Woo Hoo!

Christina was discharged from the hospital today. What a good feeling to go home. We're not out of the woods yet, but well on our way.

We'll keep a close eye on the princess. This hospital visit kept me worried for way too long.

Christina is feeling much better and will be back to par soon.

I can't to get our walking in and some outside time.

Christina's diagnosis is serum sickness and medication eruption. Both of them caused horrible rash like stuff all over her body.

Good news first. Christina's estimated discharge is Friday. The rash is almost completely gone. The swelling is down. The pain is managed. Christina's tone is ok.

Unfortunatly the amount of meds to keep her comfortable is still an extreme amount.

We have switched to almost all oral medications. Christina will be on a steroid for a few weeks at home. There is also the possibility of a recurrence for up to six weeks. It can be just as debilitating be we are hoping not.

Dr. Taniguchi stopped by; it was good to see a familiar face. I explained what Christina was going thru and he agreed that the Valium was a good choice to manage her spasticity.

Christina went to urgent care Friday evening. This morning in to the ER.

Christina has a rash that came quickly. A fever, belly ache, viral infection add to the mix. It's a thought that the antibiotics caused the rash but not known for sure.

A dose of steroids, Benadryl, ibuprofen and two bags of fluids so far. The princess has perked up a little, but now the Benadryl has made her sleepy.

Will post more when I can.

Our little princess is sick.

Christina has the start of an ear infection, a cough, sinus woes, and the start of pneumonia. She is on a couple of antibiotics and we hope to have her back to well quickly. Christina is in great spirits even though she is sick.

We'll plan for mellow play the next few days. Maybe ice cream and cookies are in order.

UPDATE
Christina now has a fever and the vomiting has started. This storm will get worse before better.

The UCP Starfest Telethon went well. Christina was so well behaved and we had a good time. Christina and I had our three minutes of fame.

Christina's latest round of Phenol blocks and Botox have been pleasing. Her hand motions put a smile on my face.

Christina has also continued being a chatter box. Christina loves to talk and sing. Her speech is getting easier to understand.

The UCP Starfest Telethon went wonderful. Christina had a good time. The princess was great on TV.

Over $200,000 was raised. Thank you to all who donated. And thank you to everyone who volunteered their time.

Christina is doing great. This round of shots has been good.

Met with UCP and someone from the school district about other equipment and toys for Christina. Good meeting and lots of brain storming.

I think Christina might be a little spoiled. ;)

The colder temps have been a nice change. It's cold, but its winter and has been quite mild.

Christina's surgery went well; however, now the princess is coming down with a cold or something. We'll plan on a mellow weekend. If I'm lucky maybe some serious cuddle time with my baby.

The latest round of Phenol blocks and Botox went well. Christina did super well for being at the hospital.

The rest of the day went well and Christina was in a good mood. We have already noticed a difference in her hands.

This was also the first time we opted for Botox in her shoulders. Initial observations show we made the right choice. It is always a worrying time wondering before the surgery.

Christina as usual has been enjoying the windy cold temperatures. Winter weather does not slow the princess down at all.

Christina is also maintaining her talkative self. She loves to sing and tell stories.

Christina is also very good at board games. She wins a lot. And we do not try to help her. The girl has talent.

The UCP Telethon is coming up on January 28th. Hope to see you there.

ce.Warm cold warm cold. Weather needs to decide what month it wants to be. The warm weather was nice for taking down the Christmas decor. If we get cold weather we should really have snow.

Updated the home network. Pricing more drive space. 1.85 TB of data so far. Who would have thought 5 years ago.

Trying to keep up with pictures of Christina.

The Princess