Links
Christina has been back to her good 'ol self. Talking and walking seem non-stop.
We received a sample wheelchair to try. It is not for Christina to use, bu8t more for us to see how it works and how well it maneuvers around the house.
Last weekend Christina played outside a lot. Walking, gait trainer, stroller walks are the popular activities. Inside Christina was a HUGE fan of swinging. Using her blue chair(rehab2go chair) and teh swing stuff, Chrisitna was able to sit upright, be strapped in, swing without barriers, hold on to handles. The combo worked great. As soon as I figure out how to post video I will. The first time we tried it Christina had so much fun it brought a tear to my eye. I let her swing as long as she wanted with the occasional re-adjust to keep her sitting tall. The princess enjoyed 45 minutes.
Christina's teeth have not been bothering her lately. Good or bad, I'm not sure. They have not poked through so she will go through it again.
Although the benefits from the Phenol and Botox have been wonderful again this round, it has also shown in Christina's trunk and neck. It does not seem to slow her down at all though.
The next appointment with the developmental doctor is coming up. We only have to go once a year, yea. There will be tests that do not show how much Christina knows. It is frustrating to see. For those who need some explanation I will give it a try... Christina is not able to quickly(if at all) point, touch, grab, push, pull various items that are used during a test. Example: layout several cards with pictures and ask Christina to point or pickup one of the cards with a particular picture. Christina can see the cards, decide which card is correct, make an attempt to grab or point said card. Christina has difficulty controlling her movement so as she tries to move her arm and hand into place it can be jolty(for lack of a better word). Christina needs extra time to get her muscles to do as she wishes. And the muscles have a tough time hearing/listening to her instructions. If the card is laying flat on the table, it is very difficult for Christina to grab the card. If she tries to point her arm may stop before reaching the target card, give it time and she will get there. But Christina may push or touch other cards while reaching her goal. The tests do not take into consideration physical setbacks.
Let's end on a happier note:
Christina has been doing wonderful in school. Her communication device came and we are looking forward to see how Christina does. Christina is going to use an iPad for her device with communication software. She has used an iPad before in speech and does well.
We received a sample wheelchair to try. It is not for Christina to use, bu8t more for us to see how it works and how well it maneuvers around the house.
Last weekend Christina played outside a lot. Walking, gait trainer, stroller walks are the popular activities. Inside Christina was a HUGE fan of swinging. Using her blue chair(rehab2go chair) and teh swing stuff, Chrisitna was able to sit upright, be strapped in, swing without barriers, hold on to handles. The combo worked great. As soon as I figure out how to post video I will. The first time we tried it Christina had so much fun it brought a tear to my eye. I let her swing as long as she wanted with the occasional re-adjust to keep her sitting tall. The princess enjoyed 45 minutes.
Christina's teeth have not been bothering her lately. Good or bad, I'm not sure. They have not poked through so she will go through it again.
Although the benefits from the Phenol and Botox have been wonderful again this round, it has also shown in Christina's trunk and neck. It does not seem to slow her down at all though.
The next appointment with the developmental doctor is coming up. We only have to go once a year, yea. There will be tests that do not show how much Christina knows. It is frustrating to see. For those who need some explanation I will give it a try... Christina is not able to quickly(if at all) point, touch, grab, push, pull various items that are used during a test. Example: layout several cards with pictures and ask Christina to point or pickup one of the cards with a particular picture. Christina can see the cards, decide which card is correct, make an attempt to grab or point said card. Christina has difficulty controlling her movement so as she tries to move her arm and hand into place it can be jolty(for lack of a better word). Christina needs extra time to get her muscles to do as she wishes. And the muscles have a tough time hearing/listening to her instructions. If the card is laying flat on the table, it is very difficult for Christina to grab the card. If she tries to point her arm may stop before reaching the target card, give it time and she will get there. But Christina may push or touch other cards while reaching her goal. The tests do not take into consideration physical setbacks.
Let's end on a happier note:
Christina has been doing wonderful in school. Her communication device came and we are looking forward to see how Christina does. Christina is going to use an iPad for her device with communication software. She has used an iPad before in speech and does well.