Bowling Alley 
Monday, April 04, 2011, 22:03 - General
Posted by Administrator
Saturday we went to the bowling alley. When we first got there I think everyone threw a ball at the same time. Christina was startled and fussed a bit, but once the noise settled all was OK. Christina walked a lot on the multi-colored carpet.

We borrowed an activity chair from school to see how well it would work at home. Although not definite, it worked well in most scenarios. Christina also preferred the activity chair verses the Kid Kart.

Christina took wonderful steps in the gait trainer also. It is amusing and frustrating at the same time as Christina fusses when getting placed in the gait trainer and then takes off cruising around the house. I am looking forward to consistent good weather to give her a workout outside.

The Phenol blocks and Botox have definitely made a difference for Christina. A noticeable difference can be seen as the Botox has reached its peak. Christina's leg and arm movements are much better. She is opening her hands more and her vocalization is amazing.

Christina I am so very proud of you.

The slideshow will be updated within a couple days.
Christina audio with talker 
Saturday, April 02, 2011, 23:11 - General, Christina
Posted by Administrator
Christina had a message for Daddy using her talker. I really enjoyed her playing it for me and wanted to share.

Daddy's Log 20110329 
Tuesday, March 29, 2011, 14:02 - General
Posted by Administrator
Getting the blogs updated has become elusive. Dishes are done, tomorrows dinner is in the crock pot, laundry is started, and I have to head to work. So... here is the skinny.

You may have noticed two more links on Christina's blog for pictures and videos. They are working and if you would like to see the 1000's of photos or 100's of videos let me know.
A username and password is required to keep the public out. It was mentioned in court about the slideshow being available to the public so many of you probably already know I ask for an email address. I chose to use an email address to help keep the spammers and automated systems out.

More update to come later.
Wheelchair Evaluation 
Tuesday, March 29, 2011, 13:47 - General, Christina, Doctor
Posted by Administrator
Yes, it has been too long since the last update.

Christina had a wheelchair evaluation at Gillette this past Thursday. It went well and we learned a little more about what is out there for options for Christina. The two popular choices being from Sunrise Medical and Invacare. Christina's current wheelchair a.k.a. Kid Kart is made by Sunrise and it is one of the worst items any of us have ever used. Obviously not designed by anyone who ever had to use it. So our choice was obvious, give Invacare a try with the Solaris. Since most medical equipment is bulky, heavy, awkward, and difficult to sum it up; I am keeping my fingers crossed. Invacare, don't let my baby down! We have a trial chair coming in a few weeks. It will be larger than the chair Christina would have, but should give us a good idea how to navigate inside and out with it.

Christina's teeth have been pretty consistent keeping her uncomfortable. I will be very glad when those molars poke through for good. I can hardly imagine how happy Christina will be.

Christina has been a fan of our adventures outside. With warmer temperatures and less wind we have made a point to go out as much as we can. It was very cute to watch Christina walk to the back door to go out on the deck. Her reaching for the door handle was all I needed to bundle us up and to the deck we went.

Christina has also been on a swinging kick. She enjoys laying belly down in the swing and using whatever limbs she can to get herself moving. With her desire to swing I started bringing various toys over so we can play with both.

We are also still waiting for Christina's Communication Device(iPad). It is ordered, but has not arrived. I am looking forward to hearing more of Christina's words.

There is more to update and I will do so as soon as possible.

How Old is Christina 
Thursday, March 17, 2011, 13:56
Posted by Administrator
So a while back I wanted to know how old Christina is/was in years, months, days. This proved to be quite difficult as years and months can't be consistent in our calendar. So the math began. I finished and the result is displayed on a page. Now I figured I would experiment plopping the code in on other pages. So here goes...

Surgery Appointment 
Tuesday, March 15, 2011, 21:39 - General, Christina
Posted by Administrator
Christina's appointment went well. The princess was not fond of getting poked and prodded, but overall all was OK.

We will be watching close to see how the Phenol and Botox take effect for possible changes in the next round of injections.

Christina has still been dealing with her swollen gums. We all will be glad when those teeth pop through.

Christina has enjoyed the warmer temperatures and loves to be outside. Licking the wind is a favorite even when bitter cold.

Christina has been very fond of swinging lately and lets me know she wants to swing including laying on her belly and getting those legs just a kicking. Christina has also wanted to slide down the steps more lately.

We have also been making desserts, Christina likes making cake, brownies, cookies. This past weekend we made an Oreo dessert and Christina tasted the mix at each step adding ingredients. When the bowl was empty Christina was very very good at licking everything clean.

Silly Humor 
Tuesday, March 15, 2011, 08:03
Posted by Administrator
What kind of key doesn't open a door?

A monkey.
Saturday, March 05, 2011, 23:08 - General, Christina
Posted by Administrator
Today Christina and I made brownies. They are delicious. More were to be had tonight.

Christina and I enjoyed a nice walk outside today. The princess was full of energy and very talkative. Someday I will understand all of Christina's words. She had so much to tell me today; it was beautiful.

I'm tired, not much sleep last night. Body is getting achy must have a cold or flu lingering. I sm used to second shift so the mind is somewhere between tired and what's on tv. Sleep would be the better choice.

I have seem a couple articles want to share. Perhaps another post.

Christina next round of Phenol and Botox is soon. The anxiety will be here soon enough. Not far into the future choices will need to be made concerning the next step after Botox. I am not pleased with the choices I am aware of so far.

Perhaps a walk hand in hand with Christina on a path I have yet to find will help me to see.

Fighting the Flu 
Wednesday, March 02, 2011, 22:13 - General
Posted by Administrator
Christina has been doing well overall. She has been fighting off a touch of the flu lately with success. Christina has felt a little icky, but it hasn't slowed her too much. Those molars are still hanging out below the gums and are painful most days.

Christina has enjoyed being outside every chance we have had. It is fun to watch her excited to walk in the snow and then slow down and check out why it is more work walking in the packy stuff.

Christina is also in a slide-down-the-stairs phase again. She doesn't mind the walk up and really enjoys the way down.

Christina and I made chocolate cookies the other day with dark chocolate chips and they turned out beautiful. Christina had a blast stirring everything together. I helped once the dough was too thick to stir easily.

I will work on getting more pictures updated on the slideshow.

Christina's next round of Phenol blocks and Botox is coming up quickly. Just a couple more weeks.

Daddy's Log 20110219 
Saturday, February 19, 2011, 22:06 - General, Christina
Posted by Administrator
With all the disagreements amongst the public workers, who is the voice of those really affected the children. Is anyone worried about their pension, the one they will need an education for.

Christina was not a big fan of the pool today. There were a lot of kids today. I think she is keeping a touch of the flu at bay and she prefers more mellow. Christina was super talkative today.

Feeling productive tonight. Bread is ready for the oven tomorrow, soup thawing for lunch, chicken out for supper, all the dishes are done, and I'm updating the blog.

There is nothing better than the understanding touch of a child.

Watching the screen saver I found these two caught my attention.

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