Sitting 
Saturday, May 17, 2008, 20:39 -
Posted by Administrator
I am getting better at sitting. I can even push myself up and I am getting better at controling my balance. Mommy and daddy are so proud of me. I even showed grandma Kar what I can do.
Thursday grandma Kar came over and we hung out like old times, I had so much fun. Singing, reading books, and bouncing. Oh how I like to bounce.





More potty updates.. 
Friday, May 16, 2008, 17:17 -
Posted by Administrator
Last night while grandma Kar was here daddy took me to go potty and I pooped on the potty for the first time. Mommy. daddy and grandma were very excited for me. Maybe I should try to do that again sometime. 

I went swimming on Wed. and played with another little girl. She is 4. Mom and her were blowing bubbles for me. They were so funny.

Monday is my very first dentist appointment at 1 in the afternoon. This should be interesting.  Then on Thursday we all head up to the cities for Fridays doctor appointments. We will keep everyone updated. Mom is getting all of the pictures of my brain from Children's so if anyone is interested in seeing them let mom or dad know. 

That's about it. Well I still hate the car in fact I think I hate it more now.  Going anywhere is not fun even trips to the YMCA are hard.


Guess what??? Potty chair !!!! 
Thursday, May 08, 2008, 17:19 -
Posted by Administrator
I used the potty this morning. It was pretty cool. Daddy was home when I went pee so he got to give me lots of encouragement with mommy. Thats my big girl news.

Moore figured it out !!! 
Wednesday, May 07, 2008, 04:06 -
Posted by Administrator
Well mommy talk to Dr. Moore and he knew what was going on. He said that it had nothing to do with my lungs. It was my throat and or vocal cords spasming. He said that it was not a big deal and that kids will grow out of it. Reflux could cause it, being stressed or a viral infection, but none of those things really fit as to why it happened to me. He said that I should be okay. If they continue to be more frequent or more severe I should go to see an ear nose and throat doc but I should be just fine.

Dr. Moore said that there were no worries and that mom can sleep with out being concerned about my breathing. So hopefully she will sleep now. She keeps peeking in on me too much during the night.


Word from the doc's 
Tuesday, May 06, 2008, 17:25 -
Posted by Administrator
So far no one knows why I did what I did. So hopefully it will not happen again. Mommy called all my doc's in the cities to cover all the bases.

Anyway everything else is good. Yesterday I showed mommy how I can sit up in my bumbo chair and try to stay upright all by myself. Maybe I will show daddy tonight. I got a new bubble machine, it is a piggy and he makes lots of cool bubbles. When they pop they make me laugh. That's about all for now. 

Oh ya mommy and I made brownies this morning with peanut butter chips. I got chocolate all over my face. It sure tasted yummy.





Update 
Monday, May 05, 2008, 04:43 -
Posted by Administrator
We made it home. After keeping everyone up, the only definite diagnosis is that I have the cutest hair.

My lungs sound clear in front and back. My heart sounds good. My oxygen levels are great. I got my chest x-rayed twice and that looked good except for a little area that kinda looked like it could be a bronchial infection. Except, I don't have any other symptoms.

The doctor on-call at the hospital called the on-call Neurologist at the Noran Clinic. No worries, Mommy is supposed to call Dr. Burnstein Monday morning.

I was very well behaved too. I only slept a little Saturday night and was up right away Sunday morning. And, I was in a good mood. We played and sang on the hospital bed. I made a mess with my breakfast, there were pancakes all over. I met a cool nurse, Mommy and Daddy liked talking to her. She has a special needs son. I got to learn about him and ideas for giving mom and dad a workout.

Time for bed.


Hospital 
Sunday, May 04, 2008, 16:35 -
Posted by Administrator
So, I had a little trouble breathing last night. It scared me and mom and dad. We went to the ER and they wanted to monitor me all night.

We are still here and I am ready for a nap. The diagnosis so far is that I am cute. No other news yet. Let you know more when we get home.



Pictures 
Thursday, April 24, 2008, 02:19 -
Posted by Administrator

I am working so hard can you tell?


Daddy and I dancing or favorite thing to do.


I am waving Hi.


Why are you taking my picture? I just want my paper towel roll.


Working real hard on the floor. Daddy and I are building walls and making them go boom. So much fun.


Official Word 
Wednesday, April 23, 2008, 04:28 -
Posted by Administrator
We heard back from Dr Burnstein and I have no seizure activity. I have abnormal spikes in the occipital lobe but no seizures. So that is a good thing but not sure what makes me have the colonic jerks. It could just be the PVL.

I had my vision teacher come out today along with Kate and Jenny (PT & OT) and she said that she was very impressed with the progress that I have made in the last three months. Mommy was happy to hear that and so were the therapist. My vision teacher just thinks that my eyes not staying straight is because I get fatigued when using my vision.

Mommy also made my first dentist appointment and I go May 19 for my exam. That should be interesting.

I have been getting used to my chair this week too. We have gone for several walks and I like it better than my stroller. Mommy and daddy are very happy about that. I get to spend more time outside. We have also been sitting outside and playing. I like that a lot, especially when mommy brings the bubbles out.

Warm Sunday... 
Monday, April 21, 2008, 03:41 -
Posted by Administrator
Yay, we had a great day. We went to Heidi's moms house and played with her kids.  Then we went to Cold Stone for ice cream. It was so yummy. Then we went to Buffalo Wild Wings for diner too. After we came home we went for a walk with my new wheel chair. It was so nice to be outside. Daddy also took me walking out side too.
Hope everyone had a great day.




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