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  • 2016
    • August
      • IEP
        16/08/31
        The next IEP comes up in September.

        Woo Hoo. Mom and Dad coordinate with teachers and therapists what to help me with during the school year.

    • March
      • No School
        16/02/16
        Christina had Monday the 15th off from school. That meant more play time for us.

        Christina has really been working hard. And we play hard too.

      • Always Playtime
        16/02/14
        Christina and I have been enjoying the great outdoors with our walks, sledding, and wagon rides.

        Christina really laughs hard when I slip on the ice and go down. She likes to go fast and I try to accomodate. The path I have cleared is slippery with the ice under the packed snow. And, the

      • Pedal In Place 2016
        16/02/12
        Pedal In Place 2016

        Coming up on February 28 is the Pedal in Place stationary bike race to benefit Gillette Children's Specialty Healthcare.

        Christina loves riding a bike at therapy and school.

        http://www.gillettechildrens.org/events

    • January
      • Gillette Children's Interview
        16/01/29
        Christina and I were interviewed by Gillette Children's Specialty Healthcare for a fundraiser. The links for the video follow. All of the links are for the same video on various websites.

        https://vimeo.com/148920744

        https://www.youtube.com/watch?v=YFXcSLKf7CE

        ht

  • 2015
    • December
      • Reception at RiverCentre
        15/12/18
        Christina enjoying more holiday lights at the RiverCentre.



        We had a lot of fun although it was a long and tiring day.

      • At The Ordway
        15/12/16
        Christina enjoyed "The Sound of Music".



        We had wonderful seats. Thank you to Friends of Gillette.

      • Blink Blink
        15/12/08
        I helped Christina put Christmas lights on her wheelchair.

        Merry Christmas Everyone!

    • December
      • Go Fund Me
        15/11/25
        Please help fund a car seat for Christina.

        Christina Car Seat Fund

    • October
      • Kitchen Play
        15/10/15
        I like to "help" daddy in the kitchen. Like grabbing his shirt when he walks past. Or grabbing the rag off the counter and throwing it on the floor.


      • Enjoying Outside
        15/10/12


        Loving the flowers.

      • Lots to update, where to start...
        15/10/06
        First, Christina has been a little sick with a slight fever and uncomfortable. She came home early from school, but was back to the grindstone the next day.

        Christina is weighing in at 19.4kg (42.77lbs). She is 118cm (46.5in/3'10.5")tall. We are pleased with her weight as we are

    • May
      • Back Up
        15/05/14
        Christina's blog is on it's way to being up and running.

  • 2014
    • August
      • No Stopping
        14/08/25
        Even with the heat there is no stopping Christina. She wanted to go outside despite the hot and humid weather.

        When Christina had walked enough she wanted up and to go for a shoulder ride. Christina had walked so well and made me proud. How could I say no.

        I'm sure we we

      • Humid
        14/08/22
        It has been humid out here. Way too thick for me. Ready for fall and maybe even winter.

        Cut the front lawn last night. I waited until it cooled off a little, but wow still warm. And that was at 20:00.

        I'll finish the back this morning I think. We're at 100% humidity s

      • Carmen
        14/08/19
        Talked to my little sister Carmen yesterday. It is always nice to chat and catch up on current events. Gotta get the funkster in the conversation also. Thank you for calling Carmen.

      • Christina Sniffles
        14/08/19
        Made it almost the whole summer without getting sick. Christina now has the sniffles. And a lot of drainage. Poor little princess.

        I think being sick has increased her tone and made therapy a little less fun. Christina is a trooper though and still worked hard.

      • Therapy Stuff
        14/08/15
        I am so proud of Christina. She has been doing super well in therapy, both physical therapy and swim therapy. Christina is an inspiration to work hard no matter what.

        Lots of comments also on how beautiful, pretty, and adorable Christina is.

        We have been walking a lot outside.

    • July
      • Updating Blog Software
        14/07/31
        Been upgrading the blog code and getting the settings of the old blog matched on the new. Harder than I figured.

        Need another cup of coffee. And maybe a break.

        Working on Christina's also.

      • Walkin' Like a Champ
        14/07/31
        Christina has continued her desire to go go go. She wants to walk in her Kid Walk a lot and can cover quite a bit of ground. I don't measure by blocks anymore, she is past that. Now I track time and trying to measure mile(s).

        Christina has been working hard in therapy. I am so proud

      • Blog Time Again
        14/07/17
        It has been a long time since I updated. So, what is new, let's see.

        Christina has had an osteotomy. I will get her blog updated with the Caring Bridge posts also.

        I moved into a single story house. Big backyard.

        Work is the same. I have not spent as much time o

  • 2013
    • July
      • Slideshow June 11
        13/06/11
        Christina was a very good sport and posed for a few pictures for me.

        We have pictures of Christina and Daddy telling stories, going for wagon rides. Christina's swim therapy and horseback riding therapy. Christina and Grandma playing with blocks. And catching some poses of Christina.

      • Slideshow June 4
        13/06/04
        Slideshow uploaded June 4, 2013.

        Christina making cookies, reading with Dad, kisses from Nilla. Looking pretty in her dress, loving the wagon ride, posing on our walk. Cleaning the blood from the latest lost tooth, showing off new hole in her mouth. Telling stories and giving Dad a drink

      • Lost another tooth
        13/06/02
        Christina lost another tooth on Saturday. I didn't know it was loose until shortly before supper munching on rhubarb. After we ate Christina used the rag to pull that loose tooth until it came out.

        Once I realized what she was up to and how loose that tooth was I grabbed the camera.

    • May
      • Slideshow May 28
        13/05/28
        This weeks pictures have older shots of Christina hanging out with Grandma, more baking, and walking in the gait trainer. More current pictures are of swim therapy, field trip, reading outside, being goofy with dad, and of course a walk.


      • Happy Memorial Day
        13/05/27
        Christina has another molar just peeking through on the top. She did not want any pain meds, but it seems uncomfortable for her.

        Christina also has a runny nose. She is extra cuddly which usually means not feeling well. She had a tough couple of days on the bottom end.

        Christin

      • Slideshow May 22nd
        13/05/22
        This weeks slideshow has pictures of morning smiles and laughs, gait trainer time outside and making cookies. Also pictures from swim therapy and hippotherapy. A better shot of wagon rides and Christina giving Grandma her Mother's Day gift. And we followed with a couple pictures from the hospit

      • Another Round
        13/05/22
        Christina had another round of Phenol and Botox shots at Children's on Tuesday. All went well. Christina came out of recovery quicker than last time and was full of hugs. To say it again, I never find it easier to watch Christina be put under.

        Later that day Christina was super giggl

    • May
      • Outside Fun
        13/04/29
        Christina wanted lots of outside play this weekend and with the sunny warm weather she got it.

        Christina did lots of walking both in and out of the gait trainer. She had a field day going up and down the ramp.

        We read outside under the umbrella and had brunch Sunday outside. Th

      • Sunshine
        13/04/29
        Lots of outside play this weekend. The weather was nice. May even call it warm.

        Christina wanted to spend most of the day outside and wanted to go go go. She walked like a champ. I'm so proud of her.

      • Lost another tooth
        13/04/25
        Christina lost another tooth. The other eye tooth this time.

        Christina still has some molars coming in giving her some grief. I will be glad, I am sure she will also, when they are all in.

        Christina has also managed to stay pretty healthy this season. Yea Christina for a good i

      • Christina's Attitude
        13/04/01
        Christina has been pushing everyone's buttons to check the limits. Pretty typical for a six year old, but not any fun for those getting pushed.

        Christina enjoyed spring break and is glad to be back to school.

        Speech at the university is going well. And swim therapy starts

      • Hoppy Easter
        13/04/01
        Hoppy Easter to all!

        Christina had fun searching for her Easter basket and then of course munching on candy.

      • Happy Easter
        13/04/01
        Easter weekend was good.

        Had fun with Christina and I was productive around the house.

        With another month gone it is time to check backups.

        Christina has been showing her attitude lately. Gonna have to work on that.

    • March
      • Been Sick
        13/03/28
        Been sick and under the weather. Getting better slowly.

        Christina has done well not getting sick. We have had lots of cuddle time and more mellow play. Sunday she even took a nap with me. What a treat.

      • update
        13/03/28
        Christina has been doing very well fighting off the colds, flu, and other ailments. Her teeth on the other hand have been quite uncomfortable. Christina has been busy with Young Athletes, lots of reading, and therapies. Christina was pleased to go for a wagon ride early Sunday morning and it was sti

      • Furniture
        13/03/03
        I have decided that those who design doorways and those who design furniture need to get together for a pint and go over some details. Then they can also have the architect join and get rid of or make larger the corners needed to go around.

        To sum it up, the couch was heavy and just small

      • Lost Tooth
        13/03/03
        Christina lost another tooth yesterday. Now three in front are gone. Christina still has a cute smile.

    • March
      • Rename
        13/02/26
        So in my effort to look at pictures I have discovered that various OS do not use a natural sort. To some... 10, 11, 12... come before 2, 3, 4, 5... I think I may rename the pictures to compensate. The downside is there are a few days with over 100 pictures for that day. This would lead to renaming f

      • Let it snow
        13/02/26
        With the coming of more snow Christina enjoyed some sledding time. This round we just went around the yard and up and down the sidewalk. There is a benefit to the ice still built up on the sidewalk and the neighbors not shoveling.

        Another trip to see Taniguchi and Walker are coming up. We

    • January
      • Excited
        13/01/31
        After supper on Thursday Christina and I sat down for my five minutes of sit time. I started the conversation with "I have a question for you." Christina became very excited so I decided to grab the camera to record the moment.

        For a little history, Christina and I go for a wago

      • Same Stuff
        13/01/31
        Not much new. Had a wonderful few days with Christina playing outside.

        Christina you make me so proud.

      • Happy Birthday Sarah!!!
        13/01/29
        Happy Birthday Sarah!

        Wishing you a wonderfully happy birthday.

      • Happy Birthday James!!!
        13/01/19
        Happy Birthday James!

        Wishing you a wonderfully happy birthday.

      • Hospital Trip
        13/01/15
        In the waiting room awaiting Christina's turn. It feels like a long morning so far. I am unsure what to think about being here. I park, load my pockets with keys camera batteries snack, grab badge holder, and of course my coffee cup. My cup still has the hospital tape that read "Daddy"

      • Happy Birthday Sheri!!!
        13/01/11
        Happy Birthday Sheri!

        Wishing you a wonderfully happy birthday.

      • Reminder: Backup
        13/01/10
        I finished my backups for 2012. Woo Hoo.

        This is your reminder to do the same.

        Pictures, videos, etc are way too important to lose.

        Remember the 3, 2, 1 rule. Three copies, two types of media, and one off-site location.

      • Another Round
        13/01/10
        It is that time again, another round of Phenol blocks and Botox for Christina.

        Christina has been a little sick for quite some time and her teeth have been giving her discomfort. We are hopeful she will be well for surgery. Pre-op appointment is today.

        Christina has enjoyed lot

      • Ah backup
        13/01/02
        Ah the backup of pictures and videos. Staying current is a chore, but well worth it.

      • Happy New Year!!!
        13/01/01
        Happy New Year!!!
        Wishing all a wonderful new year.

  • 2012
    • December
      • Merry Christmas
        12/12/26
        Merry Christmas Everyone!!!

        Christina and I had a great Christmas. Christina was pleased with her gifts from Santa. We had lots of fun over the weekend. I found a sled that would work for Christina and pulled her around the yard and up and down the block. She did a great job holding her h

      • Front Teeth
        12/12/26
        All Christina lost for Christmas are her two front teeth.


        Christina lost both her front teeth Sunday. It was very cute when she went to bed I put the teeth in a bag under her pillow. We spoke about the tooth fairy and Christina reached under her pillow and grabbed the bag to pull it

    • December
      • ER Visits
        12/11/21
        After a couple of scary trips to the ER Christina is almost to her usual self.

        Thursday after a full day of school Christina went to speech as normal. After speech she had some spots that had formed around her neck and ears. Further inspection showed more spots in various places all over

    • October
      • Day Off
        12/10/28
        I had a day off to work around the house. I was productive. Yea me.

        Today I'll finish getting plastic on the windows. That should make a nice difference keeping the wind out. The windows done so far have been very easy to get done. Makes me worry a little. Maybe I have done it so man

      • Super Fun Speech Therapy
        12/10/26
        Christina has been super happy and goofy in speech therapy the last couple sessions. The little princess has been giggling and laughing hysterically.

        Christina has also been feeling much better with only a little runny nose now and then. Christina also has become an expert nose blower.
      • UCP WCW Board of Directors
        12/10/25
        It was suggested, I filled the form, I am now a proud member of the Board of Directors of United Cerebral Palsy of West Central Wisconsin.

        I participated in my first meeting and in I am currently reading the orientation book. I read the first half and opted to refill my coffee and post a

    • October
      • Feeling Better
        12/09/20
        Christina has been feeling better and a follow up with the doc shows all better.

        Christina has been really enjoying school. She also has a great time at her therapies.

        Christina's week is full with one therapy or another four days a week after school.

        With the c

      • Busy days
        12/09/19
        Where does the time go?

        Christina has therapies 4 days a week after school. These first few weeks will take a toll on the princess. Christina has been feeling much better and is almost completely over being sick.

        I am a slower healer this round. A solid night sleep should help.

      • Sick Christina
        12/09/13
        Christina has been sick along with the rest of us. A respiratory infection has caught her. It does not stop the princess from wanting to go to school.

        Christina LOVES school and riding the bus.

        Christina has also been doing well with swim therapy and enjoys going. Speech will s

      • Sick
        12/09/13
        Been sick. Feeling like crap.

        Falling behind on back ups. Not good. Thinking I will give Crash Plan a try this month.

    • August
      • Docs
        12/08/08
        Lots of appointments coming up for the princess. Lets see...

        Pre-op, Phenol blocks and Botox shots, Dr. Walker, AFO fitting, school.

        Along with swim therapy once a week and Young Athletes twice a week.

        Christina definitely likes to go go go.

        Christina has

      • Garden
        12/08/08
        Tomatoes, tomatoes, tomatoes, I have a lot of cherry tomatoes. Picked more last night and I'm running out of room. I think I am going to see what my options are to freeze some.

        I also have a few peppers that are finally ready. I cooked with some last night and they have a bit of a bi

      • Always busy
        12/08/06
        As usual there always seems to be something going on. I have also decided to maintain a social life. Although that seems to make more work.

        I have a good start on a fool proof backup strategy. Picture backups are going well. Also working on a strategy for trans-coding movies.

        S

      • Getting Tall
        12/08/06
        Christina's last physical confirmed the princess is growing like a weed.

        Christina weighs in at 33 pounds and is 40.5 inches tall.

        Christina has been loving the water with the hot weather. She has also been super talkative. ST is done until next semester. Young Athletes st

    • July
      • Another Update
        12/07/14
        Christina's tone has been very bad. It may be the cause of the spots. We started Valium to help with the tone and it seems to be helping a lot. Christina has been in even better spirits than her cheery self.

        Not much else going on. Still going over the IEP and getting frustrated.

      • Summer Time
        12/07/14
        Christina has been enjoying her summer.

        There have been some rash outbreaks, fevers, blah feeling, but Christina has been a trooper through it all and still wanted to play.

        It has been extra hot lately so our outside time has been in short durations. I think Christina misses go

      • Happy Birthday Christina
        12/07/04
        Happy Birthday Christina!!!

        Six years ago today, Christina came to walk with me on this journey.

        Love you Christina!

      • Happy Birthday Christina!
        12/07/04
        HAPPY BIRTHDAY CHRISTINA!!!

        The beautiful princess Christina turns six today.

        Christina, you have taught me to appreciate every moment.

        Watching you has also inspired me to always have determination and to never give up.

        Lots of kisses for you.

    • July
      • Too Hot
        12/06/21
        The weather has not been understanding of my little garden. It has been a windy season so far and the hot weather has made it uncomfortable. The plants have a slight lean.

        Christina has been well overall. A few bouts of fever and rash, but docs say nothing to worry about. Dad's worry

      • End of School Year
        12/06/04
        There has been lots going on. The end of the school year is quickly approaching.

        Christina had a field trip to a farm. She had a good time. Christina enjoyed seeing pigs, a dog, goats, bird nests, petting rabbits and chicks, riding a horse, and getting licked by a calf.

        Christi

    • May
      • Doll & Pet Parade
        12/05/13
        Christina was in the Doll & Pet Parade dressed up like Pebbles. She looked very cute.

        I will soon be back on track with slideshow pictures of Christina.

        Christina's tooth coming in has given her some discomfort once in awhile. Nothing Anbesol and Motrin can't reli

      • Hard Drive Failure
        12/05/13
        Thank goodness for backups.

        I had a hard drive fail. The drive had 1.85TB of data. All the pictures were backed up along with videos. I also found an old copy of the music and saved that. I did loose the movies that I had saved for watching on the network.

        So BACKUP backup BACK

    • May
      • Moving
        12/04/13
        It's been a busy time. Couple friends moved and I gave a small hand. Christina has wanted to go go go. The holiday came and went.

        For Easter we went to grandpa's house. Last weekend we went to the Children's Museum on Saturday. We colored eggs and made cookies.

        A

      • Lost Tooth
        12/04/13

        Christina lost her first tooth today.

        The princess is super excited. She lost a tooth on the bottom. And, there is another tooth that is loose on top.

        My little girl is growing up so fast.

    • March
      • Walking walking walking
        12/03/26
        Christina has wanted to walk a lot. Anywhere from on the deck, around the block, or to the neighbors she has wanted to go.

        The usual shoulder rides follow, but Christina has been walking way more than last year to get her ride. Christina has been walking blocks at a time. The princess enj

      • Christina's Aquatic PT
        12/03/15
        Christina did very well at her first session of aquatic physical therapy. Jeff, her instructor, did a great job with her. I am confident Christina will benefit from the sessions.

        I am always a little concerned when starting with a new person. Jeff was calm and steady with Christina. Befor

      • Aquatic PT
        12/03/15
        Christina had her first aquatic physical therapy on Tuesday. Christina did wonderful. It started with crying, but did not take long for her to relax and enjoy the water.

        Jeff did a great job. It shows that he has worked with kids before. We will give this round of sessions a try and see h

      • Close to Home
        12/03/07
        I read the first part of a blog yesterday and it interested me. I was at work so I printed it so I could read it better. It hit close to home. More like it hit too close. I made it through a few paragraphs and had to stop. It is not an article I can read while at work.

        Worth reading: www.

      • Photos from the hospital.
        12/03/03
        Here are a few photos from Christina's last hospital visit.

        Relaxing



        A couple of the doctors.



