Phenol and Botox 
Thursday, January 19, 2012, 21:30 - General, Christina
Posted by Administrator
The latest round of Phenol blocks and Botox went well. Christina did super well for being at the hospital.

The rest of the day went well and Christina was in a good mood. We have already noticed a difference in her hands.

This was also the first time we opted for Botox in her shoulders. Initial observations show we made the right choice. It is always a worrying time wondering before the surgery.

Christina as usual has been enjoying the windy cold temperatures. Winter weather does not slow the princess down at all.

Christina is also maintaining her talkative self. She loves to sing and tell stories.

Christina is also very good at board games. She wins a lot. And we do not try to help her. The girl has talent.

The UCP Telethon is coming up on January 28th. Hope to see you there.

Monday, January 09, 2012, 08:16 - General
Posted by Administrator
ce.Warm cold warm cold. Weather needs to decide what month it wants to be. The warm weather was nice for taking down the Christmas decor. If we get cold weather we should really have snow.

Updated the home network. Pricing more drive space. 1.85 TB of data so far. Who would have thought 5 years ago.

Trying to keep up with pictures of Christina.

More Pics of the Princess 
Wednesday, December 28, 2011, 12:25 - General
Posted by Administrator
The Princess

Pretty Princess 
Wednesday, December 28, 2011, 11:36 - General, Christina
Posted by Administrator
Pretty Pictures of the Princess.

Saturday, December 17, 2011, 19:41 - General
Posted by Administrator
Christmas is approaching and we have no snow. Hellooo, Mother Nature. Could really use some snow here. White Christmas. I want a white Christmas.

Beautiful Christina 
Saturday, December 17, 2011, 19:36 - General
Posted by Administrator
This picture was a Kodak moment so wanted to share. Christina is swinging on her belly. She did wonderful kicking and pushing with her legs.

Christmas Tree 
Tuesday, December 13, 2011, 18:51 - General
Posted by Administrator

Christmas Decor 
Friday, December 09, 2011, 20:29 - General, Christina
Posted by Administrator
Well I have the house decorated and the outside stuff up for the holidays. Christina had fun helping me hang some lights and decorate the tree.

Christina loves being outside in the cold and snow. She walked super well in the gait trainer outside. I was impressed how well with all the layers of clothing.

More pics to come when I get them done.
Fun in the Snow 
Wednesday, December 07, 2011, 15:01 - General
Posted by Administrator
Christina is in the holiday spirit. Decorating and baking are definate fun activities in her book.

Christina had a couple of appointments last week. They went well. Not much for change and the usual "lets keep an eye on things". We are keeping a close eye on Christina's shoulders and hips. Along with watching for changes in legs, arms, back, trunk, neck, head control, etc. We are trying a different approach with the Botox. The last round was not as productive as others. The overall dose will go down with differeent focus areas.

School is always fun for Christina and is going well. The weather is also going well for Christina. Snow and cold do not stop the princess. Christina is a big fan of the cold and catching snowflakes on her tongue. It is cute to watch her reach for the snowflakes while going for a wagon ride.

Thanks to Jeannie, Christina has inflatable decorations outside and a whole lot of lights inside. Christina posed after a wagon ride.

The bear spins

Snoopy, always a favorite.

The balls are eight feet tall.

Decorating the tree.

Christmas Decorations 
Monday, November 28, 2011, 19:06 - General
Posted by Administrator
Well, with Thanksgiving done the Christmas decorations have come out. Most of the decor is up. Thanks to Jeannie, there are inflatable things outside and lights in the dining room and living room.

I have the tree up and lights on all ready for Christina to decorate with ornaments. I went with white and colored lights. Managed to get the colored lights arranged so the tree changes color. I'll post video once I have a chance to record and convert for web.

I have a third of the lights up in Christina's room. Hoping to finish tomorrow.

I can't find one box of Christmas stuff so a thorough search in the basement and garage is in order.

Merry Get-Ready-For-Christmas!!!

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