Lost Tooth 
Friday, April 13, 2012, 14:57 - Doctor
Posted by Administrator

Christina lost her first tooth today.

The princess is super excited. She lost a tooth on the bottom. And, there is another tooth that is loose on top.

My little girl is growing up so fast.

Christina's Aquatic PT 
Thursday, March 15, 2012, 07:57 - Christina
Posted by Administrator
Christina did very well at her first session of aquatic physical therapy. Jeff, her instructor, did a great job with her. I am confident Christina will benefit from the sessions.

I am always a little concerned when starting with a new person. Jeff was calm and steady with Christina. Before the session was done Christina even gave him a kiss. Christina showed similar signs to when we are in the pool together. It did not take her long to relax enough to enjoy the water.

Coming Home 
Friday, February 17, 2012, 23:51 - General, Christina, Doctor
Posted by Administrator
Ahhh... it is good to be home.

Christina is feeling much better. We must keep an eye on her for a few weeks, but I am confident the princess is done with this round of sickness.

It was nice to snuggle with Christina, but I'd rather not have her in the hospital. Maybe Christina and I can have some extra snuggle time every few weeks. It was very peaceful resting with the princess when she was not in pain. I did not sleep well, but is was very peaceful in its own way.

Christina's diagnosis is serum sickness and drug eruption caused by the antibiotic she was taking for the respiratory sickness she caught the week before.

It was so hard on Christina. She was in so much pain and discomfort. Christina was quite the trooper and did her best in the hospital.

Feeling Better 
Friday, February 17, 2012, 23:26 - General, Christina
Posted by Administrator
Woo Hoo!

Christina was discharged from the hospital today. What a good feeling to go home. We're not out of the woods yet, but well on our way.

We'll keep a close eye on the princess. This hospital visit kept me worried for way too long.

Christina is feeling much better and will be back to par soon.

I can't to get our walking in and some outside time.

Hospital Update 
Thursday, February 16, 2012, 11:00 - General, Christina
Posted by Administrator
Christina's diagnosis is serum sickness and medication eruption. Both of them caused horrible rash like stuff all over her body.

Good news first. Christina's estimated discharge is Friday. The rash is almost completely gone. The swelling is down. The pain is managed. Christina's tone is ok.

Unfortunatly the amount of meds to keep her comfortable is still an extreme amount.

We have switched to almost all oral medications. Christina will be on a steroid for a few weeks at home. There is also the possibility of a recurrence for up to six weeks. It can be just as debilitating be we are hoping not.

Dr. Taniguchi stopped by; it was good to see a familiar face. I explained what Christina was going thru and he agreed that the Valium was a good choice to manage her spasticity.
Hospital Visit 
Saturday, February 11, 2012, 11:00 - General, Christina
Posted by Administrator
Christina went to urgent care Friday evening. This morning in to the ER.

Christina has a rash that came quickly. A fever, belly ache, viral infection add to the mix. It's a thought that the antibiotics caused the rash but not known for sure.

A dose of steroids, Benadryl, ibuprofen and two bags of fluids so far. The princess has perked up a little, but now the Benadryl has made her sleepy.

Will post more when I can.

UCP Telethon 
Tuesday, January 31, 2012, 08:47 - General, Christina
Posted by Administrator
The UCP Starfest Telethon went well. Christina was so well behaved and we had a good time. Christina and I had our three minutes of fame.

Christina's latest round of Phenol blocks and Botox have been pleasing. Her hand motions put a smile on my face.

Christina has also continued being a chatter box. Christina loves to talk and sing. Her speech is getting easier to understand.

UCP Telethon 
Tuesday, January 31, 2012, 07:28 - General, Doctor
Posted by Administrator
The UCP Starfest Telethon went wonderful. Christina had a good time. The princess was great on TV.

Over $200,000 was raised. Thank you to all who donated. And thank you to everyone who volunteered their time.

Christina is doing great. This round of shots has been good.

Play and Therapy 
Friday, January 20, 2012, 20:01 - General, Christina, Doctor
Posted by Administrator
Met with UCP and someone from the school district about other equipment and toys for Christina. Good meeting and lots of brain storming.

I think Christina might be a little spoiled. ;)

The colder temps have been a nice change. It's cold, but its winter and has been quite mild.

Christina's surgery went well; however, now the princess is coming down with a cold or something. We'll plan on a mellow weekend. If I'm lucky maybe some serious cuddle time with my baby.

Phenol and Botox 
Thursday, January 19, 2012, 21:30 - General, Christina
Posted by Administrator
The latest round of Phenol blocks and Botox went well. Christina did super well for being at the hospital.

The rest of the day went well and Christina was in a good mood. We have already noticed a difference in her hands.

This was also the first time we opted for Botox in her shoulders. Initial observations show we made the right choice. It is always a worrying time wondering before the surgery.

Christina as usual has been enjoying the windy cold temperatures. Winter weather does not slow the princess down at all.

Christina is also maintaining her talkative self. She loves to sing and tell stories.

Christina is also very good at board games. She wins a lot. And we do not try to help her. The girl has talent.

The UCP Telethon is coming up on January 28th. Hope to see you there.

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