        Christina and Mommy



        Hospital Wagon Rides


      • Being Productive
        12/03/02
        The snow that came really set me back with stuff around the house. And I had more pictures than usual.

        Today I shall get caught up. Laundry almost done. Dishes were done so there is not much more. Pictures uploaded to Christina's blog. Snow blower broke and is fixed. Ugh. I am not a

    • March
      • Polar Plunge
        12/02/28
        Christina has been feeling much better. She has expressed herself with her five year old attitude. Definitively a good sign.

        We went to watch the Polar Plunge. Mommy and Crystal jumped for Team Squishy.

        Christina has been doing great with reading and math. And the weather has b

      • A Must Read
        12/02/24
        This site is a must check out.

        Every story of being in the hospital is different. After reading a few of the posts, I can tell you that there are many similarities with my own story.

        Enjoy. And be ready to shed a tear.

        www.whatiwouldtellyou.com

      • Same stuff
        12/02/22
        Not much change, but wanted to post something to try and get back into the habit.

        Christina is feeling better. The parent/teacher conference went well and was informative.

        I am fighting off a cold/flu. Very ready to play with the princess outside.

      • Parent Teacher Conference
        12/02/22
        Christina's parent teacher conference was yesterday. Christina is a joy to have in class.

        Christina does well with the other children and they enjoy interacting with her.

        I also got some new ideas for tools for activities. And we are coming up with a game plan for Christin

      • Coming Home
        12/02/17
        Ahhh... it is good to be home.

        Christina is feeling much better. We must keep an eye on her for a few weeks, but I am confident the princess is done with this round of sickness.

        It was nice to snuggle with Christina, but I'd rather not have her in the hospital. Maybe Chris

      • Feeling Better
        12/02/17
        Woo Hoo!

        Christina was discharged from the hospital today. What a good feeling to go home. We're not out of the woods yet, but well on our way.

        We'll keep a close eye on the princess. This hospital visit kept me worried for way too long.

        Christina is feelin

      • Hospital Update
        12/02/16
        Christina's diagnosis is serum sickness and medication eruption. Both of them caused horrible rash like stuff all over her body.

        Good news first. Christina's estimated discharge is Friday. The rash is almost completely gone. The swelling is down. The pain is managed. Christina

      • Hospital Visit
        12/02/11
        Christina went to urgent care Friday evening. This morning in to the ER.

        Christina has a rash that came quickly. A fever, belly ache, viral infection add to the mix. It's a thought that the antibiotics caused the rash but not known for sure.

        A dose of steroids, Benadryl,

      • Not Feeling Well
        12/02/03
        Our little princess is sick.

        Christina has the start of an ear infection, a cough, sinus woes, and the start of pneumonia. She is on a couple of antibiotics and we hope to have her back to well quickly. Christina is in great spirits even though she is sick.

        We'll plan for

    • January
      • UCP Telethon
        12/01/31
        The UCP Starfest Telethon went well. Christina was so well behaved and we had a good time. Christina and I had our three minutes of fame.

        Christina's latest round of Phenol blocks and Botox have been pleasing. Her hand motions put a smile on my face.

        Christina has also con

      • UCP Telethon
        12/01/31
        The UCP Starfest Telethon went wonderful. Christina had a good time. The princess was great on TV.

        Over $200,000 was raised. Thank you to all who donated. And thank you to everyone who volunteered their time.

        Christina is doing great. This round of shots has been good.

      • Play and Therapy
        12/01/20
        Met with UCP and someone from the school district about other equipment and toys for Christina. Good meeting and lots of brain storming.

        I think Christina might be a little spoiled. ;)

        The colder temps have been a nice change. It's cold, but its winter and has been quite m

      • Phenol and Botox
        12/01/19
        The latest round of Phenol blocks and Botox went well. Christina did super well for being at the hospital.

        The rest of the day went well and Christina was in a good mood. We have already noticed a difference in her hands.

        This was also the first time we opted for Botox in her s

      • Winter???
        12/01/09
        ce.Warm cold warm cold. Weather needs to decide what month it wants to be. The warm weather was nice for taking down the Christmas decor. If we get cold weather we should really have snow.

        Updated the home network. Pricing more drive space. 1.85 TB of data so far. Who would have thought 5

  • 2011
    • December
      • More Pics of the Princess
        11/12/28
        The Princess







      • Pretty Princess
        11/12/28
        Pretty Pictures of the Princess.








      • SNOW
        11/12/17
        Christmas is approaching and we have no snow. Hellooo, Mother Nature. Could really use some snow here. White Christmas. I want a white Christmas.

      • Beautiful Christina
        11/12/17
        This picture was a Kodak moment so wanted to share. Christina is swinging on her belly. She did wonderful kicking and pushing with her legs.


      • Christmas Tree
        11/12/13

      • Christmas Decor
        11/12/09
        Well I have the house decorated and the outside stuff up for the holidays. Christina had fun helping me hang some lights and decorate the tree.

        Christina loves being outside in the cold and snow. She walked super well in the gait trainer outside. I was impressed how well with all the laye

      • Fun in the Snow
        11/12/07
        Christina is in the holiday spirit. Decorating and baking are definate fun activities in her book.

        Christina had a couple of appointments last week. They went well. Not much for change and the usual "lets keep an eye on things". We are keeping a close eye on Christina's sho

    • December
      • Christmas Decorations
        11/11/28
        Well, with Thanksgiving done the Christmas decorations have come out. Most of the decor is up. Thanks to Jeannie, there are inflatable things outside and lights in the dining room and living room.

        I have the tree up and lights on all ready for Christina to decorate with ornaments. I went

      • Happy Thanksgiving
        11/11/24
        Happy Thanksgiving!!!

        Thank you Christina for teaching me to appreciate every moment.

      • Happy Thanksgiving
        11/11/24
        Happy Thanksgiving Everyone!

        We all have lots to be thankful for.

      • Time Flies
        11/11/18
        Wow, time flies. I have meant to update the blog several times and have pushed it aside.

        I have kept up on pictures and the slideshow of Christina is current. And the latest pictures and videos have been uploaded and I stay not more than half a week behind. The cron job does not like crea

      • Eye Doc
        11/11/18
        Activities definately do not slow down when school starts. Let's see where to start.

        Christina is continuing speech therapy through the UW system. The student this semester is Evan and Christina really likes interacting with him. They play music, read, play board games. I am pleased

    • October
      • Unseasonably warm
        11/10/10
        It has been way too warm for this time of year. Not a fan.

        What's been going on. Let's see where to start.

        Loads of pictures.
        Running a backup, hint hint. Reorganized the pictures of friends and family. Made a page for us to preview the family pics. The most rece

      • Yell Yell Yell
        11/10/10

        Christina has been super vocal and super loud. The princess has found it fun to scream and the bust out laughing. I am not sure if she is laughing at herself or laughing at me look at her wide eyed trying to figure out what is wrong.

        Halloween is getting closer. We had to pick up a

      • Saving Box Tops, Milk Caps, Soup Labels
        11/10/05
        I started saving the various labels/tops to raise money for schools. I found it seems like a long time to get any saved. Anyway, if you save them and don't take the time to drop them off then you just wasted your time.

        I also volunteered to help count them. I was surprised how many I

    • October
      • Activities Still Going
        11/09/30
        There has been lots of stuff going on yet around town. We have been going all summer and it has continued since school started. We are definitely taking advantage of any and all the nice weather we can playing outside.

        Christina enjoys going for walks in her gait trainer. We often have a

      • Finally an Update
        11/09/30
        Yup, it has been awhile since I posted. The first reason... I have been lazy. The second, I had a hdd crash and needed to start from scratch with software.

        Now would be a good time to reinforce the importance of backups. I lost no data. Items I did not lose: pictures, videos, music, docum

      • International Fall Festival
        11/09/20
        Christina loves going to school, but it really wears her out. By afternoon she is starting to get cranky. The little princess enjoys school so much that she wants to go go go and pushes herself. And nap time is not on her list of things to do, she may miss something.

        This past weekend was

      • School Day
        11/09/16
        With Christina in school today I find myself wondering what to do and the list of chores swirling in my head.

        I figured I would start 'ripping' my cd collection. I knew it would be quite the undertaking, but it isn't going to bad so far.

        I am debating what method

      • Happy Labor Day
        11/09/09
        Happy Labor Day!!!

        Christina has continued her busy streak. Things should start to get into a rhythm soon.

        Christina's appointment for Phenol blocks and Botox injections went well. A long day for all, but it did go well. Christina is again learning how to walk with the low

      • Picture Organization
        11/09/02
        With the busy week and being a couple days short of housework time one of my top priorities has been keeping up with pictures. I have been successful with pictures and am only one load behind on laundry. Yea me.

        The fam is going to get together this weekend. Looking forward to seeing the

      • Kiindergarten
        11/09/02
        Thursday was Christina's first day of school, but Friday was the first full day. Christina rode the bus and participated with her new classmates.

        Christina really enjoys riding the bus. There was an assembly at school and Christina went and did wonderfully. She has come such a long w

    • August
      • Phenol blocks and Botox
        11/08/30
        Today Christina had her Phenol blocks and Botox shots. It seemed to take longer than usual for the princess to wake up.

        Once again I will state that it does not get any easier watching your child get put down.

        The hospital seemed a little off today, but I think it was more the

      • Rootkits and Botnets
        11/08/26
        Another good article from US-CERT.

        This article does a nice job explaining what rootkits and botnets are. The article was published before and is republished to continue keeping people informed.

        It is a scary number of infected and compromised computers being used on the intern

      • Wheelchair Fitting
        11/08/24
        Christina has her new wheelchair. She picked out the color and surprise it is pink. The fitting was yesterday and Christina was tolerant, but not thrilled. I know she will like the new chair, but like any of us the fitting part is never a good time. It went quickly though and overall the trip was no

      • Truck Show
        11/08/24
        Where to start on what has been going on... Let's start with what's in my head up front and center.

        Christina had her wheelchair fitting yesterday. It went well, but it was and is emotionally draining. Let's start with the good stuff. The chair is pink with black padding. T

      • Beautiful Princess
        11/08/10
        Christina has been up to her usual self. Lots of walking and talking. Sunday she did exceptional in the gait trainer. Christina has also increased her teasing me at meal time clean-up. It has become quite the game.

        On several instances while we have been out lately people have stopped to

      • Darn Computers
        11/08/10
        So after I install some new software I do the usual reboot. I get an error message during POST that a Windows file is corrupt. Ugh. I try a reboot again just to see and it makes it past that point and starts loading. Only to get a blue screen and a restart loop. The message suggests using the repair

      • Pictures
        11/08/05
        Once again I was working on pictures. So much fun and work at the same time. Three hours today disappeared quickly. I am working on a page to limit the number of pictures to make it easier to go through. I have not found software I am happy with yet for adding tags. And once I find something that wo

      • Hot Enough
        11/08/02
        So as the weather cools down(ha) it is 73°, a dew point of 72°, and a real feel of 83°. And that is cooler, hmm. Everything is relative. Winter where are you.

        Christina and I had fun this past weekend. We went to a family reunion and got to see relatives I have not seen in ages and got to

      • Lots of Hugs
        11/08/02
        Christina has been full of hugs and kisses. The little princess has made a game after meal time to ask for kisses. If I do not oblige I am told she wants a kiss. It makes clean up time entertaining to say the least.

        Another round of Phenol blocks and Botox is coming up soon. It has always

    • July
      • Busy Time
        11/07/27
        Lots of stuff going on.

        I opted to reinstall the OS. It took five days to finish getting the last of the software and updates done. Now the data files are being copied over. Should be done tonight. Woo Hoo.

        I have more pictures from 2006 printed so I can work on my collages. I

      • Too Much Heat
        11/07/22
        These temps are awful. I like it cooler and this is not cooler by far. Christina likes it even cooler than I do.

        I read an article today that got the emotions going. http://www.nbcnewyork.com/news/local/Bo
        Remember that those directly involved are only the tip of the problem. There a

      • More Heat
        11/07/22
        Christina is not a fan of the heat. These overly warm temperatures make her a tad cranky.

        Our wagon ride on Saturday morning left us extra sweaty. We made sure to stay in A/C with lots of liquids. DQ wasn't too bad either.

        There has been lots going on and I think it put Ch

      • What is an ISP?
        11/07/13
        For many internet users they do not know what an ISP is. ISP is short for Internet Service Provider. The company providing the internet to you. A well explained article is put out by good 'ol Uncle Sam. You can find it here: http://www.us-cert.gov/cas/tips/ST04-024.html.

        For those ar

      • Hot Hot Hot
        11/07/12
        It has been hot and Christina prefers the air conditioned house. We spent time outside in short spurts and back inside to cool off.

        Lots of fun in the water to keep cool. Wagon rides were best enjoyed in the morning and evening. We made the wagon rides a little better by bringing a batter

      • We'll Miss You Simon
        11/07/12
        Simon left us after 20 years. We will miss you Simon.

      • Happy Birthday Chrisitna!
        11/07/06
        Happy Birthday Christina!

        The princess turns five and sometimes I think going on 20. Christina you're the greatest.

        We hope everyone had a wonderful and safe Fourth of July. And stayed cool. Christina enjoyed water time outside and showed me just how much fun it is to go t

      • Happy Birthday Christina
        11/07/06
        Happy Birthday Christina!!!

        Christina turned five this past weekend. She is growing up so fast. I thought it would be a good idea to try watching the fireworks. Christina did very well. She took a long nap in the afternoon and was ready to go late in the evening. I think Christina was a l

      • Lots 'O Pictures
        11/07/01
        So I think it is time to go through a few months of pictures and get some printed. I enjoy looking through them, but I get caught up watching Christina and loose track of time.

        Brainstorming how to hook the old dusty PC up to the TV without spending a lot.

        Ugh, someone did not

    • July
      • Go Go Go
        11/06/29
        Christina has been a busy body and loves to go go go. She loves to play outside. With the warmer temps we play for awhile outside then take a break inside and then right back outside.

        Christina's had a doctor appointment with Taniguchi and Walker. All is well and she will see them mo

      • Ready for Winter
        11/06/29
        With the warmer temperatures I am ready for winter. This week is going to get hotter, not looking forward to it.

        I have not updated in awhile, my apologies.

        Christina is doing well. We spend lots of time outside swinging, walking, wagon rides, and the reward for her wonderful e

      • Making me proud
        11/06/09
        Christina has been running in the gait trainer. It is hard to get a picture of her and start the video in time.

        We found part of the sidewalk around the house that Christin is comfortable walking in the gait trainer without holding my hand or having me touch the gait trainer as she gets o

      • Hot Hot Hot
        11/06/09
        Christina definitely is not a fan of the heat. Although it has inspired us to have lots of water time play. From the river, lake, pool, sprinkler, or kiddie pool Christina loves to get wet.

        Christina has also been doing exceptionally well in the gait trainer. She makes quick work getting

      • River Time
        11/06/06
        With the last few days being hot Christina and I headed to the river today. It was refreshing, but felt good to get back into the air conditioning.

      • Christina Swinging
        11/06/04

      • Good Article
        11/06/01
        This article also from US Cyber Security is "Cyber Security Tip ST05-002: Keeping Children Safe Online".

        Link to article: http://www.us-cert.gov/cas/tips/ST05-002.html.

        Although Christina is a little young to be overly concerned about her online habits, I don't t

      • Memorial Day Weekend
        11/06/01
        Memorial Day Weekend was filled with lots of outside play. We went for several walks, wagon rides, playing in the grass.

        Christina's flowers were too big for the little starter box so she put them in a big pot with lots of room to grow. Christina's favorite part was digging in t

    • May
      • Common Myths
        11/05/24
        Here is an article from US Cyber Security. The title is "Cyber Security Tip ST06-002: Debunking Some Common Myths". I have listed the myths they cover below. Go to their site for the truths.

        Link to article: http://www.us-cert.gov/cas/tips/ST06-002.html

        * Myth: A

      • Catching Up
        11/05/20
        As the housework gets whittled away I managed to get caught up reading some emails. I found some good information and will post each item individually.

        Last weekend was busy with Christina. We had the UCP Short Walk on Saturday morning. The weather had a little chill and was very damp. We

      • UCP Short Walk
        11/05/17

        Saturday was a busy day. Christina and I participated in the UCP Short Walk. Christina raised a little money for a good cause and of course she enjoyed the walk in the park despite the weather. Afterwards we enjoyed breakfast in the tent.

        Christina and I would like to thank those wh

      • Sickness in the air
        11/05/10
        Christina has been doing well staying well since she got sick. The sickness is still in the air. There was a letter from the health department stating of the round of chicken pox going around school.

        Again Christina has enjoyed the sunny weather.

      • Way too warm
        11/05/10
        As I sit here sweating I am debating on whether or not I should turn on the air. It is only May. I seem to have missed spring.

        To add to the confusing weather, there is a tornado watch until tomorrow.

        Not good weather for car/truck batteries. Kept busy at work today.

      • Lots of sun
        11/05/09
        The past few days gave Christina lots of time to catch some sunshine. Christina loves playing outside and when the weather cooperates outside it is. Christina enjoyed the park and had a few good laughs as I tried to fit down the slide.

        The gait trainer gave Christina a good workout also.

      • National Children's Mental health Awareness Day.
        11/05/03
        May 3rd is National Children's Mental health Awareness Day.

        May is National Childhood Stroke Awareness Month.

    • May
      • Good Read
        11/04/28
        An inspiring read, wanted to share.

        March of Dimes - March for Babies

      • Hospital
        11/04/27
        What a week.

        Christina being sick really took a toll on the princess. With the round of flu she picked up it really upset her belly. Christina became very dehydrated and ended up going to Urgent Care and then to the Emergency Room. After several hours in the ER the doctor wanted to admit

      • Daddy's Log 20110424
        11/04/24
        Happy Easter!!!

        It has been three full days Christina has been sick. The princess is getting better and with some luck and a guiding hand from above my princess will be up to par. It is a safe assumption as of tonight that she will not go to school tomorrow.

        The weekend was pre

      • Feeling better
        11/04/23
        Christina is slowly getting better. Her fever was down this morning and gone so far this afternoon. For the first time since Thursday she ate solid food. Christina has also been able to keep some Pediasure down this morning.

        Christina is down for a nap in her bed so we'll see how it

      • Sad memories
        11/04/22
        Thinking about the time in the NICU.

        For all the children in NICU without a finger to grab. A hug for you.

      • Sick Little Girl
        11/04/21
        Christina is sick. The poor little girl became very sick on the car ride to the doctor appointment. To summarize, she became violently ill and her belly hurts a lot.

