina will benefit from the sessions.

I am always a little concerned when starting with a new person. Jeff was calm and steady with Christina. Before the session was done Christina even gave him a kiss. Christina showed similar signs to when we are in the pool together. It did not take her long to relax enough to enjoy the water.

Ahhh... it is good to be home.

Christina is feeling much better. We must keep an eye on her for a few weeks, but I am confident the princess is done with this round of sickness.

It was nice to snuggle with Christina, but I'd rather not have her in the hospital. Maybe Christina and I can have some extra snuggle time every few weeks. It was very peaceful resting with the princess when she was not in pain. I did not sleep well, but is was very peaceful in its own way.

Christina's diagnosis is serum sickness and drug eruption caused by the antibiotic she was taking for the respiratory sickness she caught the week before.

It was so hard on Christina. She was in so much pain and discomfort. Christina was quite the trooper and did her best in the hospital.

Woo Hoo!

Christina was discharged from the hospital today. What a good feeling to go home. We're not out of the woods yet, but well on our way.

We'll keep a close eye on the princess. This hospital visit kept me worried for way too long.

Christina is feeling much better and will be back to par soon.

I can't to get our walking in and some outside time.

Christina's diagnosis is serum sickness and medication eruption. Both of them caused horrible rash like stuff all over her body.

Good news first. Christina's estimated discharge is Friday. The rash is almost completely gone. The swelling is down. The pain is managed. Christina's tone is ok.

Unfortunatly the amount of meds to keep her comfortable is still an extreme amount.

We have switched to almost all oral medications. Christina will be on a steroid for a few weeks at home. There is also the possibility of a recurrence for up to six weeks. It can be just as debilitating be we are hoping not.

Dr. Taniguchi stopped by; it was good to see a familiar face. I explained what Christina was going thru and he agreed that the Valium was a good choice to manage her spasticity.