Official Word 
Wednesday, April 23, 2008, 04:28 -
Posted by Administrator
We heard back from Dr Burnstein and I have no seizure activity. I have abnormal spikes in the occipital lobe but no seizures. So that is a good thing but not sure what makes me have the colonic jerks. It could just be the PVL.

I had my vision teacher come out today along with Kate and Jenny (PT & OT) and she said that she was very impressed with the progress that I have made in the last three months. Mommy was happy to hear that and so were the therapist. My vision teacher just thinks that my eyes not staying straight is because I get fatigued when using my vision.

Mommy also made my first dentist appointment and I go May 19 for my exam. That should be interesting.

I have been getting used to my chair this week too. We have gone for several walks and I like it better than my stroller. Mommy and daddy are very happy about that. I get to spend more time outside. We have also been sitting outside and playing. I like that a lot, especially when mommy brings the bubbles out.

Warm Sunday... 
Monday, April 21, 2008, 03:41 -
Posted by Administrator
Yay, we had a great day. We went to Heidi's moms house and played with her kids.  Then we went to Cold Stone for ice cream. It was so yummy. Then we went to Buffalo Wild Wings for diner too. After we came home we went for a walk with my new wheel chair. It was so nice to be outside. Daddy also took me walking out side too.
Hope everyone had a great day.



KID CART 
Friday, April 18, 2008, 01:23 -
Posted by Administrator
Today I got my kid cart (wheel chair) today.  It was hard on mommy and daddy.  I too will have to get used to it. Soon mom and I can start going for our walks again.

Yesterday I went swimming with mom and while we were swimming I pooped in my little swimmers. Big mess. Then they closed the locker room for cleaning and we had to hurry up to clean everything. HA HA moms biggest fear me pooping in the pool. Anyway all turned out well. h


Sunday 
Monday, April 14, 2008, 02:12 -
Posted by Administrator
Well, I have a baby cousin a boy. Uncle James, aunt Robyn and Grandpa came over today and we all hung out. It was fun and very tiring I fell asleep before everyone left. Aunt Robyn made me a photo album with everyone's pictures in it.  ( Thank you )
I can not wait until tomorrow because it is suppose to be nice out and I will get to go to the park and maybe the pool too.  No therapy so it will be play all day. Whoo hooo

Oh ya I am getting another tooth. Yippy Hopefully I'll be done soon.

New stuff 
Monday, April 14, 2008, 13:51 -
Posted by Administrator
I forgot to tell you last night that I got a new potty. I haven't used it yet but it should be easier than the big toilet. Mom got me a new ball, it lights up and sings it is pretty fun.  Oh ya I got a new skirt and shirt special for my birthday. Its blue with stars and the shirt is white with stars and a butterfly. All fourth of July theme. It cute.

Still all about the teeth... 
Thursday, April 10, 2008, 01:54 -
Posted by Administrator
Well my problem tooth is doing fine and then I got two more teeth on top. The ones on top came in much easier. So I really have a mouth full of teeth.

Mommy and Daddy are now giving me time outs and Dr. Moore said that is fine. I am not too happy with them but I guess that I do not have a say.

Not much else is going on just hanging out and working a lot on walking and sitting.


My poor tooth!!!!!! 
Thursday, April 03, 2008, 02:38 -
Posted by Administrator
Well today mommy had to take me to the doctor. While Melissa was over playing with me my tooth popped and there was blood everywhere. She has kids and she said that was not normal. So off to the doc we went. Then the doc wasn't sure and went and got another doc. I am okay but have a big hole in my mouth and floppy gums hanging out over it. Soo they say that the worst is over and I officially have both molars out.

Aunt Sheri should have baby B soon and I am exited to meet my cousin.


Big girl underwear 
Monday, March 31, 2008, 23:46 -
Posted by Administrator
Mommy got me big girl underwear and I wore them on Sunday for over an hour and had no accidents. Grandma, mommy and daddy were so proud of me.

On Saturday mommy, daddy and I went to the YMCA to go swimming. Daddy took me into his locker room and got me ready for the pool. Then got me showered and ready to go home. Mommy was so proud of daddy for trying and succeeding in the task of the locker room. It is a lot of work.


Carson Park 
Saturday, March 29, 2008, 15:40 -
Posted by Administrator
Guess what mommy and I went to the park yesterday. It was so much fun we went swinging. It was my very first time that I went on the playground stuff. Well it is the first time I have been old enough. I liked the swing it was so much fun. I then walked a real long way with mommy's assistance back to the car. 

After that we went to see Daddy at work and share all the fun stuff mommy and I just did.


Working with Jenny my OT

In my gait trainer working hard and having  some fun

Goofing off in mommy and daddy's room

Video EEG 
Wednesday, March 26, 2008, 03:19 -
Posted by Administrator
We made it. We had to get up at 4 AM to get ready and get to my appointment on time. I really did not want to get up this morning, who wants to get up at 4? Well I guess I like to when I don't have to. The car ride was not too bad I did not mind the way up there. I had my goofy balls to play with and they kept me happy. I also think that I like it dark out, it is easier on my eyes and belly.
So I did not like my EEG they used something that smelled like air plane glue and used a vacuum suction to make it stick. It was not a happy place. Then we hung out for many hours. We did normal things like stretches, playing and chew time. I was not too hungry.
The ride home I slept and then slept more when we got home.
Anyway grandma Kar came over and we played. I am very tired and my teeth are giving me problems. We will find out the results of the EEG next week. The tech said that I have abnormal spikes in my occipital lobe ( the rear right side). She also said that the rest of my EEG showed organized brain function.
Occipital lobe controls vision and color recognition. Anyway official results later. I am very tired and so is mommy and daddy. Night, night.

Thank you Uncle James for calling to see how I did. That means a lot that you were thinking of me.
I will follow this weekend with pictures of my experience.



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