        Christina was very cuddly and in pretty good spirits most of the morning despite the incident in the car. Unfortunately, th

      • Developmental Doctor Appointment
        11/04/21
        Christina continues to keep us proud. Her doctor appointment went as well as expected(see other post). She does not like the pokes and prods, but the news was good. Christina is doing well and better than anyone expected when they first saw her in the hospital.

      • Feelin' Better
        11/04/15
        Christina has been back to her good 'ol self. Talking and walking seem non-stop.

        We received a sample wheelchair to try. It is not for Christina to use, bu8t more for us to see how it works and how well it maneuvers around the house.

        Last weekend Christina played outside a

      • Not Feeling Well
        11/04/07
        Christina is not feeling well today. Lots of hugs and cuddles for the princess.

        Get well soon Christina.

      • Daddy's Log 20110404 Supplemental
        11/04/04
        Daddy's Log 20110404 Supplemental

        Time has continued with its elusive behavior. I could use a couple more hours in the day. Whether those hours would be best spent working or sleeping has yet to be decided. I've have been fighting off a bit of a cold and it has slowed me down.
      • Daddy's Log 20110404
        11/04/04
        Daddy's Log 20110404

        I have been working on the pictures and videos pages. The pictures page lays out well. The downside is the number of pictures. I display 100 per page, but it is still not easy to find anything. I would not call it difficult, just not easy. The videos I have opted

      • Bowling Alley
        11/04/04
        Saturday we went to the bowling alley. When we first got there I think everyone threw a ball at the same time. Christina was startled and fussed a bit, but once the noise settled all was OK. Christina walked a lot on the multi-colored carpet.




        We borrowed an activity chai

      • Christina audio with talker
        11/04/02
        Christina had a message for Daddy using her talker. I really enjoyed her playing it for me and wanted to share.

    • March
      • Daddy's Log 20110329
        11/03/29
        Getting the blogs updated has become elusive. Dishes are done, tomorrows dinner is in the crock pot, laundry is started, and I have to head to work. So... here is the skinny.

        You may have noticed two more links on Christina's blog for pictures and videos. They are working and if you

      • Wheelchair Evaluation
        11/03/29
        Yes, it has been too long since the last update.

        Christina had a wheelchair evaluation at Gillette this past Thursday. It went well and we learned a little more about what is out there for options for Christina. The two popular choices being from Sunrise Medical and Invacare. Christina�

      • How Old is Christina
        11/03/17
        So a while back I wanted to know how old Christina is/was in years, months, days. This proved to be quite difficult as years and months can't be consistent in our calendar. So the math began. I finished and the result is displayed on a page. Now I figured I would experiment plopping the code in

      • Surgery Appointment
        11/03/15
        Christina's appointment went well. The princess was not fond of getting poked and prodded, but overall all was OK.

        We will be watching close to see how the Phenol and Botox take effect for possible changes in the next round of injections.

        Christina has still been dealing w

      • Silly Humor
        11/03/15
        What kind of key doesn't open a door?

        A monkey.

      • Brownies
        11/03/05
        Today Christina and I made brownies. They are delicious. More were to be had tonight.

        Christina and I enjoyed a nice walk outside today. The princess was full of energy and very talkative. Someday I will understand all of Christina's words. She had so much to tell me today; it was

      • Fighting the Flu
        11/03/02
        Christina has been doing well overall. She has been fighting off a touch of the flu lately with success. Christina has felt a little icky, but it hasn't slowed her too much. Those molars are still hanging out below the gums and are painful most days.

        Christina has enjoyed being outsi

    • March
      • Daddy's Log 20110219
        11/02/19
        With all the disagreements amongst the public workers, who is the voice of those really affected the children. Is anyone worried about their pension, the one they will need an education for.

        Christina was not a big fan of the pool today. There were a lot of kids today. I think she is keep

      • Pictures
        11/02/17
        I managed to go through more pictures. That accomplished two things: first, it allowed me to choose which ones to print. Second, I updated the slideshow.

        I enjoy going through pictures; however, I get caught up looking at them and spend a lot of time on them. I made it through eight month

      • Loving It Outside
        11/02/15
        The weather has been good to us lately and we have been enjoying the time outside.

        Christina did wonderful in the gait trainer outside. She has much more room to use to navigate around.

        It has also been amusing to watch Christina take steps in the snow. I don't know if it

      • Playing Outside
        11/02/14
        It was a great weekend.

        Thursday therapy was canceled so Christina and I had extra play time. Christina also made a new friend, Jen. Friday was more play and a trip to the mall. Along with the usual activities Christina enjoyed singing with several other children. I don't know if the

      • Happy Valentine's Day!!!
        11/02/14
        Happy Valentine's Day to all!!!

      • Happy Valentine's Day
        11/02/14
        Happy Valentine's Day everyone.

      • School Pictures
        11/02/08
        I received Christina's school pictures today and they are beautiful. Christina is such a cutie.

        Now to decide where to hang them.

      • Cousin
        11/02/02
        Christina has another cousin. Congratulations Dan, Sheri, and Dylan.

      • Congatulations Dan, Sheri, and Dylan
        11/02/02
        Congratulations Dan, Sheri, and Dylan on the newest addition to the family.

        I have another niece, yeah!!! Christina you have another cousin.

      • Daddy'S Log 20110130
        11/02/01
        Daddy'S Log 20110130

        The telethon was an experience again. Christina was her smiley self making everyone smile. She was mistaken for Moriah, the current feature child, often.

        Sunday we played outside for quite awhile. We went for a walk, sat in the snow, and did a little s

      • Starfest 2011
        11/02/01
        Thank you to all who took part in Starfest 2011 and to all who donated.

        Christina was her happy self for most of the day on Saturday. Towards the end of the telethon Christina had enough and she told us. Unfortunately she did not want to take part with the other children gathered around w

    • January
      • UCP Telethon
        11/01/28
        The United Cerebral Palsy Telethon is Saturday January 29th. Show your support and call in with your donation.

        UCP-WCW has been very helpful in many ways. Thank you to all who volunteer and donate.

      • Daddy's Log 20110109
        11/01/10
        Daddy's Log 20110109

        It was a great weekend. Christina started the weekend by spreading her super good mood to everyone. No one could resist her smiles and loads of stories.

        Sunday we got our breath of fresh air and bundled up for outside. Christina loved it and I had to p

      • Great Weekend
        11/01/10
        Christina had lots to say to everyone she ran into on Saturday. She was over-flowing with stories and super vocal. They were wonderful stories as she had huge smiles and giggles while telling them. Even over the phone no one could resist smiling and laughing with her.

        Sunday we ventured o

      • Holiday Update
        11/01/05
        It has been awhile since I updated. Let's see, where to start...

        Christina had been sick for awhile. Sick enough for a trip to the doctor which gave a diagnosis of an upper respiratory infection. It took quite awhile for the princess to feel back to normal. Christin's incoming m

      • Daddy's Log 20110105
        11/01/05
        Daddy's Log 20110105

        So much to update, I don't know where to start. So we'll cover the basics. Christina is doing well. She had a respiratory infection for a few days over the holiday time. Christina maintained her good mood throughout even though she wasn't up for al

  • 2010
    • December
      • Feeling Better
        10/12/29
        Christina has been sick the last few days. After a trip to the ER and antibiotics for a few days the princess is feeling better. Christina had an upper respiratory infection.

        I am hoping we can play outside this weekend, but the weather may not cooperate. Freezing rain and then single di

      • Getting Ready for Christmas
        10/12/20
        Christina was extra cuddly this past weekend. I think she is fighting off a cold. Her teeth have been bothering her; although I learned today that technically she is not teething with these molars yet. She has swollen gums; in any case they do not feel good and Anbesol is her friend. Christina was a

      • Daddy's Log 20101206
        10/12/07
        Daddy's Log 20101206

        Saturday the family breakfast did not go as planned. Christina and I had fun together and made the best of it. We both ate a lot and were ready for a nap soon after we got home.

        Sunday we went to the pool and enjoyed some splash time. We also went to g

      • Breakfast Trip
        10/12/07
        Saturday Christina and daddy took a trip to meet the family for breakfast. Unfortunately, we were the only ones that made it. We made the best of it and enjoyed a big breakfast.

        The alarm was set early, but Christina did not wait; she was up at 04:30. We did our morning routine, played a

      • Dale, you will be missed.
        10/12/02
        I learned yesterday that my uncle Dale passed away. Dale we will miss you.

        Prayers to Spring and all of the family.

      • Cooking cooking and more cookiing
        10/12/02
        I have been enjoying cooking lately. Made some beef vegetable soup for the first time in a very long time. Also have turkey soup in the crock pot now. Of course with the turkey leftovers. And the thanksgiving meal turned out beautiful. Even got a compliment saying the turkey looked like a picture in

    • December
      • Another holiday behind us
        10/11/30
        Thanksgiving weekend is done. Lots and lots of food. Yum.

        Christina ate like she had two hollow legs. She is a fan of turkey leftovers. And to my surprise she ate stuffing as well as she does mashed potatoes.

        I am still concerned about the weakness in her legs and how quickly t

      • Thanksgiving Weekend
        10/11/29
        The Thanksgiving holiday winds down. Lots of turkey, potatoes, stuffing were enjoyed. We finished the weekend going to grandma's and seeing James, Robyn, Sheri, Dan, and Dylan. Christina showed her flash card skills and played with grandma and Dylan. "C is for cookie".

        Chri

      • Happy Thanksgiving!!!
        10/11/25
        Happy Thanksgiving everyone.

        It was a wonderful Thanksgiving. I made turkey, mashed potatoes, dressing, yams, carrots, and lots of gravy. Dinner turned out well. Everyone ate a lot.

        Christina looked beautiful, Angela had Christina in a pretty dress and her hair was done nice.
      • Happy Thanksgiving
        10/11/25
        Happy Thanksgiving

        Christina was lots of help making our Thanksgiving dinner. Christina was up early and took a long nap after a big lunch.

        Christina was also talkative giving lots of holiday wishes.

        Angela dressed Christina in a pretty dress and her hair was done up

      • Breakfast at Grandmas
        10/11/21
        Christina enjoyed breakfast at grandmas on Sunday. Eggs, toast, milk, orange juice, and applesauce were enjoyed.

        Christina's incoming teeth have been bothering her. Thank goodness for Anbesol. That has not kept her from being a chatter box. Christina likes to sing along to some of he

      • Surgery
        10/11/16
        Surgery went well. Waiting for Christina to get out of recovery.

        Christina is out of recovery. She looks more out of it than normal. It is so hard to see her like this.

        Will update more when I can.

      • Next Round of Injections
        10/11/15
        The next round of Phenol blocks and Botox injections is creeping upon us. The doctor visits are popular these weeks. Christina went to see the physiologist, optometrist, pediatrician, and was fitted for AFOs. Christina is 27.7 pounds and is 36 inches tall.

        We took it easy this past weeken

      • Daddy's Log 20101114
        10/11/14
        Daddy's Log 20101114

        With the rainy weather and cooler temperatures we have been spending our time indoors, but that is not necessarily a bad thing. Although it is the start of the feeling of being cooped up.

        Christina has continued being more talkative and is taking it to

      • Busy Busy
        10/11/03
        Sorry for the late update, it has been busy. Today Christina had an eye appointment and an appointment for her AFOs.

        On a good note, Christina has been full of stories and talking away. Saturday morning I heard her singing to the music when she thought I couldn't hear her. She has su

    • October
      • Daddy's Log 20101024
        10/10/25
        Daddy's Log 20101024

        Saturday morning Christina woke up at 03:00. To quote an old movie; "what does the '0' mean, oh my god it's early". Christina was wide eyed and cheery. We sat downstairs for a little while and then I told Christina she had to go back to b

      • What Time is It?
        10/10/24
        Christina has been very good about showing me what she would like to do. Friday night we did some walking. When she wanted to be done I asked what she wanted to do next. Christina tried to tell me, but I couldn't understand. I asked her to show me and she proceeded to wiggle around me and start

      • Good Read
        10/10/20
        Good reading. It hit a little too hard to read thoroughly first time.

        Not One of Those Mothers

        Cheers and enjoy the day. Appreciate every moment.

        To add to the reading list an article from the NY Times, A Hero or Just a Parent.

        To share some of my thoughts

      • Participating
        10/10/18
        Today I was asked how I was doing; when I replied and returned the question, the reply was 'participating'. I knew then it was something I had to share and be sure was around for a long time. So to the web it goes.

        How I am today? Participating.

      • Go Go Go
        10/10/18
        Christina was full of energy this weekend. Saturday we played at the mall and met new people. Sunday we went to the pool and splashed until we turned blue.

        Christina also wanted to enjoy the great outdoors this weekend. It was a little cool and she was not a fan of my wanting her to stay

      • Daddy's Log 20101010
        10/10/10
        Daddy's Log 20101010

        This weekend held a good workout. Christina had lots of energy and wanted to go go go. Saturday Christina was amazing; she wanted to walk outside, not in the gait trainer, so we walked up and down the sidewalk. With a couple of stops for her to get her legs going

      • Daddy's Log 20101003
        10/10/03
        Daddy's Log 20101003

        I have been fighting off a cold and have been succesful so far. Burning the candle at both ends has not helped, but there are just so many hours in a day and stuff has to get done.

        Friday night I started a roast in the crock pot. The roast barely fit a

      • Sick
        10/10/03
        Christina has been a little under the weather. No fever, but a stuffy nose. And I think she is achy too. Friday was lots of cuddles and mellow time and an early bedtime routine.

        Saturday the little firecracker slept in and woke up in a good mood. She seemed to feel better so we ventured t

      • Stair Slide
        10/10/03
        Christina told me she had a good day at school today, the 30th. The little firecracker was in an exceptionally good mood when I picked her up. As soon as we got home she wanted to walk. Christina headed straight for the stairs and she was in a hurry. Up the stairs we went, her steps were beautiful.

    • October
      • Daddy's Log 20100927
        10/09/27
        Daddy's Log 20100927

        Today Christina rode the school bus for the first time. All seemed to go well. Christina enjoys partaking in the same activities as the other children. I am sure she will enjoy the bus rides, at least for a while.

        Sunday we went to the UCP Family Picni

      • School Bus
        10/09/27
        Today Christina rode the school bus for the first time. It went well, the bus driver said he couldn't have asked for better. The little firecracker is growing up fast.

      • UCP Picnic
        10/09/26
        Saturday Christina wanted to walk and walk and walk, so outside we went. We found lots of room for her to use the gait trainer. She could go any direction and go however far her little legs would take her. She enjoyed being outside and chose to point the gait trainer away from the sun.

        Of

      • Story Telling
        10/09/24
        Thursday the 23rd Christina and Daddy met with Barb. Christina showed how well she sits in her Kid Kart and joined in the conversation. Christina has been becoming more verbal each week. It is fun to hear her stories and listen to her sing.

      • Daddy's Log 20100919
        10/09/19
        Daddy's Log 20100919
        The International Fall Festival downtown kept Christina and I entertained on Saturday. Christina showed off her smile and received lots of compliments. I can not describe how hard she laughed when seeing the zebra. The zebra just stood there, but Christina laughed hyst

      • International Fall Festival
        10/09/19
        Saturday we went to the International Fall Festival. Christina enjoyed the animals, especially the zebra. Christina also really enjoyed the bands in the parade. She is a fan of the drums.

        Christina also did very well walking through the crowd of people. I was impressed how well she handle

      • Few Pics
        10/09/19
        On the move.


        Playing on the floor.


        Bath time fun.
        Bath picture removed per Angela's request.


        Yes Christina, you got the flash card right.

      • Daddy's Log 20100912
        10/09/12
        Daddy's Log 20100909

        Christina had a good day at school. When she first saw me she started to cry and wanted up. I held her hand and told her we were going to walk to the van. Marie, her teacher, pushed Christina in her Kid Kart while I held her hand. When Christina saw the van she s

      • Harley Raffle
        10/09/12
        Friday evening Christina was in a cuddly mood. We played a little and did some walking, but she really wanted cuddle time and wanted me to walk around with her. I offered a compromise, yet I did really enjoy the cuddle time.

        Saturday Christina slept in quite late. It worked out well to gi

      • Daddy's Log 20100902
        10/09/05
        Daddy's Log : 20100902

        It was cooler today, thank goodness. Christina has been making wonderful progress with the flash cards. I too have been making progress with my listening skills. Christina has noticed and continues to work with me to better understand what she is trying to say.

      • Good Mood
        10/09/05
        Young Athletes is done this round and Christina has shown improvement in her abilities both physical and social.

        School starts soon and Christina will be going four days a week. She will be in the morning class. She is growing up so fast.

        Christina has gotten better using the &

    • August
      • Quote
        10/08/23
        I read this in an email from one of the groups I try to keep up with. I liked it and wanted to share.

        It's none of my business what other people think!

      • Chatter Box
        10/08/22
        Christina has been more talkative lately. She continues to do well on the phone and we are still working on her able to hold the phone by herself for longer periods of time.

        Christina has also been doing very well showing what she wants. When I have trouble figuring out what she wants li

      • At the park
        10/08/20
        We ventured to the park and Christina used her 'Pony' on the trail. The trail was not as smooth as I wished. Christina did well though. It was warm, but nice to be outside.

      • Walk in the park
        10/08/20
        It was hardly a walk in the park; however, Christina did very well checking out the trail using the 'Pony'. We also went down by the river. Apparently we were very appealing to the bees so we did not stay long.




      • RMHC Day of Change
        10/08/18
        On September 9, 2010, RMHC(Ronald McDonald House Charities) is encouraging its supporters to drop spare change in RMHC Donation Boxes located on counters and in the drive-thrus of participating McDonald's restaurants.

        Thank you RMHC for all that you do.

      • Daddy's Log : 20100815
        10/08/16
        Daddy's Log : 20100815

        Saturday we went downtown to Summer Fest, definitely not the Summer Fest I am used to. Someone needs to pick a different name for the fest here. It was hot out and the heat was getting to Christina. She did ride a pony and enjoyed the petting zoo for a little w

      • Pics
        10/08/10

        Christina telling me a story.


        Christina telling daddy about her dreams.


        Swimming.



        Christina and daddy.


        Christina swinging in her mountain climbing harness.


      • Few Pictures
        10/08/10

        Christina and Daddy choosing flash cards.



        Playng in the gait trainer.



        Christina likes to talk on the phone.



        Wagon rides are a favorite.

