There has been a lot going on. I will give a brief update and try to catch up at a later time.

We went to see Dr. Moore and Dr. Burnstein on April 15th. Dr. Burnstein(neurologist) said Christina is doing wonderful and we do not need to see him anymore. Dr. Moore was also pleased with Christina's progress and we do not need to go back for a year.

Christina has been participating in the Young Athletes program and the last day was on April 22nd. Christina has made huge steps playing with the volunteers and coaches there. She received a reward and ribbon at the end of the program. We plan on participating again in the program this summer.

Christina has a runny nose again, but other than that she is healthy.

More when I can,
Derek

Christina's latest doctor appointments were on Thursday. We met with her neurologist and har developmental doctors.

The trip there went well. We took the van and listened to Christina's favorite traveling music. No tears!!! And no tears on the way home until we were a few miles from home. Christina needed to use the bathroom which brought the tears.

Christina does not have to go back to the neurologist. It was great news. It also was a little sad, we have been seeing Dr. Burnstein since Christina was a month old. He said Christina is doing awesome.

we don't see the Dr. Moore again for a year. He too is pleased with Christina's progress.

Christina had a bad night Thursday. We now think that the trips to the docs are that overwhelming for her and that it is not the car ride that pushes her senses to the point she vomits and does not sleep.

Christina may also have strep.

Happy Easter internet world!!!

I am looking forward to Christina looking for her Easter basket. And, if I can plan around the rain we will hunt for candy filled eggs outside.

Dinner is prepped and looking yummy. Nothing traditional. Steak and mashed potatoes. Sauted onions and mushrooms. Haven't decided on a veggie yet, either brocoli, carrots, asparagus, or none.

Happy Easter!!!

A warm and sunny day here meant Christina and spent lots of time outside. We went for several walks and walked barefoot in the grass. Christina loves the feeling on her toes, even the prickly brown grass.

I tried to convince Christina to help me color eggs for Easter, but she wanted me to hold her so we argued and I ended up coloring them. I also packed some plastic eggs with candy. The plan is to stash some around the yard and have Christina look for them. I'll have her hunt for her Easter basket too.

Other updates are the same 'ol stuff. Still not sleeping well and my eating habits are not getting better. Stress, ugh.

For those who are aware, happy Holy Thursday.
Derek

It was a pretty good weekend. Saturday, Christina and I met some of the extended family for breakfast. We had to get up early and had an hour drive. Christina was a wonderful little girl. The car ride went well there and back and she was more cheery than me for that time of the morning. Christina sat on grandpa's lap with only a few tears to start and then it was talking and telling stories.

Both of us were a little off the rest of the day. We were tired and Christina did not want to nap. Mid afternoon I held Christina for a nap and ended up falling asleep too. There are times I miss those days and it was nice to have Christina take a nap laying on me.

Sunday we went to the park and met Sheri and Dylan there. Christina enjoyed being there, but was a little leery of everything. We also went for a walk in the morning. It was sunny and the temp was workable.

Easter is coming up and I think we are going to stay home. I'm still undecided if I'm going to make a big dinner. It has been awhile and I miss cooking a big meal.

Still working on pictures.

We have had wonderful weather here. This past weekend Christina and I spent a lot of time outside. Now if only I can get everything done in the house.

Christina and I went to the Children's Museum for the first time on Sunday. We met Dan, Sheri, and Dylan there. It was fun, going to definately go again.

The family breakfast is coming up and I am looking forward to seeing everyone again.

For those of you who check out the pictures online, I am working on them to make it more user friendly and efficient. Slowly I should add.

It's been a long time since I updated the blog. There has been a lot going on. Let's work backwards...

Yesterday, Feb 13th, we met dad/grandpa for breakfast. We got to see James also. Christina ate very well and shared her smiles with everyone. That afternoon we went to the Wissota Winter Classic. It is a benefit for UCP. We stayed for a few hours and had fun.

Christina had a doctor appointment this past Thursday. The appointment went well. We talked about the next round of Phenol and Botox. Also about casting. We also met the orthopedist who will be following Christina.

The UCP Telethon on Jan 30th went well also. It was an experience and Christina did wonderful. We went late morning and then took a nap and went back late afternoon. Unfortunately we did not make it to Snowbiz. Christina needed her nap in the afternoon and was beat by evening.

Life has been hectic and tough on many levels covering several topics I will not go into. I will sum it up by saying life sucks, and I am not happy.

That's enough of an update. If you would like to know more details send me an email.

Derek

Well the procedure went well, of course holding Christina down in the OR is one of the worst things in the world. But she made it through with no complications. We did decide that next time to use versed, heavy sedation drug, to help make the going to sleep easier and she will forget most of everything that occurs.  After the OR we all went swimming to make part of the day fun.

The trip up there went very well not one tear. I even got pulled over and she did not cry with flashing lights in the back. THe journey home was not so great but at least there was one good way. 

Today we filmed the UCP commercial for the Wissota winter classic. Of course Christina wanted Daddy. She is anti mommy since the OR episode and will be for a few days.  Her and Daddy looked very cute.

So we are back to getting back on schedule. Yes I know that is redundant but oh well.  Jan 21 we will find out if Christina will go to school more days during the week.

Well we are off to the cities for another round of phenol botox. I am sure all will go just fine but it still is an uneasy feeling. I am sure that the trip up there will be the most painful part of the journey.

Well, lately Christina has been a chatter box and it is so wonderful to hear her voice. She has made huge leaps lately as well as growing. She is 3 feet and 24 lbs. I remember when she was just 2.2 lbs. It seems like yesterday she was just a wee baby. Now she is a big princess. She gets on the  upset side if you call her a baby.

She is doing very well in school and looks forward to going. This year she made Derek and I the best Christmas present ever. A cookie jar with her picture on it and all in her paint job. It is the most beautiful cookie jar ever.

Christina had a great Christmas and of course Santa made a long visit. Speaking of Santa we went again this year to see him at the mall and  he remembered Christina by name from last year. She waved and pulled on his beard.  We now have a whole princess town with tunnels and balls and a tinker bell tent too. She just loves to be in there. All the other toys are just better when they are in the tents.

Christina had more pictures done for the UCP event coming up and on Wednesday we will be filming a commercial for the Wissota Winter classic. UCP is going to have her running all year, but very excited about it. We all feel so blessed that Christina was chosen.

I will keep everyone up to date after the surgery or I will have Daddy post something.