      • Swinging
        10/08/09
        Christina has been swinging, she learned how much fun it is to spin around in the swing. As christina pushed herself with her legs and pulled with her arms the swing teetered. When she let go and the swing spun around there was a look of surprise and scared. But not for long; a smile quickly came an

      • Daddy Log : 20100808
        10/08/09
        Daddy's Log : 20100808

        It was a good weekend overall. The weather was too warm for Christina and I so we only ventured out in the morning. We went for walks and played for short periods and then would go inside to cool off and get a drink. Then back out for something else. By afterno

      • Reminder: Miracle Treat Day Aug 5th
        10/08/03
        Reminder: Miracle Treat Day Aug 5th

        Get a Blizzard at participating Dairy Queens.

      • Reminder: Miracle Treat Day Aug 5th
        10/08/03
        Reminder: Miracle Treat Day Aug 5th

        Get a Blizzard at participating Dairy Queens.

      • Daddy's Log : 20100801
        10/08/03
        Daddy's Log : 20100801
        Once again Christina has proceeded to entertain. I had the idea that we could switch from using the flash cards to using the switch. My thoughts were not shared with Christina. Christina was tolerant of me as I placed the cards into the slots and recorded the messa

      • Daddy's Log : 20100730
        10/08/02
        Daddy's Log : 20100730

        I am pleased to spend time with Christina this evening. It seems that I have been missing Christina more lately. Although it is sad for me, that is the way it is. After some suggestions from others I have begun looking for differences in Christina's beha

      • Junior Fair
        10/08/02
        The Junior Fair was this weekend. Christina enjoyed the kid's tent and petting zoo. Christina did well waiting her turn in line for the games. We also went for a few wagon rides this weekend. Christina is a huge fan of the wagon, she tries extra hard to keep her head up.

        With the war

    • July
      • Daddy's Log 20100729
        10/07/30
        Daddy's Log : 20100729

        Today was a busy day. We started with a walk by the river. Christina picked flowers and held them until ST started. Christina had ST today, then we went home and Mary and Peg came over for a home visit. Christina was not happy, but showed them how well she ea

      • Marley
        10/07/28
        Marley is missed. Here is a link to a tribute.

      • "Yes"
        10/07/27
        Christina said "Yes" today. She said it clearly and unmistakably. Her yes was in reply to playing in the sprinkler with the gait trainer. A big favorite of the princess.

      • ADA
        10/07/27
        The ADA was signed twenty years ago on July 26th.

      • Watermelon Festival
        10/07/26
        Sunday Christina and I went to the Watermelon Festival. It was the first time either of us has gone. It is kinda of a flea market and we had fun looking around. Of course Christina ate lots of watermelon. We saw some friends there and had a nice visit too.

        Saturday Christina and I enjoyed

      • Pictures
        10/07/25
        I have continued to upload pictures of Christina to the web. I have also added the need for a password. Please email me for a username and password for access.

        I will continue to update Christina's slideshow with no need for a username or password. The slideshow does not get updated

      • Daddy's Log 20100725
        10/07/25
        Daddy's Log : 20100725

        It is another Sunday and I find myself missing Christina more than usual. The house is a mess; dishes, laundry, vacumming, picking up. Nothing unusual; however, feels overwhelming.

        Christina's reflux is continuing to act up. I am starting to

      • DQ Miracle Treat Day August 5th, 2010
        10/07/23
        DQ Miracle Treat Day August 5th, 2010

        Buy a Blizzard at participating Dairy Queens and $1.00 goes to the local Children's Miracle Network Hospital. For us the local is Gillette Children's Hospital. Yes, Christina has been there.

        Here is the link for the site with more

      • DQ Miracle Treat Day
        10/07/23
        DQ Miracle Treat Day August 5th, 2010

        Buy a Blizzard at participating Dairy Queens and $1.00 goes to the local Children's Miracle Network Hospital. For us the local is Gillette Children's Hospital. Yes, Christina has been there.

        Here is the link for the site with more

      • 20100722
        10/07/23
        Daddy's Log - 20100722

        Christina had ST at 10:00. We stopped in at UCP-WCW to say hi before speech started. Christina did very well in speech, only one week left(two sessions).

        Christina has been a little off for the past couple of weeks. I can't say exactly what

      • Daddy's Log
        10/07/19
        Flipping through the channels after work one night I found Star Trek. It happened to be showing a spot with the usual "Captain's log, star date...". It made me think(and chuckle), "Daddy's log, date ....". After laughing to myself it sounded like it may be a good idea.

      • Few Pics
        10/07/19
        Pictures of the firecracker. Updates below.



        Christina and I went to Grandma Kar's on Sunday we saw Dan, Sheri, James, Robyn, and Dylan. Christina walked in her gait trainer on the patio. She did super well.

        Saturday we played outside for a short time. Christi

      • Speech
        10/07/15
        Christina has been doing very well with her speech therapy. She has been making choices and has more opportunity to 'voice' her thoughts.

        More details and pictures to come, but here is a quick bit. Christina loves being outside and really likes the water. Whether it is a pool, l

      • Pool
        10/07/12
        This past weekend Christina and I went to the pool with grandma. Christina did very well and we had a blast. She takes such high steps in the water.

        We also went to the park on Saturday. The slide is always a hit. And the sand makes for a good workout for Christina.

      • Surgery appt.
        10/07/06
        Waiting for the doctor.

        Updates to come.

        everything went well. Christina has an appetite and is in a good mood. She wants to cuddle but in good spirits.

        Recovery took longer than before. Probably due to the additional meds. My little fire cracker got morphine to he

      • Pictures
        10/07/05
        Finally some of the cute pictures of Christina.

      • Recent Pics
        10/07/05
        Here are a few of pictures of Christina.

        <br>

      • Christina Birthday
        10/07/04
        Happy Birthday Christina!!!

        Hugs and kisses for you.

      • Happy Birthday!
        10/07/04
        Happy Birthday Christina!!!

        It is your golden birthday. Enjoy the day.

        Lots of hugs and kisses.

        Love,
        Daddy

    • July
      • Christina's Birthday Party
        10/06/30
        Christina's birthday party went very well. Christina did amazing opening gifts, she has the grabbing and pulling wrapping paper all figured out. And I can't even begin to express how well she handled having that much company. It wasn't a huge party, but a whole lot more people than us

      • Toddlers Rules
        10/06/28
        Christina received a plaque that is so cute I must share. Thank you Pam.

        TODDLERS RULES
        If I like it - it's mine.
        If it's in my hand - it's mine.
        If it looks like mine - it's mine.
        If I think it's mine - it's mine.
        Everything else is

      • Birthday Party
        10/06/28
        Christina had a birthday party on Saturday the 26th. She did wonderful with all the company. Christina enjoyed opening her presents and listening to her sound cards. She has gotten very good at grabbing the wrapping paper and pulling. She did not even eat any.

        It was a wonderful party wit

      • Almost 4
        10/06/25
        Christina is almost four, gotta get ready for the birthday party. There is not much new with Christina. She did get sick this past week and had to see the doctor. They gave her a shot of antibiotic in each leg to help her get over it.

        Christina loves being outside and going to the park. T

      • Yea!!! Christina
        10/06/15
        Just got a call sharing how well Christina did in the gait trainer. Christina walked outside through the front door, around the building on the sidewalk, around two cars, and to the garage.

        Mommy said she gets a stroller ride to rest her legs. Christina was huffing and puffing and broke a

      • More Sick
        10/06/14
        I am not sure if I have been burning the candle at both ends, but I managed to get sick again. The typical head ache, sore throat, stuffy nose, feel like crap. Christina and I made it through the weekend with some fun times though. Read about our adventures on her blog, www.christinakademan.com.
      • Cinder City Days
        10/06/14
        This past weekend Christina went to Cinder City Days. We did not plan well, but we improvised and had fun. Lets start with the beginning of the weekend.

        Saturday we went to the pool. Christina did amazing in the water. Christina took great steps in the pool as we walked from each end. Her

      • Proud Daddy
        10/06/07
        I wanted to share how proud of Christina I am. We have been working on walking in the gait trainer. Christina prefers walking on the deck over the sidewalk. The determined little firecracker goes from one end to the other by herself. And that is no small task, the deck spans more than the full width

      • Local UCP site
        10/06/03
        Yesterday I was able to help the UCP office in Eau Claire for a change. I assisted with getting some of the more current news up on the site. It felt good to be able to help them with all they have done for Christina, Angela, and me.

        Lots more going on, but don't want to go into deta

    • May
      • Helping in the Kitchen
        10/05/31
        Christina was a big help this weekend. Sunday we made pancakes and Christina helped mix the batter. After breakfast she also helped sweep the floor. Christina even helped with the dust pan and little broom.

        Saturday Christina and I went to Irvine Park for Kevin's long awaited recepti

      • Another good Thursday
        10/05/27
        Another Thursday and it went well. Christina and I had a busy morning. We had a couple of meetings and Christina showed off. She is so cute and fun.

        This afternoon we played outside a lot. Christina was a little sick yesterday so we took it easy. Lots of breaks and plenty of fluids.

      • Hot Weekend
        10/05/23
        It was hot this weekend. I turned the air on Sunday morning and very glad I did.

        Saturday Christina and I went to the Mom Show with Haley, Jaycie, and Kassidy. Christina entertained them with her singing on the way there.

        Christina and I went for a walk on Saturday and stopped

      • Mom Show
        10/05/23
        Saturday Daddy and Christina went to the Mom Show. Christina met Haley, Jaycie, and Kassidy. We picked the girls up and they went with. Christina sang for the girls on the way to the Mom Show. Christina did very well while we were there, she was a little shy. She did have smiles for everyone and a f

      • DQ
        10/05/19
        What a good day for a stop at Dairy Queen. It hit the spot.

        What a warm day. Almost turned the air on. Gonna see if I make it through the weekend with the air. I get a good breeze coming through. Christina's room and my room stay cooler than I expected.

        I was going to go t

      • Big Breakfast
        10/05/19
        On Saturday went to have breakfast with some of the Kademan family. Christina did super well on the ride there, it takes about an hour to get there. It was the first time there was anyone sitting in the back of the van with her and she was cute trying to turn her head to listen to the conversation.

      • Weekend Update
        10/05/16
        The weekend went wonderful. We had beautiful weather all weekend and Christina and I were able to spend lots of time outside. Sunblock weather it is.

        Saturday morning Christina and I headed for the Kademan Family breakfast. We picked up grandpa, Julie, and Marilyn. Hope you are feeling be

      • Sending cards
        10/05/11
        Daddy took Christina to the mailbox so she could mail the Mother's Day cards she picked out. It made for a nice walk as we talked about all the cards we looked at and how she picked the ones she did.


        Christina was sick last night and I hope she feels better today.

        Ch

      • weather
        10/05/10
        I thought it was April showers and May flowers. Not here. I don't mind the rain so much but the wind can settle down a bit. And the temp, I like it cool(some would say cold), but with the wind and rain it needs to warm up a bit. I'm not going to go for a walk in this stuff.

        I sa

      • behind on updates
        10/05/07
        Just a little shout to let everyone know that I have not forgotten to send an update. It has been busy around here and I take a little time in the evening to do nothing and attempt to clear my head.

        I also want to send an individual email to all of you as opposed to the form letter.

      • IEP Meeting
        10/05/04
        Today is Christina's IEP meeting. I have mixed emotions about it as always. It is a similar feeling to going to one of Christina's doctor appointments.

        On this last Saturday, May 1st, Christina received her first phone call. To explain some detail: Christina loves talking on the

    • May
      • Mommy and Me
        10/04/27
        On Saturday Angela and Christina went to the Mommy and Me program at the UWEC Planetarium. Christina was able to see some of kids she met at other Mommy and Me activities.

        Coming up is the UCP Walk that Angela and Christina will participate in.

        Christina has been doing wonderfu

      • New News
        10/04/23
        There has been a lot going on. I will give a brief update and try to catch up at a later time.

        We went to see Dr. Moore and Dr. Burnstein on April 15th. Dr. Burnstein(neurologist) said Christina is doing wonderful and we do not need to see him anymore. Dr. Moore was also pleased with Chri

      • Christina's neuro development appointments
        10/04/16
        Christina's latest doctor appointments were on Thursday. We met with her neurologist and har developmental doctors.

        The trip there went well. We took the van and listened to Christina's favorite traveling music. No tears!!! And no tears on the way home until we were a few miles

      • Happy Easter!!!
        10/04/04
        Happy Easter internet world!!!

      • Easter prep
        10/04/03
        I am looking forward to Christina looking for her Easter basket. And, if I can plan around the rain we will hunt for candy filled eggs outside.

        Dinner is prepped and looking yummy. Nothing traditional. Steak and mashed potatoes. Sauted onions and mushrooms. Haven't decided on a vegg

      • Warm Sunny Day
        10/04/01
        A warm and sunny day here meant Christina and spent lots of time outside. We went for several walks and walked barefoot in the grass. Christina loves the feeling on her toes, even the prickly brown grass.

        I tried to convince Christina to help me color eggs for Easter, but she wanted me to

    • March
      • Weekend Fun
        10/03/22
        It was a pretty good weekend. Saturday, Christina and I met some of the extended family for breakfast. We had to get up early and had an hour drive. Christina was a wonderful little girl. The car ride went well there and back and she was more cheery than me for that time of the morning. Christina sa

      • Wonderful Weather
        10/03/15
        We have had wonderful weather here. This past weekend Christina and I spent a lot of time outside. Now if only I can get everything done in the house.

        Christina and I went to the Children's Museum for the first time on Sunday. We met Dan, Sheri, and Dylan there. It was fun, going to

    • March
      • About time to update
        10/02/14
        It's been a long time since I updated the blog. There has been a lot going on. Let's work backwards...

        Yesterday, Feb 13th, we met dad/grandpa for breakfast. We got to see James also. Christina ate very well and shared her smiles with everyone. That afternoon we went to the Wiss

    • January
      • And we're back.............
        10/01/06
        Well the procedure went well, of course holding Christina down in the OR is one of the worst things in the world. But she made it through with no complications. We did decide that next time to use versed, heavy sedation drug, to help make the going to sleep easier and she will forget most of everyth

      • Off to the cities....
        10/01/04
        Well we are off to the cities for another round of phenol botox. I am sure all will go just fine but it still is an uneasy feeling. I am sure that the trip up there will be the most painful part of the journey.

        Well, lately Christina has been a chatter box and it is so wonderful to hear her

  • 2009
    • December
      • Merry Christmas
        09/12/25
        We wish everyone a very merry Christmas. We are getting ready to open presents. Yippy yippy... more later.

        Last night we opened a gift from Christina and it was the most wonderful gift ever. Both of us were in tears.

        On a different note phenol botox is scheduled for Jan 5 at 7 am. Th

      • Another Day in Paradise
        09/12/16
        Christina did not sleep well last night. Angela got up with her and managed to get her back down quite some time later by laying in bed with her.

        I woke up before the alarm, oh joy. So after I get some coffee in me, I get a message to check out Facebook. And what do my wondering eyes see,

      • Shopping
        09/12/15
        Today Christina had another good day at school, she told me all about it. Angela had a doctor appointment and I met them at the clinic.

        Angela and I planned to go have a drink after I got home from work. All you parents know, sometimes things do not go as planned. All three of us did get

      • Monday Monday
        09/12/14
        There could be a song floating around out there. Really though, if I'm gonna mention a reference to a song with Monday in the title it better be Blue Monday, good tune.

        Today was a typical Monday plus my still being sick and my cough getting worse, Angela still has pneumonia and has

      • Sleeping in
        09/12/13
        All of us slept in this morning. I woke up at 09:00, Angela and Christina woke up at 09:30. Woo hoo!!!

        I had my time out of the house; went for coffee, hit the store, and then the gym. I'm still sick so the gym was short.

        Christina and I put decorations on the Christmas tr

      • Decorating
        09/12/12
        Christina was up at 04:30 today. Again she was tolerant of me getting her meds together and making coffee. Not to mention plopping our butts on the couch so Christina could tell me about her dreams and could get a few more minutes to wake up.

        We walked a lot today. By late morning Christ

      • More sick
        09/12/11
        I still have a cold, Christina has been keeping it at bay, and Angela went to the ER tonight.

        Angela has pneumonia. Of course the pharmacy messed up again and didn't have the right prescription so rather than telling her they couldn't fill it they called the doc and gave her som

      • Snowed In Wednesday
        09/12/10
        So I ask for snow, get snow, and then the company that plows doesn't show until after noon. The snow is pretty and I am glad we will have a white Christmas.

        The wind blew so much that the snow was up to the window on one side of the car and up to the door on the other. I shoveled aro

      • Snow Snow Snow
        09/12/08
        We finally got some snow. It isn't enough, but a start.

        Christina was up early again today, 05:00 is better than 4. I was still sleepy, but she dealt with it pretty well. We compromised, I took coffee sip breaks and she got to walk laps up and down the hall.

        Angela had an

      • Monday and still sick
        09/12/07
        Another day of feeling like crap. I am ready for this cold to go away.

        Christina woke up early this morning. She started stirring and talking about 03:30, I tried to hold off until 04:00. I went in to get her and she was all smiles and ready to play.

        I opted to try the mellow p

      • Sunday, December 6th
        09/12/06
        It was a pretty typical Sunday. Christina was up before anyone else wanted to be up. This cold is still kicking my butt.

        Breakfast did not go well for Christina and I. I made eggs this morning and she would not sit in her high chair for me. So after a couple of time outs, breakfast was do

      • Saturday, December 5
        09/12/05
        Another Saturday and busy. Christina did not sleep well last night. I managed to get her back down before too long. We bumped heads at breakfast and she did not eat.

        We left the house early today and headed to the store, well before mommy left. After picking up a few things we went swimmi

      • Dentist
        09/12/04
        Christina had a dentist appointment today. She has great teeth, even for baby teeth. No cavities and clean. They cleaned them any way, but it did not take long. Mommy said she sat very well for the whole thing.

        Angela and I are still sick. I think Christina is border line getting sick. Sh

      • Sick sick sick
        09/12/03
        Today Angela and I are sick. Stuffy nose and sore throat to add to our joys.

        Christina was in a mood today. She was uncooperative for mommy and daddy all day. Christina woke up in a good mood, but it did not last long. She refused breakfast, threw a fit for lunch for Angela. I tried lunch

      • Wednesday, December 2
        09/12/02
        Well the temperatures have remained colder, it is Wisconsin in December and still no snow.

        It has been a pretty typical Wednesday; Angela went to do homework when I got home, Christina and I had supper, we played and went for a walk. Christina finished off a lot of mashed potatoes.
        <

      • And Go, December starts
        09/12/01
        Ah December, where is the snow.

        Today went by fast. Christina had a good day at school and she did a wonderful job telling me about it when I got home.

        I went to the gym after work. I pushed a little more today, it felt good. My legs are feeling it though.

        Angela and

    • December
      • End of November
        09/11/30
        Today brings the end of November. The temperature has dropped and still no snow. I am starting to wonder if I will get a white Christmas.

        Christina has a good day at school. Her and mommy butted heads today, but it didn't last long. Christina and I had our normal routine of talk time

      • Visiting with fam
        09/11/29
        Today Christina and I went to see James, Robyn, Sarah, and Ruby. Christina watched Ruby swim. Christina walked around beautifully and laughed when walking by the water slide and getting splashed.

        Christina said "Hi" to everyone and also shared her monkey with Ruby. Christina als

      • Saturday, Nov. 28, 2009
        09/11/28
        Today I was/am sick. I have a cold, yuck. Angela is sick also and Christina is getting sick.

        Today Christina and I played at home. The goal was to keep Christina from getting sick. So far she is doing ok. We had a lot of fun walking up and down the hall and peeking out the window. We also

      • Friday post Thanksgiving
        09/11/27
        Today Christina and I went swimming at the YMCA when Angela went shopping and did homework. We had a great time. Christina did wonderful walking and kicking.

        I went to the gym this evening and feeling pretty proud of myself.

        I am almost done with the update to email everyone.

      • Thanksgiving Day
        09/11/26
        Well it was a pretty quiet Thanksgiving here. Christina and I played and sang. We did a lot of walking. My back and knees feel it.

        We went for a drive to the gas station for our outing today. It wasn't much but gave us the chance to sing in the car and stay out of the wind. I have a

      • Happy Thanksgiving!!!
        09/11/26
        Happy Thanksgiving to everyone.

        I would like to say I am very thankful for Angela and Christina being in my life. Through all the good, bad, and so so times. I am truly thankful.

        I love you Angela and Christina!!!

      • Sorry for lack of updates
        09/11/26
        Sorry for the lack of updates recently. First of all Happy Thanksgiving to everybody.

        Christina was ill and missed a week of school but is better now. No it was not the swine flu. She did however miss school. She was very exited to return this week.  While at school she has been doing g

      • Happy Thanksgiving Eve
        09/11/25
        Happy Thanksgiving Eve!!!

        Today was a typical Wednesday. The day at work was pretty average with fewer calls than normal.

        Angela had a doctor appointment today. Not much new, they still can not do anything to fix or help her leg. Time, time, time. Waiting and hoping sucks and I

      • Tuesday on a short week
        09/11/24
        Today went by fast also. I went to the gym after work. That was an experience. I am trying to figure out how long it has been since I went last, and guessing it has been five years at least. I feel good after going. It took awhile to not feel guilty being there. I usually spend my evenings with Chri

      • Monday, November 23, 2009
        09/11/23
        Today went by quickly. I thought about this blog updating thing and figured that the end of the day is probably the best if I try the once a day. So here we go...

        I transferred the latest pictures from Angela. I managed to get them sorted and have them queued for upload. For those of you

      • Blogging
        09/11/23
        In an effort to update the blog often, I am going to try to post something everyday. Since this is going to require more effort I have put into it in the past I am starting in the morning and there may be more than one post in a day.

        Let's see. The weekend is done and I do not rememb

      • Just as I Awake
        09/11/22
        Just as I wake up and look at the clock; I think to myself, I will get up, make coffee, get Christina's meds made, and then I can sit with a cup of coffee peacefully listening to the quiet.NOT!!!

        Christina has a sense for when someone is trying to relax. It is her duty as a child to

      • One of My Favorite Quotes
        09/11/21
        Quote from “the Smoking Man”

        (a.k.a. Cancer Man, Cigarette Man, Cigarette Smoking Man)


        “Life is like a box of chocolates. A cheap, thoughtless, perfunctory gift that no one ever asks for. Unreturnable because all you get back is another box of chocolates. So, you’re stuck

      • Rise 'n Shine
        09/11/21
        Christina up early again. I am so sleepy.

        Quick made meds and a quick post before going to get her. Ready for a morning to sleep in.

      • Christina's Eye Doctor Appt
        09/11/20
        Christina's eye appointment went well. No new news, which means no bad news. They dialated her eyes and of course no one likes that.

        The car ride went well there and Christina cried on the way home. Angela had a tough time in the car with her sore leg. I felt bad for both of them. <

      • Quick Update
        09/11/19
        Christina has been sick the last few days. She had quite a fever and achy. Her fever went down and up and is now creeping up a little again. Christina has not been sleeping well at night.

        Unfortunately, she had to miss school this week and has not been fond of her stretches. Mommy has been tr

      • More sick
        09/11/18
        Well Christina feels better. Angela is worse and I am getting sick.

        Christina was up at 5:15 this morning. Time to wake mommy and get ready for work.

      • Sick Girls
        09/11/17
        Both the girls are not feeling well. And I can't sleep. I hope all feel better tomorrow.

      • Another Sunday
        09/11/15
        It was a typical Sunday. Christina was up at 06:00. I went to visit with Donny for a couple of hours.

        I am trying to make an effort to update more often. It is a slow process.

      • Angela's Surgery and More Updates
        09/11/13
        Yesterday Angela had surgery on her leg. To avoid a detailed description, her veins need help. Christina stayed with a sitter while Angela and I went to the UofM. Everything went well. We are hoping this takes care of the pain.

        Christina has been a daddy's girl for the last few week

    • October
      • Snow Biz and more....
        09/10/20
        Last night Christina and the snow biz committee had their pictures taken. Christina was sitting on the snowmobile with daddy. I was doing clucking for laughter purposes. Anyway to anyone who sees the picture know that all the smiles are laughing at me. It was all worth it though.

         Tomor

      • Snow Biz 2010
        09/10/20
        Snow Biz 2010 is on January 30th. For more info or to get involved call 715-832-1782.

        The photo shoot for Christina went well. As soon as I made it to Zacho's, Christina saw me and she was a daddy's girl. I did not have the opportunity to meet everyone there and thank them. Thin

      • Snow Biz Photo Shoot
        09/10/19
        I can give everyone the quick update on what has been going on.

        Christina is a featured child for UCP. Yeah Christina!!! We will be going to as many UCP activities as we can. Today is a photo shoot for Snow Biz. I am unsure of the date and will post about all the events I can with details

      • UCP link
        09/10/14
        Here is the link to the UCP site. There is a picture of Christina.

        http://www.ucp.org/ucp_localdoc.cfm/156/13698/9980/9980-9980/9629


      • The Mall - play and lunch
        09/10/09
        Today Christina and Crystal and I went to the mall and had lunch. Christina ate very well. We went to the play place nad Christina had a blast. I made Crystal take pictures because when we go I can't take to picts by myself/. Crystal was very impressed with what Christina could do. Weorked on steppi

      • General update
        09/10/07
        School is going great for Christina. There still needs to be some more work on transition but she loves it. We have been spending time at the mall play place working on social skills, stepping up steps, walking, and crawling. She is doing great. Today at school there were hardly any tears. 
      • School..... and Pictures
        09/10/02
        School is going very well for Christina. She is so exited to go, of course she cries when she gets there and is fine as soon as they walk the other way.  She also had her first school pictures taken on Monday. They turned out very well. I was there to help get the pictures and got to choose the

    • October
      • UCP Picnic
        09/09/27
        Today we went to the United Cerebral Palsy Picnic. The picnic was held at the Lake Altoona pavilion. We had a lot of fun.

        Christina was a daddy's girl today. We'll get into that later. Christina and I walked, picked out the color of nail polish for Angela, threw balls, and joine

      • Date With Dad
        09/09/22
        Christina and I went to the Date With Dad scavenger hunt hosted by the Eau Claire Area School District Head Start/Early Learning Programs, the Family Resource Center, and Western Dairyland Head Start.

        It was fun. Christina had a great time while we hunted for nature items in the park. She

      • Nap Time
        09/09/19
        Christina and I had some disagreements today. She would not eat breakfast for me nor lunch. We went for a short walk.

        For nap time I opted to hold her and sit in the chair. It has been along time since we sat together to relax Christina is asleep on my lap now, I'm tired, and I c

      • UCP - United Cerebral Palsy foundation
        09/09/19
        On Thursday Barb from UCP asked us if Christina could be a spokes person for their 30th annual telathon in January. So Derek and I are exited to be a part of this. Christina will be on TV in January. We will keep everyone up to date on up coming events.

        On Wednesday Christina and I went to t

      • UCP
        09/09/18
        Yesterday Angela and I met with Barb from UCP. Barb stops by every week or two to go over things we encounter while parenting Christina. Barb asked if Christina would be a spokes person for UCP. Her pretty smile will be on various brochures and on the telethon.

        Christina and I also went t

      • Christina School
        09/09/13
        Where to start with updates...

        Christina had her first day of school on 09/08/2009, it went well. She was great up until she had to sit in her kid cart towards the end. Not surprising she did not like it, she does not like it at home anymore either.

        Tomorrow brings Christina�

      • Cup, cup, cup
        09/09/12
        Yesterday Christina held her own cup all by herself and drank from it. She was so cute holding her cup. She was so proud of herself and we are so proud of her. It was great to see that.
      • First Day of School
        09/09/08
        So it was Christina's first day of school. She did absolutely wonderful. She only had tears when Mary (her teacher) took her and then they were over. She of curse cried when she was put into her kid cart. She does that at home. She also sat on the potty and did not fuss. When I picked her up she was

      • First night outing
        09/09/07
        On Friday Christina spent the night at Deb and Cory's. She did very well. She took her meds and did not keep everyone up all night. It was strange in the house with out her. Derek went camping this weekend as well. So the house was empty. 

        Christina starts school tomorrow and I am sure

      • Bitter sweet therapy session
        09/09/01
        So this morning it was Christina's last therapy session with Katy her physical therapist. I cried when we left. I never thought that I'd feel like this for her last session. Katy has become a part of the family. She has seen Christina once a week for over three years. It is great that Christina grad

    • August
      • Hair cut !!!
        09/08/30
        Christina got her first hair cut today. She did wonderful and not one tear. Now her curls just bounce all over. Kirsten, Crystals sister cut her hair. Kirsten even got multiple kisses before and after.  Derek and I took Cole and Evan most of the weekend and we had lots of fun. After the hair cu

      • Christina's First Haircut
        09/08/29
        Christina had her first haircut today. She sat very well with no tears. Her curls really show now.

        Evan and Cole came over today also. We had fun. Evan and I baked cookies. Christina and I played hide and seek with them. Christina had a lot of fun. She did not want to stop. Christina even

      • Another Sunday
        09/08/16
        This Sunday I was only gone for a couple of hours. Christina seemed to enjoy the extra time with Daddy.

        The little squirt was up early today and did not take much of a nap. Christina went to bed nice and was in a great mood and playful and giggly went she went to bed.

        Angela ke

      • Update on the Fam
        09/08/13
        Well, it has been very busy and stressful here. I'll start with the update for Angela so the update on Christina makes more sense.

        After several tests and trips to the U of M, Angela finally had surgery on her leg. The docs needed to do more work than anticipated once inside. Needles

      • Pony Rides
        09/08/09
        Today was a busy day. Carl our neighbor had a real big cook out and lots of food. It was fun with great food. We then went down town to the Summerfest that they had.  It was great. We got rained on and Christina loved being in the rain. Christina and I were dancing to the music in the rain. She

      • Tuesday's news
        09/08/06
        On Tuesday Christina got her first award and ribbon. She completed her summer group held by Special Olympics. Her very first young athletes award. It was a great group and am very sad to see that it is over. On the bright side they will be having it again.  Then later on in the day Christina pi

    • July
      • Whats New
        09/07/25
        Well we have just been hanging out doing summer stuff. Things have been pretty mellow. SPOTS house therapy has been going real well. Also my group with special Olympics has been going well too. I did get a new button that I get to use as my voice. I got that from my new speech pathologist. Her name

      • Birthday Party
        09/07/13
        Christina's birthday party went well. We had a small group over on Saturday the 11th. Cole and his family, Cory and Deb, Dan, and Patti came over. Sammy and his grandma stopped by later.

        And, Angela and I had a date night. Christina hung out with Cory and Deb while Angela and I spent

      • Birthday Party
        09/07/12
        Christina had her birthday party yesterday. It was real fun. Deb, Cory, Grandma Patti, Crystal and family, and Dan came over and had cake and we opened more presents. Christina liked every thing that she got. Then she went with Deb and Cory so Derek and I had some time alone.

        This morning Ju

      • School update
        09/07/08
        We had a meeting this morning with Mary and Laurie from the school and the transition is starting. Mary will be Christina's teacher and Laurie will be working with her for speech.  Derek and I are very happy with the people that we have working with her.  They are a great team just like he

      • Just a quick update
        09/07/06
        Christina is a whole three years old. We were not around a computer to update because we all went camping with Deb, Cory,, Trevor and the rest of  their family.

        It was a learning experience with Christina. She had a lot of her moments but it was a great trip and we look forward to the n

      • Bitter Sweet
        09/07/02
        Well this week is bitter sweet. This is Christina's last week of  therapy with birth to three.  We will now go to SPOTS house until school starts and then therapy will be at school.

        I am glad that she is graduating this part but at the same time it is sad to see Katy (PT) Jenny (OT

    • July
      • A little off
        09/06/30
        Christina has been a little off. She doesn't seem to be as happy go lucky as normal.  She has been sleeping more than normal and I think that is because of some growing that she is doing. She has been getting taller.

        She went over to Deb's and played with Cory and Trevor. She was in a g

      • The Zoo
        09/06/28
        Sorry the updates have been so far apart. I just got my new computer up and running so the updated should get better.

        The MN Zoo was very fun. It was daddy's day and we hung out with the animals and mommy. Christina really liked the sprinklers that were there. We had to go back a couple of t

      • Middle/end of the trip....
        09/06/21
        So the wedding went very well.  Christina sat through the whole ceremony like a great little girl. She did not like one of the songs but auntie Robyn made her smile.  Christina is very tired and cranky now that we are back to the hotel. She slept for 4 hours. We are getting Jakeeno's artic

      • The Beginning of the Trip
        09/06/18
        Well, we made it to the hotel. The drive Wednesday night left Christina in a pissed off mood. She was so upset she pulled out a sizable hand full of hair on the way here. The night did not get any better. Christina was up most of the night. Angela and I did not sleep either. We turned on the lights

      • Coffee and update
        09/06/14
        It is Sunday and I am at The Coffee Grounds. I stopped by Donny's to visit for a bit.

        I am giving Ubuntu a try. Running off a live cd, so far so good. I figure I will try the usual email and browsing. It did not take much to setup the wireless connection. First try. I am pleased with

      • Busy Busy Busy
        09/06/12
        It has been busy around here. Both Angela and I have meant to update the blog sooner. Here is a quick update.

        Christina continued making wonderful progress. She now can drink with a straw.  We started with a fancy cup to assist(it keeps the drink in the straw so it is easier to start) an

      • Development Doc
        09/06/02
        On the 1st, Christina had another appointment in the cities. We went to see Dr. Moore. He is pleased with Christina's progress. The good news... Angela and I get to deal with a typical two year old.

        The next round of Phenol blocks and Botox is scheduled in two weeks. It will be a ver

    • May
      • Bedtime
        09/05/26
        The bedtime routine has changed since Angela came back from California. I still put Christina down for bed after her bath and meds. The plan is to have Angela try on Friday to put Christina down the same way I do.

        Christina is by no means asleep, not even close the last few days. I lay wi

      • Daddy's Little Girl
        09/05/21
        Christina is still upset at Angela for taking holiday. It has been two full days and Christina has whined most of the day.

        It has been hot here and I think she is uncomfortable. She feels like a furnace and is only wearing shorts and a short sleeve shirt.

        Bedtime has officially

      • Working Solo
        09/05/18
        It has been an interesting few days, Angela left for CA early Thursday morning. Early being 03:30. She comes back late tonight, Christina and I will be snoozing.

        Things have gone very well with Christina. I have kept the house looking like a house, laundry is caught up, and no dishes lyin

    • May
      • School Tour
        09/04/30
        Today we tour the school that Christina will be going to in the fall. I am excited and nervous about Christina starting school. It is still awhile yet, but the tour seems to be giving it focus.

        School is almost done. I have two quizzes, one assignment, and any end test there may be. I am

      • Dr.Tanaguchi
        09/04/25
        So I went to see Tanaguchi yesterday. The drive there was pretty good but the drive back was not too great. It was because I had to go potty and I held it all the way home. I was much happier once I went poopy on the potty. I went to bed early and then slept in until 9:30. So the doc news is that we

      • Huge steps
        09/04/23
        This week therapy went so well. Mommy does not stay with me it is just me and the therapist. There were no tears. I actually had fun.

        Last night I stood all by myself by the couch. Mommy took pictures. They will show up on the slide show later. Today we spent lots of time outside. I walked a

      • Tea Party
        09/04/15
        Tea Party at the Eau Claire City Hall building.

        I went to the Tea Party to show my frustration with the current government. It is not just the Federal government that is playing games with Christina's future. Our state government is about as bad.

        Bailout? Who do they think

      • Easter
        09/04/13
        Happy Day after Easter!!!

        Easter weekend was eventful. Christina got sick on Saturday, nothing serious, a runny nose to add to her teething and I think she had a headache.

        Sunday, I made dinner. Donny, James and Robyn, and Ed came over.We had a nice visit.

        Christina

      • The Easter Bunny
        09/04/10
        Today mommy and daddy took me to go see the Easter Bunny. He scared me, but he also scared lots of other kids too so I don't feel so bad.  Mommy had to sit with us for the picture. It was fun to have daddy go with us to the mall that is not his kind of place so...... Thanks daddy.

        We al

      • Neurology Appt
        09/04/08
        Good news from the neurologist!!!

        Dr. Burnstein said he is impressed with how far Christina has come. And, we don't have to go back for a year. I never thought those words would mean so much.

        Christina has been giving Angela and myself some grief, it seems she wants the ot

      • Neurology and new stuff
        09/04/04
        Well the trip went very well. Christina was quiet all the way to the doctor. Not so much on the way home but she was hungry and tired and that would make anyone cranky.

        So the neurology news................. We do not need to see him for a year!!!!! He said that there is nothing neurological

    • March
      • Cole and I
        09/03/28
        Cole, mommy, Crystal, Evan and I went swimming last Friday. I had lots of fun. Mommy and I were chasing Evan. Cole was not so happy and I tried to comfort him but it did not work.  I swam for an hour. It was great.

        This Friday Cole was over all day and we played with blocks. Mommy spied

      • School
        09/03/19
        I signed up for a class through continuing education with the UW. I was and am excited to learn more. Today was the first day I hit the books. Class officially started on Wednesday the 18th at 12:00.

        It was an experience sitting down and focusing on learning again. It took a little bit to

      • Swing
        09/03/18
        Well we got my swing and it is soooo fun. I wish we would have gotten it sooner. Mom talked with Katie on different ways to use my swing and we were all playing with it last night. I took my first official fall. I fell out of the swing and got rope burn on my upper lip and nose. It was more traumati

      • Update
        09/03/13
        What's new? Not a whole lot.

        Christina is doing pretty well. She has been working on her vervbal communication and enjoys hearing herself. Speech therapy has given us some things to work on. One of the words we are working on is "more". I am also working on the word "

      • March...
        09/03/07
        It has been so long since an update. All has been pretty mellow around here. We have been enjoying the warmer weather. Mom and Deb did the polar plunge and I had lots of fun with daddy and uncle Donny while we watched.

        This week mom and I went for ice cream two times and I really liked that.

      • Birthday
        09/03/01
        Happy Birthday to me.

        For me, it is just another day. I didn't even remember how old I am until Angela got up and reminded me.

        Celebrating is not my cup of tea. I think it is a good excuse not to make dinner tonight and to order out. I thought about the three of us going o

    • March
      • HI
        09/02/19
        We all just wanted to say hi to everyone. Not much new here just hanging out and waiting for the weather to get better so we can go play outside.

        Have a great night to all.
        Christina

      • Walking
        09/02/14
        Walking has been going very well. Christina has all the ambition in the world to accomplish this task. She has started to walk in the gait trainer with braces and benik vest.  The benik vest is made out of wet suit material with two metal strips in the back for support. It works under the idea

      • New and wonderful
        09/02/02
        Things have been very mellow over here. We are working very hard on strength in Christina's legs. Since the phenol it is very apparent how weak that the muscles are. ( CP will do that.)  We have started swimming again and Christina is glad to be back at the pool. We went on Thursday

    • January
      • First Post by Daddy
        09/01/27
        The new blog is setup.

        Now for the little details.

      • Orion
        09/01/23
        Poor Orion.

        I dropped Orion off at the vet this morning. He was scheduled to be neutered and to have his front claws removed.

        Christina and I will pick him up tomorrow morning.

        I feel bad, but it is for the best. I would hate to have Christina get scratched. She pets

      • Update on phenol
        09/01/22
        Well in the beginning it was very concerning for me and I am sure for Christina and Derek as well because the skills that were there were no longer there. In the last week we have been working very hard towards gaining the skills back. Christina is doing great. The lack of strength in her legs is no

      • Same 'Ol Same Ol'
        09/01/21
        Not much new. Angela's birthday is coming up.

        Christina is doing well. She tries so hard to do things. I wish I could make it all better.

      • Hospital Trip
        09/01/10
        Well, we made it home in one piece.

        Christina's appointment went well. She had Botox in her calves and Phenol blocks in her thighs. Dr. Engel also checked Christina's eyes while she was under.

        The nitty gritty update :
        Christina's optic nerves did not de

      • Phenol and more...
        09/01/10
        So it has been a very rough week on me, Derek and Christina. Lets start by saying the phenol and eye stuff went very well in the OR and took less time than thought. 

        It is positive that there is nerve damage in the eyes and that has nothing to do with the PVL. The nerves were not fully

      • Prep for the week
        09/01/03
        The weekend brings us to getting ready for another trip for Christina's appointments. Christina has her next round of Botox. We are also starting Phenol blocks.

        I am a little concerned as always when we try something new. It is the next step to help Christina overcome the tone in he

      • The end of 2008
        09/01/01
        Sorry it has been so long for an update......

        Christmas was fun. I got a lot of real cool toys and have had a great time playing with them. I got this tool bench that little animals pop out when you hit a shape. I crawled to it the other day. Then when I was going to show daddy I went right t

  • 2008
    • December
      • Crawlin'
        08/12/28
        Christina, my little fire cracker, was wriggling her way towards a toy with Angela. When I came into the room, I sat on the couch to watch. Christina lifted her head up to look at me and smiled. She started to turn towards me and gave up on the toy. It was wonderful to see her wiggle and inch along.

      • Hard drive
        08/12/28
        The scenario...
        Angela and Christina went to the mall while I backed up my data.
        All is saved, the new hdd is in and formatting.

        Next to install all the software.

      • iPod
        08/12/27
        I received a new iPod for Christmas. It is fun learning how to navigate and find the features.

        To try my skill, I am posting with it. Typing on a screen is not easy. Maybe someday I will get used to it.

        Christina is still sick. Or maybe I should say sick again. She can't s

      • Merry Christmas!!!
        08/12/24
        Enough said.

      • Sick again
        08/12/23
        I am sick again. I went to the doctor today to make sure I will be okay when I go to Children's.  I had another ear infection and a very sore throat. So the doc gave me a shot of an antibiotic in my leg and that is suppose to take care of everything. It was real painful but mommy was there and

      • More Botox
        08/12/21
        The time has come for the first round of Botox to be wearing off. We go back again early January. They are also going to do Phenol blocks.

        The Phenol requires Christina to be under, so we will not be able to hold her hand during the procedure.

        We are also looking into the Botox

      • Phenol Blocks
        08/12/20
        So the trip to the cities yesterday was not fun at all. There was a big accident on the freeway in Wisconsin and we had to sit there for a long time. We did make it to Minnetonka on time with enough to spare for lunch before my appointment.  So Tanaguchi said that it is a go for phenol blocks t

      • Cole
        08/12/11
        Cole came over tonight. Dave and Crystal had a concert to go to. Christina, Cole and I had a good time. It is interesting to watch Christina when another child is around.

        We sang, played with toys, and had a snack. Christina and I taught Cole some signs. He catches on quickly.

      • Whats new....
        08/12/10
        On December 1, I got to see Santa Clause. He read me a book and sang Rudolph with me. It was fun. After we went to find me an outfit for my pictures that I am going to get done. We didn't find one we liked.



        I got real s

      • Another Wednesday
        08/12/03
        Christina is sick today. She hasn't been feeling well for a few days.

        One of the bottom molars poked through with an attitude. Christina had a flap of gum flopping over her tooth. The other molar on the bottom is so close. It has been swollen for awhile. The two on top are still taki

    • December
      • Thanksgiving
        08/11/30
        We all have a lot to be thankful for here, hope that everyone else feels the same way. It has been real nice having daddy around these extra days. On Saturday he too me swimming and we had lots of fun.

        My molar came out on the one side. We it is peaking out half way and I have a flap of gum

      • Pictures
        08/11/28
        It's Black Friday. Angela went shopping this morning and I am out for coffee this afternoon.

        I am going through pictures to double check my organization. And, trying to make another slideshow for ALL the photos.

        As I am going through the pictures of Christina it brings a t

      • Happy Thanksgiving
        08/11/27
        Just a note to say...

        Happy Thanksgiving!!!

        I have a lot to be thankful for. You have come along way Christina. You too Angela. You also have come a long way.

        Thanks you two for being you.

      • Dentist
        08/11/26
        Yesterday I got my first teeth cleaning. I was not too happy with it but It was not too bad. I have great teeth and do not need to come back for 6 months.

        This weekend uncle James and aunt Robyn came over on Sunday and I showed some of the new things that I can do. Robyn even read me a book.

      • Dentist
        08/11/25
        The dentist visit went well overall. Christina was not happy while they cleaned her teeth or when anyone was poking around for that matter. She was back to her happy and smiling self when everything was done.

        The dentist asked if Christina had been cranky lately. Angela and I looked at ea

      • Dentist
        08/11/24
        Today Christina has her first teeth cleaning. It will be her second dentist appointment. The first one went well. They did not do much. Just a check up. Today though, today I am a little skeptical at how Christina will react.

        I'm feeling a bit sick. I need a goodnight sleep and the c

      • Over with the Cities !!!!
        08/11/20
        We all made it in one piece. The trip on Friday and the trip on Tuesday are officially over and we made it. Boy it was a long week thank goodness it is over. We have one more appointment in December and then January and I should have a long break... Doctor appointment free for a while unless somethi

      • Eye Doctor
        08/11/16
        The eye doctor appointment didn't go well.

        To start, Christina cried all the way there. Not a surprise. The assistant that looked at Christina first was not aware of Christina's sensory issues. She scared Christina often. Not on purpose, but we tried to tell her tips to help pre

      • Eye Doctor
        08/11/13
        Tomorrow is Christina eye doctor appointment. It has been about six months since we saw Dr. Engle last.

        Like all the other doctor appointments, this one is already starting to drain me. I think it is getting to Angela too.

        Christina, Angela, Orion and myself have also been a bi

      • Kitten
        08/11/12
        We finally picked up a kitten. We took a trip to the Humane Association and took a liking to a short-haired tabby.

        Picking out a name proved to be as difficult as finding the right name for Christina. Orion is what seems to fit the little fur ball.

        We looked for a name that mea

      • Cruzin the mall & more info
        08/11/11
        On Friday mommy, Crystal, Cole, and I went to the mall and had lunch at Arby's. I rode in Cole's double stroller with Cole. He sat in his big brothers spot and I sat in Cole's spot. It was real fun. I can't wait to do that again.

        On Sunday mommy and I went to our neighbors house. They have a

      • Gait trainer work
        08/11/05
        Guess what???? I walked up and down the hall way 3 times in my gait trainer and I moved my feet all by my self  mommy didn't move them once. It was real hard work but I did it.

        Mommy was so proud of me and I was real proud of myself too.

      • Busy Weekend
        08/11/02
        Happy Halloween!!!

        It was a busy weekend for all of us. To start, Friday Christina and Angela stooped at the office to show off Christina's costume. After work we had dinner and went to see a few of the neighbors. Christina is loaded up on chocolate for awhile.

        On Saturday

      • Kitty !!!!
        08/11/02
        Guess what I got an early Christmas present...... His name is Hans Solo. Mommy and daddy got me a baby kitty. He is so cute. I was a little jealous at first but I am over that now. Everyone is adjusting well and he has been here since Saturday.

        On Halloween I was a bat girl. Mom and I went to

    • October
      • Sweet Dreams Christina
        08/10/29
        Beautiful Christina went to bed for me last night. Angela hasn't felt well and was already asleep. So, Christina and I did our bed time routine with bath and meds and then laid down without mommy.

        It took some convincing and some walking around, but Christina fell asleep for me. I wa

      • Sunday pancakes
        08/10/28
        This Sunday I got to have breakfast with uncle Donny, Shari, and of course mommy and daddy. I showed uncle Donny how I do sheet rides and got him to swing me in my sheet with mom. It was a whole bunch of fun. I will be sure to post picts of my pancake Sunday with uncle Donny.

        I am still a li

      • Sunday Company
        08/10/26
        Another Sunday. Christina slept in. Made pancakes as usual. And, we had company. Donny came over with Shari and had breakfast with us.

        We all had a nice visit. Donny and Angela swung Christina in the sheet. Christina loved it. She even signed more for Donny. The little firecracker is gett

      • Sick
        08/10/21
        Mommy and are a little sick today. Hopefully we will both feel better. Next week Kate comes back from maternity leave. I can't wait to show her all I have learned.  We also go to see Tanaguchi for my follow up on the botox and to get fitted for new AFO's. Just wanted to update everyone.
      • Having fun...
        08/10/20
        So this weekend we spent having lots of fun. We built forts, had sheet rides and lots of swinging. I went to the grocery store and rode around in the shopping cart then went to Walmart and rode in the shopping cart there too. Cole came with mommy and Crystal too. So you can imagine Cole and I had fu

      • Site Update
        08/10/19
        Updates, updates, updates. I made some small changes to the home page. I think the layout is a bit better. Moved the two links at the bottom to the top. That way I don't have to scroll down to see them. I also moved the pictures of Christina from vertical to horizontal. Very few on the net hav

      • Flu shot
        08/10/18
        Icky.... The flu shot. Mom and I think that I should not get the flu shot but all of my doctors recomend it. So I got my shot on Wednesday and I slept for 5 hours after. I have not had a good night sleep since the shot but we are not sure that is the problem. My belly has been giving me issues too.

      • Flu Shot
        08/10/15
        Flu season is coming. Christina had her flu shot today. Mommy and the nurse said she did very well.

        The shot set her back a bit today. She was in a good mood overall this evening. Very huggable too. She did not want to eat dinner for me again. So, I told the princess that she had to wait

      • Busy Sunday
        08/10/12
        This week mom took me swimming. I sure missed going to the YMCA. We had a lot of fun. I worked real hard on kicking my legs and splashing mom in the face. I walked the whole way out to the exit. It was a lot of work but I was real proud of myself when I got to the end.

        Saturday I was real cr

      • Sorry it has been so long....
        08/10/06
        Mommy had surgery on her wrist and has not been able to help me update everyone.  I went and had my botox on the 30 of September and it went very well. Dr. Tanaguchi let me lay on mommies tummy so I was pretty happy about that. Then they gave me laughing gas to help with the pain of the needles

      • Home Sweet Home
        08/10/02
        We made it home in one piece. The drive home was pretty typical, Angela drove, I tried to sleep, and Christina cried.

        The Botox injections went well. Christina did a wonderful job, considering she received eight injections. Four in each calf. Poor girl. She did very well with the mask als

    • October
      • Cities Trip
        08/09/29
        Well, we made it.

        Christina was her usual self and unhappy with the car ride. She started crying before we even made it out of the drive. She stopped crying when we took her out of the car at the hotel.

        Angela just slid her into bed. A bit of wind down for us and off to sleepy

      • Lots on my mind.
        08/09/28
        Well, it is Monday night and we have everything packed for tomorrow. We will leave after I am done with work tomorrow night. Then Christina's appointment is in the AM. The poor thing can't have any food or drink before her appointment. I guess we can be in the room when they give her the i

      • Angela's Surgery
        08/09/22
        Angela's surgery went well. It was a long day at the doctor, but went OK. Angela handled everything well, she was out for quite awhile, even in recovery. And of course, the first thing she asked for was coffee. I picked up some chocolate too.

        Christina also handled it very well. Her

      • Busy Busy
        08/09/16
        We have lots of appointments coming up so I figured I better post while I can.

        Angela has surgery coming up this week. Christina's appointments are the end of the month into October. I think we have surgery, neurologist, eye, physiologist, and then the dentist. The dentist appointmen

      • Up Early
        08/09/13
        Morning,

        Christina, my little princess, has been up most of the night. I decided to try and be productive. Check email, weather, woot, blog.

        Christina is so cute this time of the morning. Her eyes are big, we didn't turn on any big lights. She has a big yawn every three mi

      • Crawling and more
        08/09/10
        Last night I army crawled to mommy twice. It was hard but I wiggled, pulled with my arms and pushed with my feet. Mommy and daddy were soo proud of me. I was pretty proud of my self too.

        Mommy and I went swimming at the YMCA for the first time in two weeks. The pool was closed for cleaning.

      • Crawling
        08/09/07
        Christina is making progress getting her legs to do what she wants them to. She is making crawling motions and can get to her destination with a lot of effort and enough patience.

        This weekend was fairly quiet. Grandpa and his friend came over today. Christina received a neat toy from Jul

      • Pictures
        08/09/03
        I finally put something together for the pictures. I stuck a slideshow in to add to the page. Angela really liked it. Got lucky on that, I just needed filler. The photo albums are all done and uploaded through July, 2008. The form to pick which gallery to look at is done(the page I stuck the slidesh

      • Labor Day
        08/09/02
        Well this was suppose to be my birthday so I am officially 2 years adjusted.  Anyway...
        Sunday mom and I went to Riverview to go on the swings and wade in the river. I had other plans, when we got to the river I took off right into the water. It was so much fun. Mom and I played around.&nbs

    • August
      • Pictures
        08/08/31
        I have been a busy beaver working on pictures.

        The wonderful pictures of Christina needed to be sorted. And, backed up. I am done. All of 2006, 2007, and 2008 through the first half of August.

        Now, my next task is to sort and backup the pictures I pulled out of Christina's

      • Evan's birthday party
        08/08/24
        This weekend I went to Evan's 5th birthday party. I had fun. I got to eat more ice cream cake. MMMM MMM. There was a pinyata and I helped break it. I pulled ribbon out just like the big kids, with daddy's help. There was a puppy that was my size and I got puppy kisses all over. I liked her and I tri

      • Sitting up
        08/08/21
        So I have been sitting up at the coffee table and supporting myself. Whoo hoo!!! I am also working on talking more. We are still walking the hallway at the YMCA. Oh ya the pool is closed for two weeks for it cleaning. Mommy and I will have to find something else to do.

        I have been not sleepi

      • My Little Girl
        08/08/15
        The good news from the doctor is that Christina just has the sniffles. No CT scan needed today. We also have some ideas to try to help her sleep at night. And, to help with her stool.

        Teething seems to be less of a problem the last couple days. With some luck, we will get a break from tha

      • Doctor
        08/08/14
        Christina has been under the weather lately. All of us have.

        Angela took her to the doctor today. All is ok. Just the sniffles, nothing serious. But the little squirt won't sleep at night.

        And it was a good time to ask about her troubles with her stool.

        Gotta ta

      • Swimming
        08/08/10
        Swim, swim, swim. Yesterday I took Christina swimming. It was the first time I took her by myself.

        We had a fun time. Christina thought the car ride could have been better.

        After swimming, we came home and had a snack. After a little play time, nap time. I wish I could fall asl

      • More walkin news...
        08/08/09
        So I am walking the hallway at the YMCA almost every time I go swimming. I am getting pretty good at it. Mommy didn't take me swimming this week I was sick and then she got real sick too. Daddy took me today and we had fun. This is the first time I went swimming with just daddy.

        I can sit up

      • Pictures finally!!!!
        08/08/09




      • Walking
        08/08/05
        Today Christina and I went for two walks after dinner. Progress is being made. One, Christina is willing to go for a walk in the wheelchair. Two, I am off my duff and going for a walk.

        We might go camping this weekend. I am excited and worried at the same time. I think it will go well. If

      • August all ready???
        08/08/02
        I have done more walking at the YMCA. I am really enjoying the length that I can go. Swimming is going well too.

        My NICU follow up went pretty well. The test that they usually do to determine where I am developmentally, they decided to not finish it. Kim (the OT) said that I am a very bright

    • July
      • NICU Follow-up
        08/07/29
        NICU.

        Never did I think that I would feel so comfortable or 'at-home' in a hospital.

        Today, Christina had her 2 year NICU follow-up. The drive to Children's was the same. Cry most of the way up there, and cry most of the way back

        We went up last night

      • Missing Daddy....
        08/07/26
        Daddy went camping with uncle Donny and I miss him lots. I hope that daddy is having lots of fun he needs it. I'llh have lots and lots of hugs and kisses for him when he gets back. Mommy also misses daddy very much. Things around the house just are not right with out him.

        On Friday I got to

      • Umbrella
        08/07/23
        Thank you uncle Donny for getting the umbrella ready so mommy and I can use it.  I really like to pull out the grass and get it in between my toes. Now I can do that all day long. Thank you.

        You and Daddy have fun this weekend.

      • Good Job Walking
        08/07/22
        Christina walked (with Mommy's help) from the locker room all the way to the door today. That is quite an accomplishment.

        Daddy is very proud of you Christina!!!

      • Walking at the YMCA
        08/07/22
        Today after I went swimming I walked all the way from the locker room to the exit. That is a long way for me. I was so proud of myself and mommy was proud of me too. I know daddy is too but he was at work.

        I went out side and played in the grass before therapy. I got my toes all dirty. I was

      • Bone and Muscle update
        08/07/19
        The ride to and from the doctors was not fun at all. I was not a happy camper. The appointment went pretty well. Dr. Tanaguchi says that it is time to start botox. So my first round of shots will be September 30.  Mom and dad are not ready for that and neither am I.  Mom also brought my br

      • Family
        08/07/12
        We finally took a picture of the fam here at home.


        July 4th, 2008

      • Picture update
        08/07/12

        Mommy reading me my card at my birthday party.


        Cole and I - He came over to play with me

      • July 4th ..... My 2nd birthday
        08/07/05
        Can you believe it I am 2 today. So a few people called to wish me  a happy birthday; Uncle James, Uncle Donny, Aunt Carmen and grandma Patty.
        Cole came over this morning to play with me. we made the house a mess for mommy. Daddy went and got steaks for supper because I like steaks. Chris

      • Happy Birthday Christina!!!
        08/07/04
        HAPPY BIRTHDAY CHRISTINA!!!
        Daddy's little girl turns two today. Time has flown by. And at the same time it has been a long road.

        I am very glad to have such a beautiful daughter. Christina has learned so much and is getting smarter everyday.

        Here are pictures from: J

    • July
      • Cole and I
        08/06/30
        Cole came over on Saturday to play with me. I was a little jealous that mom had to share her time with someone else but I got over it. Well most of it.  Cole is 18 months and likes a lot of the same things that I do. We had fun. He was real interested in my gait trainer when I was in it. He als

      • Ruby Tanner Graham
        08/06/27
        On Friday, May 20th, 2008; Ruby Tanner Graham was born at home.

        Congrats to James and Sarah.

        Christina now has another cousin. I will post more later.

      • Relaxing weekend
        08/06/23
        This weekend was pretty mellow. Grandma Kar came over Saturday and Sunday and we got to play; sing songs, read books, and throw toys around.

        Sunday daddy grilled really good cheese burgers on the grill and he even made me special little ones all for me !!!
        My teeth are still working on ma

      • Firefox 3
        08/06/19
        Did you take part in Download Day. I did. Firefox 3 here we go.

        I haven't noticed a whole lot of difference yet, but then I am not on the computer a whole lot when I get home.

        The big differences for me are the add-ons that do not yet work with v3. I use a few add-ons that

      • Busy weekend
        08/06/16
        So it started on Friday we all went to Eoin's graduation party. It was real fun. Mommy took me on the huge trampoline. At first I cried because it was new and I was not sure what was going  on. After I realized that I was bouncing it was all good. Mommy then helped me bounce on my own and walk

      • Checkin' In
        08/06/12
        The girls are asleep, dishes are done, and pictures are uploading. It is about time to call it a day.

        I wanted to put up a quick post. I'm am trying to make an effort to throw something up more than once a week.

        The real news, Christina is doing well. At least as well as c

      • No Coffee
        08/06/10
        What a day. The morning started bad, the coffee maker died today.

        Woke up this morning and the coffee maker was on and not brewing. Tried turning it off and back on with no luck.

        Not messing around this time, splurged and we ordered a Cuisinart 14-cup.

      • June update
        08/06/09
        Can you believe that I am almost two!!!! I know it is time flies when your havin fun. Not much is going on here just hanging out. Jenny my OT went on maternity leave and left me my favorite toy until she comes back. I sure do like to play with it.
        This weekend mom got me a mattress pad to make m

      • Morning
        08/06/08
        Morning,

        It is a gloomy Sunday morning. I am up before the girls. Coffee is started and I'm too lazy to grab the orange juice out of the back of the refrigerator.

        Christina slept all night by herself. Huge accomplishment. I better check with Angela, to make sure I didn

      • Little sleep nights
        08/06/05
        Last night was awful. Christina had another bad night. I don't know if it is her teeth or her tone. Maybe a combination of the two. In any case, poor Angela didn't get much for sleep and I woke up often. The two of them went a round shortly after going to bed. I was still up so I too a try

    • May
      • Pictures from the trip
        08/05/29


        Sleeping so nicely at the hotel before all of my appointments.



        Dr. Moore the most

      • Update on trip
        08/05/27
        Well I will be very short and tell more later. My MRI went well, the IV was started with one stick. That was very unexpected. Dr. Moore was impressed with me and told mommy and daddy to keep up the good work. We now have copies of all the MRI's and ultrasounds, will post pictures of them later.

      • I like
        08/05/22
        I think that I like this one better. I do like the header. Love you. XOXOXOXO

      • Add Image
        08/05/21
        The image I uploaded was not resized. It definitely needed it.

        Let's try this one.

        This is one of my favorites. Christina has such an old face.

      • Images
        08/05/21
        Tried the upload image function.

        It looks like a large file. Gonna view the uploaded image before posting on site.

      • More Test
        08/05/21
        Posting again from the office. Didn't have the chance to log on last night from home.

        Created another account for Angela. Need to email her the login info for her to post.

        All comments posted are subject to moderation. This option is turned off by default.

      • First
        08/05/20
        This is my first entry. Actually, I have posted several times and this is the first post that is not titled test.

        I found the error in the php on the manage the users page. The working portion of the page was in with the display portion. These poor things were working against each other.

      • First Dentist Appointment
        08/05/20
        My first dentist appointment went very well. I did not like my car ride there but the way home was much better.  Daddy came to see me at my first visit.  I liked that a lot. So while we were waiting I was practicing walking to daddy.
        Everyone said that I was cute... Is that any surpris

      • Sitting
        08/05/17
        I am getting better at sitting. I can even push myself up and I am getting better at controling my balance. Mommy and daddy are so proud of me. I even showed grandma Kar what I can do.
        Thursday grandma Kar came over and we hung out like old times, I had so much fun. Singing, reading books, and b

      • More potty updates..
        08/05/16
        Last night while grandma Kar was here daddy took me to go potty and I pooped on the potty for the first time. Mommy. daddy and grandma were very excited for me. Maybe I should try to do that again sometime. 

        I went swimming on Wed. and played with another little girl. She is 4. Mom and

      • Guess what??? Potty chair !!!!
        08/05/08
        I used the potty this morning. It was pretty cool. Daddy was home when I went pee so he got to give me lots of encouragement with mommy. Thats my big girl news.

      • Moore figured it out !!!
        08/05/07
        Well mommy talk to Dr. Moore and he knew what was going on. He said that it had nothing to do with my lungs. It was my throat and or vocal cords spasming. He said that it was not a big deal and that kids will grow out of it. Reflux could cause it, being stressed or a viral infection, but none of tho

      • Word from the doc's
        08/05/06
        So far no one knows why I did what I did. So hopefully it will not happen again. Mommy called all my doc's in the cities to cover all the bases.

        Anyway everything else is good. Yesterday I showed mommy how I can sit up in my bumbo chair and try to stay upright all by myself. Maybe I will sho

      • Update
        08/05/05
        We made it home. After keeping everyone up, the only definite diagnosis is that I have the cutest hair.

        My lungs sound clear in front and back. My heart sounds good. My oxygen levels are great. I got my chest x-rayed twice and that looked good except for a little area that kinda looked like

      • Hospital
        08/05/04
        So, I had a little trouble breathing last night. It scared me and mom and dad. We went to the ER and they wanted to monitor me all night.

        We are still here and I am ready for a nap. The diagnosis so far is that I am cute. No other news yet. Let you know more when we get home.


    • May
      • Pictures
        08/04/24

        I am working so hard can you tell?


        Daddy and I dancing or favorite thing to do.

      • Official Word
        08/04/23
        We heard back from Dr Burnstein and I have no seizure activity. I have abnormal spikes in the occipital lobe but no seizures. So that is a good thing but not sure what makes me have the colonic jerks. It could just be the PVL.

        I had my vision teacher come out today along with Kate and Jenny

      • Warm Sunday...
        08/04/21
        Yay, we had a great day. We went to Heidi's moms house and played with her kids.  Then we went to Cold Stone for ice cream. It was so yummy. Then we went to Buffalo Wild Wings for diner too. After we came home we went for a walk with my new wheel chair. It was so nice to be outside. Daddy also

      • KID CART
        08/04/17
        Today I got my kid cart (wheel chair) today.  It was hard on mommy and daddy.  I too will have to get used to it. Soon mom and I can start going for our walks again.

        Yesterday I went swimming with mom and while we were swimming I pooped in my little swimmers. Big mess. Then they clo

      • Sunday
        08/04/14
        Well, I have a baby cousin a boy. Uncle James, aunt Robyn and Grandpa came over today and we all hung out. It was fun and very tiring I fell asleep before everyone left. Aunt Robyn made me a photo album with everyone's pictures in it.  ( Thank you )
        I can not wait until tomorrow because it

      • New stuff
        08/04/14
        I forgot to tell you last night that I got a new potty. I haven't used it yet but it should be easier than the big toilet. Mom got me a new ball, it lights up and sings it is pretty fun.  Oh ya I got a new skirt and shirt special for my birthday. Its blue with stars and the shirt is white with

      • Still all about the teeth...
        08/04/09
        Well my problem tooth is doing fine and then I got two more teeth on top. The ones on top came in much easier. So I really have a mouth full of teeth.

        Mommy and Daddy are now giving me time outs and Dr. Moore said that is fine. I am not too happy with them but I guess that I do not have a sa

      • My poor tooth!!!!!!
        08/04/03
        Well today mommy had to take me to the doctor. While Melissa was over playing with me my tooth popped and there was blood everywhere. She has kids and she said that was not normal. So off to the doc we went. Then the doc wasn't sure and went and got another doc. I am okay but have a big hole in my m

    • March
      • Big girl underwear
        08/03/31
        Mommy got me big girl underwear and I wore them on Sunday for over an hour and had no accidents. Grandma, mommy and daddy were so proud of me.

        On Saturday mommy, daddy and I went to the YMCA to go swimming. Daddy took me into his locker room and got me ready for the pool. Then got me showere

      • Carson Park
        08/03/29
        Guess what mommy and I went to the park yesterday. It was so much fun we went swinging. It was my very first time that I went on the playground stuff. Well it is the first time I have been old enough. I liked the swing it was so much fun. I then walked a real long way with mommy's assistance back to

      • Video EEG
        08/03/26
        We made it. We had to get up at 4 AM to get ready and get to my appointment on time. I really did not want to get up this morning, who wants to get up at 4? Well I guess I like to when I don't have to. The car ride was not too bad I did not mind the way up there. I had my goofy balls to play with an

      • Easter Sunday
        08/03/23
        Well we went to Easter dinner at grandpa Darrell's. The meal was very good. I liked to ham and fruit a lot. But we ended up leaving very early because I guess that people have problems accepting me for me with my abilities or disabilities.  I find that ve

      • Easter Bunny
        08/03/19
        Well today mommy and I went to see the Easter Bunny but he went on vacation and will be back tomorrow, so we will try again.  Instead mommy got me a dress. It is very cute, it pink and white. I did not have therapy today because Kate was sick but she will come to see me on Thursday with Jenny.

      • HI
        08/03/15
        Just wanted to say hi to everyone. Not much going on just a lot of teeth coming at one time. Now there are too many to count. So I guess I just have a mouth full of teeth. They are good for bitting.

        So if anyone has any questions about my test

      • EEG Results
        08/03/12
        Well the EEG results were not the greatest. They called on Monday and said that mom and dad need to bring me back up the the hospital to have a 4 hour EEG video. There is something going on with the right side rear of my brain and they are not sure what it is. Mommy told me that with clonic seizures

      • Doc update
        08/03/08
        Well I did not like the drive there or back. My teeth really hurt and well I just did not like it and I told mommy and daddy all about it.

        My first appointment was with Burnstein my neurologist.  Everything went pretty well. I got my official diagnosis of quad cerebral palsy and mixed t

      • Friday
        08/03/03
        Well Friday is going to be a long day. Mommy told me that we are going to the cities to two different appointments. I go see Dr. Burnstien (neurology) and Dr. Tanaguchi (bone and muscle). I hope that it won't be too long of a day but I will update everyone when I get home. I also hope to see Becky a

    • March
      • Painting
        08/02/26
        Mommy and I painted today. I painted my very first picture. It was so much fun to have my hands in the gooey, cold stuff. I mixed pink and blue it made purple. I got purple paint every where. I was a lot of fun. I also got two more teeth in and just one or two more are waiting. So I have 6 teeth com

      • I showed off !!!
        08/02/21
        I got to show off today for daddy. He came and saw me at my swimming lesson and he got to see me go off the diving board again. I sure do love swimming.
        Kate brought me a vest to help with support. It is made from wet suit material and has 2 steel rods in the back of it. It really does help me s

      • Diving board
        08/02/19
        Sorry I am late on the update. Last Wednesday at SKIPS I went off the diving board and I didn't even cry. Mommy was sooo proud of me, and next week daddy is going to come and see me go off the diving board again.  Saturday we all went swimming. It was fun to play with daddy in the pool. So I ha

      • Picture update Hee Hee
        08/02/09
        Hi everyone mom finally got some new pictures so here they are. The newest ones are from 1-16-08. Wow I am getting old.
        Also thank you everyone for your posts. I like to hear mommy read them to me. Daddy likes to read them too.
        Yippy more teeth!!!
        08/02/05
        My eye tooth came finally but now there are three more sensitive areas that I think are going to be teeth soon. They are swollen. So I will really be able to chew stuff.
        On Saturday daddy and I left the house all by our selves. It was fun. We went to grandma Kars while mom went and got me some n

      • Pictures...
        08/02/03
        Mom, dad and I went to get our pictures done again today. We went last week but they didn't turn out because I didn't want to be there. So I had a busy morning. 
        The meeting with my vision teacher went well. She will be my vision teacher when I go to school. Not too much new news but she wa

      • Comments
        08/02/01
        I sure would like to read what people have to say. I like to know that I get visitors. Could you please leave a post for me. I really like to read them. Thank you so much everyone. Lots of Love Christina

    • January
      • More teeth!!!
        08/01/31
        Guess what everyone I have another tooth on the bottom so I have three. I also am waiting for another tooth on the top an eye tooth to be exact. It seems to be right there but has not popped out yet.
        I missed SKIPS today because it was too cold to leave and go swimming, so mom said that we will

      • SKIPS update .....
        08/01/26
        SKIPS was fun. I learned a new song called the POPCORN song.
        I'm a little piece of popcorn. Put me in the pan shake me shake me as fast as you can. And I willll POP!!
        Mommy and I have lots of fun with this song. Mommy ran into an old friend and he has a 9 month old son so we are all going to

      • SKIPS
        08/01/19
        Hi everyone. Mom and I went swimming today and I went into the big pool. It was a bit chilly. Mom also signed me up for a class called SKIPS. We will go on Wednesdays and play in the small pool with other kids and sing songs and fun stuff like that. So i will let everyone know how I like it after I

      • YMCA
        08/01/16
        We all went to the YMCA on Sunday, Mommy, daddy,and I. I

      • Grandma Kar's
        08/01/10
        I went over to grandma Kar's today and hung out while mommy went bye bye. Grandma and I had lots of fun.  My teeth are really bothering me so I hope that they pop through soon. Friday we are going to go to the YMCA again and go swimming, grandma is going to go again too.

        The YMCA
        08/01/07
        Guess what I went to the YMCA today and went swimming. It was sooo much fun. They even have a small pool just for me. I had a great time and we are going to get a membership so I can go all the time. Grandma Kar came to see me swim too. She took pictures of me and mom- mom forgot the camera.  A

      • One year and a half......
        08/01/05
        Hay everyone I am a whole year and a half today. I am such a big girl... Here is a picture so you can see how big I am getting.

        That is me in my gait trainer. Look  how tall I am. 29.5 inch

      • Pictures
        08/01/04

        Daddy and I dancing                                    &nb

      • Happy New Year.........
        08/01/01
        Whoo hooo 2008... Well I had a wonderful Christmas and New Year. Uncle James and Aunt Robyn stopped new year's eve and I got more presents to open. I sure liked the paper MMMMMM it tastes so yummy. Mommy said that we are going to try out the YMCA to see if I like it, I can't wait. We will go next we

  • 2007
    • December
      • Christmas Eve
        07/12/25
        Hi everyone. I spent Christmas eve with grandma Kar,mom, and dad. We had lots of fun opening some of my presents. Dad taped me, suppose I should be use to it by now. The wrapping paper was the funnest. I loved to chew on it and tare it up. I got some cool toys and new sheets for my bed, they are pen

      • Two days till................ Xmas
        07/12/23
        Hi everyone. I had the stomach bug that was going around. I  felt so horrible for a week. I am getting better now. I can't wait to open up all the presents under the tree. So really not much has gone on this last week all I wanted to do is sleep and cuddle. Just wanted to say hi.

      • One week till Xmas
        07/12/14

        Hi everyone, not much here is new.   We got our tree up and the lights on it. We had some issues it did not want to stand up by it self. Daddy did a good job cuz it hasn't moved in 2 days. Then mommy watered the floor instead of the tree.  Today is daddy's Christmas party; so mommy

      • fun
        07/12/05
        I just want to tell everyone that despite all the things that are not what everyone thinks is normal - I have a happy and loving family life.


    • December
      • Santa Claus
        07/11/30
        Mommy and grandma Kar took me to see Santa on Wednesday. It went pretty well, I sat on his lap and had my picture taken. The elf's had problems with the computer so I had some extra time with Santa. We had to retake the pictures and I did not want to sit on his lap again so mommy had to take pi

      • Thanksgiving
        07/11/24
        Happy Thanksgiving everyone. We had our first Thanksgiving. Our bird was bigger than me by 4 lbs. Mommy took pictures and I will post them, they are of me and the bird. Supper was very good. Grandma Patty and Grand Harp came over to eat and play.

        My contrast study came back all perfect

      • After the contrast study....
        07/11/18
        Well the trip to the cities went pretty well. The test upset my belly but I guess that happens when they put vials of fluid into your intestines. The equipment was kind of scary but mommy held my hand the whole time and daddy was there talking to me too.
        I still feel a little under the weat

      • Doc Aru
        07/11/03
        Hi everyone - todays doctor appointment went pretty well. Doc Aru said that Mom and Dad are doing everything that they can for me to gain weight the next thing would be to place a G tube and we do not want that.  Guess what I did gain a little. Doc Aru wants me to come back and h

    • October
      • weight
        07/10/31
        Whoo hoo. Well everyone I have gained weight. All the fattening food mommy and daddy have been feeding me has paid off. It tastes pretty good too. On Friday I go to see Dr. Aru about my weight to see if he has any more ideas for mommy and daddy to do. We are tying to avoid getting a G-tube. If

      • reply to rude comment....
        07/10/28
        Christina you poor little girl. They have you taking Ativan!!!!?????!!!!! That is really scary. I wish you were old enough to tell them no.

      • Late update on Doc
        07/10/21
        Well sorry that I am late with my update things have been busy. Dr. Moore is says that I am too skinny for my height and that I am short. So I have to go see another doctor his name is Aru. He is a GI doc. I saw him when I had my ilieostomy. They want to make sure that my belly is working right

      • New Pictures
        07/10/15
        Hi everyone. I am going to be quick.. Just wanted to put up some new pictures. I am going to the cities tomorrow to see Dr. Moore. Mommy and grandma Kar took me to get a new car seat yesterday. I will try it out tomorrow.  I am still sick my cold won't go away. So here are some new picture

      • The eye doc
        07/10/11
        Hi sorry it has been awhile. Mommy, Daddy and I went to the cities for the eye doctor on Tuesday. It went pretty well. I found out that I have damage to the optic nerve in my eyes on both of them. Dr. Engle is not sure how bad and we will not know until later in life. Well I am sick and this is

      • The mall
        07/10/01
        This Sunday mom and Alissa went to the mall and got me some new clothes. We went to get me my Halloween costume but they didn't have the one I wanted so we got some cute outfits instead. Well I make anything cute. Hee hee.  Alissa and I are getting along better but I think that I still nee

    • October
      • My room
        07/09/24
        Daddy took my crib down yesterday and now my room has a lot of toys in it to take the place of the crib. I have been spending more time in my room too. I took a two hour nap all by my self today. It is getting easier to stay by myself. I even have a reading chair too.
        Alissa came over on Sa

      • My Bed
        07/09/18
        Guess what ? I slept in my bed all by myself from 11:30 - 4:30. Mommy was so proud of me. It has only been my second night in my room.
        My neurology appointment went well- I can't remember if I updated everyone. Dr. Burstien says that I am doing great. He is impressed with all my accomplishm

      • ;-)
        07/09/14
        Hi everyone. We are going to add speech therapy to my list of therapies. Mom and I don't know when they are going to start. I will let you know when we start. I am sure that I won't like it at first but I will get use to it. 

        So it is getting cold and I am not too fond of that and

      • Ahh Monday again
        07/09/10
        I think that we are back to a schedule. Friday was a long day- I didn't like the car ride home. I made grandma Kar upset because I was so mad, but we made it home. Mommy is not suppose to lift me up because of her arm-she of course is lifting me. It was nice to have daddy home so much-I sure li

      • 14 months
        07/09/05
        Hi everyone I am a whole 14 months today can you believe it!!!!  Mommy and I did some running around today. We went and got daddy's phone and stopped by to see Kelley too. Grandma Patty came over and had lunch with us and chatted a while.

        Grandma Kar is coming tomorrow to play 

      • Busy, busy...
        07/09/01
        Happy Labor Day weekend everyone. So things have been very busy around here. Mom started school, between me and that there really is no time. She is making me work hard still nothing new there. The gait trainer is gone for now but I still walk without it. I walk to daddy for bath time. I don;t

    • August
      • Nike
        07/08/28
        I got my very first pair of nike's on Sunday. Mommy and Daddy got them for me. Mommy started school on Monday- I think that she is stressed out.  Mommy got me a farm house with neat animals that pop out when you press different buttons.  It is pretty fun to play with. My teeth have be

      • Goals
        07/08/21
        Hi everyone. Sorry that I have not been here to update things. I have been very busy.

        Today for the first time since I started therapy I met my goals for the day. Mommy and Daddy are so proud of me. I sure worked hard today. Jen came today instead of Thursday.

        I have been doing

      • Walking
        07/08/15
        Yesterday I walked down the hallway to my room and back for Katy. She pushed my gait trainer and I moved my legs all by myself. I then showed daddy when he came home from work. He was so proud of me, so was mommy.

        I had Cheerios's for the first time yesterday too. I ate it and swallowed

      • ;-)
        07/08/14
        I just wanted to say hi toeveryone who stops by.

      • My Pool
        07/08/12
        Hi everyone...
        Today mommy daddy and aunt Sheri set up my big pool from my birthday. We set it up at aunt Sheri's house. Grandma Kar played with me until they were done. The three of them could not make up their mind on where they wanted to put it. So grandma and I watched them move it over

      • Hot Dogs ;-)
        07/08/07
        I had a hot dog for dinner last night. It was sooo tasty. I chewed on it and got little bites off of it. Daddy did a great job on grilling them. I guess that I am going to have to ask him to make more for me. I also had nilla wafers and grapes. They were pretty tasty but not as good as the hot

      • Follow up
        07/08/05
        Well I have more energy now to finish. Last evening I went out side with grandma Kar, dad and mommy, we met the neighbor named Lilly. She is 14 months old. She gave me kisses and we held hands. It was fun. The after noon we met Maria, kyle, Kurt and Kody at Borders for coffee and books. 
      • PJ's
        07/08/05
        Guess what everyone........ I graduated into big girl pj's on Friday. They are tow piece pants and a top. They are comfy and too cute. I will still wear my footy ones but I like these too. I am real tired now so I will tell you about my day further tomorrow. I must go to bed. Good night guys. <

      • Swimming
        07/08/02
        Hi guys-
        I did go to Jessie's yesterday. We had fun. I was not too fond of the car ride but it wasn't that bad. I hung out with other kids. We went swimming and that was real fun, the pool was big enough  for mommy to swim with me. The water was warm and I like it that way. I kicke

      • Today......
        07/08/01
        Mommy got the gait trainer again so I can practice. It sure is hard bit fun. I get to stand up and use my legs. I also have been using my mesh bag to taste new foods. I like the grapes mommy gave me bit I do not like the carrots. This morning I got to try mandarin oranges I am not so sure about them

    • July
      • ;-)
        07/07/30
        I just wanted to say hi to everyone. Thank you to all who post on my site, I like it when mommy and daddy read me what everyone writes.

        Mommy keeps telling me how big I am getting, I guess that I am. Tootles for now.

        Christina
        Smiles
        07/07/27
        Hi everyone. I had a great day yesterday. Jen came over and we played the whole time. I haven't seen her in two weeks. For dinner I had grandpa's chili and grandma Kar's pork chops with gravy and potatoes.  It was yummy. Jen gave me the turtle that makes bird noises. She also brought over

      • Ahhh Busy Day in MN
        07/07/25
        Well I got to see Terri, she was my OT while I was in the hospital. She made me do lots of work. I also had PT early this morning at 8 am with my teacher. So I was running all day and had two therapy appointments in one day. The doctor thinks that I am doing very well with all that is stacked up aga

      • gait trainer
        07/07/20
        On Tuesday I got a gait trainer to try out until I get one for myself. It is neat, it helps me stand straight and I can even take steps. Although I am not ready to step yet I am just working on standing. That is hard work. They came and picked it up today, mommy and I were kind of sad to see it

      • New Stuff
        07/07/16
        Hey guess what everyone? I got my second tooth yesterday. It finally came threw so it feels much better.  My shots went pretty well no major side effects just a little tired. Mom went and got me a sippy cup I tried it yesterday. Its kind of tricky but I think that I'll get the hang of it. I als

      • pictures
        07/07/13
         Here are some pictures of me at my birthday party. Also some cute ones of me too. Mom got them to the computer for me.
        My second tooth is giving me problems so I am a little crabby. I hope that it  comes thru soon. I also have my year check up tomorrow and that means shots. I hope tha

      • therapy
        07/07/10
        Today mommy had PT add a school teacher. So I work even harder on Tuesdays. My teachers name is Tammy, she is nice and has new toys for me to play with. We work on language and signing along with my vision.

        This weekend I went swimming in my new pool. Mom, Dad and Grandma Kar were there. Mom

      • my party
        07/07/02
        My birthday party was on Sunday.  It was a lot of fun. I was real tired from staying up all night the night before - I guess that I was excited for the party. I slept thru half of my party. We had lots and lots of food. The party was at aunt Sheri's and uncle Dan. Thanks guys. Thank you everyon

    • July
      • swimming
        07/06/25

        Mom and Dad took me swimming today. We went to the Fairfax pool first but it was closed to the public this weekend for swim meets. So we all went to Riverview and we all went swimming. It was pretty fun. Then grandma Kar came over and we had pizza or dinner well I had sweet potatoes. My tooth is

      • teeth
        07/06/22
        Guess what everyone??  ............  I got my first tooth today. Its my bottom right one.  Today mommy and I went for our walk and when we got home I got to hang out with grandma Patty for awhile. Then mommy and I went and got my dress for pictures this Saturday. Of course I got more

      • Fathers Day
        07/06/18
        Hi everyone today was my daddy's first Fathers Day. We just hung out Grandpa and Nancy came over and Uncle James and Aunt Robyn stopped by too. I wasn't too social because I had a busy week and my teeth were hurting.
        Yesterday mommy,daddy, and I went to Sams Club and then to Chris's for dinner.

      • pictures
        07/06/12
        Hi everyone mom and dad finally got the web pictures for me to post, so I want to put pictures from memorial day (my first park excursion) my EEG and just some other cute ones of me. Well they are all cute but I guess that I will have to pick a couple.
        Mom has been making me work real

      • hi everyone
        07/06/09
        It's me, Guess what ? Dad gave me some DQ ice cream on the 4th - I liked it a whole lot. It sure tasted yummy. Then on the 7th mom, grandma Kar and I went to DMV. It wasn't too bad we just hung out and then after grandma played with me on the floor and I showed her that I can roll over by mysel

      • My doc appointment
        07/06/03
         Well the car ride was not too bad to the cities. Daddy sat in the back with me. I was tired because mommy had to get me up at 5 AM but I didn't sleep. Daddy was tired too he put my diaper on a little crooked and I got poop on my bloomers and in the car seat. It wasn't;t too bad.  We got t

    • May
      • Memorial Day
        07/05/29
        It was my first Memorial Day weekend. I jump started Daddy's weekend. I had to visit the ER on Friday afternoon. Mommy brought me and then Grandma Kar came. Dr Peterson (the ER doc) thought that I might have had a seizure, not sure. So daddy was home at 1 well in the ER with me. Things are fine now.

      • painted toes
        07/05/25

        Hi everyone- Sorry that haven't been here more frequently. Today was a rainy lazy day. Mom and I played a lot in the house. I also got to skip an OT lesson today. Jen is on vacation. Mommy painted my toes tonight too.
        Good night every one.
        Picture
        07/05/20

        Dad wanted to put up a recent of me. Here ya go.

      • Rolling over
        07/05/14
        Guess what every one I rolled over today twice and showed OT a little of the stuff that I am doing for mommy and daddy. Mom and I have been going for at least one walk a day to enjoy the outdoors. Yesterday was mom's first mothers day so daddy and I gave her a little extra break. 
        Mom is do

      • Its Monday
        07/05/07
        I just wanted to say hi to everyone. Daddy got home from work early so I have a lot of playing to do. I just wanted to tell everyone that I get to play with daddy on a Monday and I am happy. So I gotta go play.
        Bye Bye

      • Hi
        07/05/06
        Sorry that I haven't been here. Mom has been really busy with the end of school around the corner.  Well I am a whole 10 months now I am getting so big.  I got a new highchair for eating and I am not to fond of it right now. I still would rather be held. Mom and Dad ordered our family pict

    • May
      • Dr. Moore
        07/04/20
        Well I went to the cities to see Dr. Moore. He is a developmental doctor. He has been seeing me since I was in Children. I wasn't too happy on the ride there or back. I really just didn't like my car seat. The doctor appointment went well. Moore was impressed with how big I have gotten and all the n

      • my family pictures
        07/04/15

        Mom Dad and I went to get our pictures taken on Saturday. Mom gave me prunes for breakfast and well during the pictures I had to go poop and it came out of my diaper all on mommy's white dress. Daddy cleaned me up while mommy cleaned her dress and then we resumed pictures. They turned out pr

      • my thoughts
        07/04/11
        I just wanted to thank everyone who pops in to check up on me it means a lot. I would really like to here from everyone I enjoy when mommy and daddy read what everyone has to say. And if I haven't met you before I look forward to the day that I can get to meet you.

        Well today was pretty

      • First Easter weekend
        07/04/08

        Where shall I start. Easter weekend was busy starting with Friday. I went to the mall with mom and we saw the Easter bunny, he was okay but I was not to fond of him.  I did take a picture with him for dad. Mom and I came home , I  took a nap and when I woke up daddy was home. He came ho

      • 9 months birthday
        07/04/04
        Yippy I am a whole 9 months today- getting so old ha ha ha
        Just hanging out inside today it is too cold outside to go walking. Hope it warms up soon I sure like the sunshine.

      • Dr Engle
        07/04/04
        Today was really busy, I went to the eye doc in the cities( Dr Engle) it went pretty well. It went better than the car ride. I don't have to go back to see Dr Engle for 6 months. That appointment is going to be long and not so fun. Then he will have to dilate my eyes. Icky !!!!!
        My be then

      • 9 month check
        07/04/02

        Hi everyone. My 9 month check went well. I am 25.25 inches long I have grown a little over 2 inches since January. I weigh 14 lbs 13 oz almost 15 lbs. I am getting so big.
        Mom and Dad and I went shopping yesterday I got a hat, pants and a cute sweater. I got a jean jacket too.

        Grandpa

    • March
      • hi
        07/03/28
        I have my 9 month check up on Friday - boy I am getting old. I really enjoyed the nice weather that we had. Mom and dad took me for walks all weekend. It was fun. Summer should be really fun. I have an eye doctor appointment next Tuesday in the cities. 
        Great grandma is coming to visit me t

      • update
        07/03/23

        Hi everyone,

      • this weeks news
        07/03/18
        Well on Thursday Jen came over to play and we were happy most of the time. She brought a vibrating ladybug that I really like, it felt funny in my mouth.
        On Saturday mom gave me meat beef to be exact. I am not too sure what to think about that. We'll see how my belly acts. We went to Target and

      • PT
        07/03/13
        Today Katie came and played with me, I was happy the whole time, we had fun. I showed her the things that I do for mommy and daddy. I took a long nap today I guess that I needed to.
        I miss daddy and hope he comes home from work soon.

        I love my mommy and daddy very much. XOXOXOX

      • weekend news
        07/03/12
        Hi everyone. I went for a long walk with daddy. It was fun and I like the nice weather.  I went and saw great grandma Marge on Sat. and then grandpa Darrel on Sun. Sat I went to Target with mom, but we had to cut shopping short bemuse I made a mess. We had to go home and clean up. My weekend wa

      • Hi
        07/03/08
        I had a busy day yesterday. I went to the mall with grandma Patty and mom. I got my first swimming suit its white with a few flowers on it, I also got a pair of green comfy pants. 

        Today I don't feel to well. I have a fever and just want to snuggle with mom. Hope that I feel better soon

      • veggies and toys
        07/03/05
        Hi everyone. Today I had vegetables (sweet potatoes to be exact). I liked them they were pretty good.  I started eating food food twice a day on Saturday.  I still like my milk though.

        Grandpa came a visited today we had fun a lot of laughing and giggling. Anent Robyn and uncle Jam

      • hungry
        07/03/01
        I was a hungry girl today. I ate seconds on my peaches, they were yummy.  Its my daddy's birthday tomorrow- Happy Birthday Daddy I love you. I wish that I could spend the day with you. 
        I am tired its my bed time so Good Night.

    • March
      • hi
        07/02/24
        HI  everyone. I got another sinigis shot yesterday for the RSV stuff that goes around. My thigh is pretty sore. Mommy started this brushing thing it is suppose to help my nerves calm a bit. We do this every two hours. I think that it is helping a little we started on Thursday. It is suppos

      • Thank you
        07/02/20
        Thanks aunt Robyn and uncle James. The sleepy head definatly fits.
        My belly has been making me feel a little under the weather, mommy is trying everything to help I just hope that my belly gets back on track. Its nice outside and would like to go out when I feel better.  

      • busy weekend
        07/02/18
        Hi everyone.  I have had a very busy weekend. Friday I went swimming for the first time in a real pool. Not to sure what to think of that. I also met other babies. Cole is 4 months and bigger than me. Then on Saturday I went to the mall with mommy. It was fun to watch all the people. We were th

      • juice
        07/02/15
        I forgot to tell everyone that I had juice for the first time yesterday. I am not sure if I like it. It was pear juice, it's alright I guess.



      • valentines day
        07/02/14
        Its my very first Valentines Day. I am just hanging out today with mom and dad is coming home early.
        My belly is feeling better. Not much new here, just waiting for the weather to warm up.

      • HI
        07/02/12
        I still don't want to sleep my teeth are hurting my gums. I hope that they come thru soon.
        I miss daddy today I hope that he gets home soon.  I want to play with him.

      • Sunday, Feb 11th
        07/02/11
        Christina,

        You are so cute. It is 3:45 and you are passed out in Grandpa's lap. You needed the nap too.

        It is wonderful you are getting more vocal too. I love to hear you talk to me.

        Derek




      • busy day
        07/02/08

        Hi everyone. I didn't feel like sleeping at all today so I helped mommy rearrange the living room. We made muffins too. The occupational therapist came over to play today again and I still didn't feel like playing with her.
        I am getting freckles on my nose, boy I am getting old. HA HA  I

      • cold cold day
        07/02/06
         Hi everyone. I am getting bored in the house but its too cold to go anywhere. Kate came over to play today and I just didn't feel like it. I was real tired, but for some reason I couldn't sleep.
        Grandma Patty came over today to play too, but I was still too tired. I missed my morning n

      • I am 7 months
        07/02/04

        Hi everyone. I am a whole 7 month old today. Its been an exciting 7 months. I am getting so big and learning new things everyday. I really like my panda bear its the black and white, and he tastes good. I really like to give mommy and daddy kisses and hugs. It gives me warm fuzzies i

      • First Blog
        07/02/03
        Hello internet world. Daddy is getting my blog set up so he and Mommy can put stuff here.

        Dad thought I needed a web page. A blog seemed like the best idea.